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Lifetime Costs of Surviving Cancer—A Queensland Study (COS-Q): Protocol of a Large Healthcare Data Linkage Study

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  • Katharina M. D. Merollini

    (Sunshine Coast Health Institute, School of Health and Sport Sciences, University of the Sunshine Coast, Maroochydore, QLD 4558, Australia)

  • Louisa G. Gordon

    (QIMR Berghofer, Medical Research Institute, Herston, QLD 4006, Australia
    School of Nursing, Queensland University of Technology, Kelvin Grove, QLD 4059, Australia
    School of Public Health, The University of Queensland, Herston, QLD 4006, Australia)

  • Joanne F. Aitken

    (Cancer Council Queensland, Fortitude Valley, QLD 4006, Australia
    Institute for Resilient Regions, University of Southern Queensland, Ipswich, QLD 4305, Australia
    Menzies Health Institute Queensland, Griffith University, Gold Coast, QLD 4222, Australia)

  • Michael G. Kimlin

    (Sunshine Coast Health Institute, School of Health and Sport Sciences, University of the Sunshine Coast, Maroochydore, QLD 4558, Australia
    School of Biomedical Sciences, Queensland University of Technology, St Lucia, QLD 4072, Australia)

Abstract

Australia-wide, there are currently more than one million cancer survivors. There are over 32 million world-wide. A trend of increasing cancer incidence, medical innovations and extended survival places growing pressure on healthcare systems to manage the ongoing and late effects of cancer treatment. There are no published studies of the long-term health service use and cost of cancer survivorship on a population basis in Australia. All residents of the state of Queensland, Australia, diagnosed with a first primary malignancy from 1997–2015 formed the cohort of interest. State and national healthcare databases are linked with cancer registry records to capture all health service utilization and healthcare costs for 20 years (or death, if this occurs first), starting from the date of cancer diagnosis, including hospital admissions, emergency presentations, healthcare costing data, Medicare services and pharmaceuticals. Data analyses include regression and economic modeling. We capture the whole journey of health service contact and estimate long-term costs of all cancer patients diagnosed and treated in Queensland by linking routinely collected state and national healthcare data. Our results may improve the understanding of lifetime health effects faced by cancer survivors and estimate related healthcare costs. Research outcomes may inform policy and facilitate future planning for the allocation of healthcare resources according to the burden of disease.

Suggested Citation

  • Katharina M. D. Merollini & Louisa G. Gordon & Joanne F. Aitken & Michael G. Kimlin, 2020. "Lifetime Costs of Surviving Cancer—A Queensland Study (COS-Q): Protocol of a Large Healthcare Data Linkage Study," IJERPH, MDPI, vol. 17(8), pages 1-16, April.
    • Handle: RePEc:gam:jijerp:v:17:y:2020:i:8:p:2831-:d:348078
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    Cited by:

    1. Katharina M. D. Merollini & Louisa G. Gordon & Yiu M. Ho & Joanne F. Aitken & Michael G. Kimlin, 2022. "Cancer Survivors’ Long-Term Health Service Costs in Queensland, Australia: Results of a Population-Level Data Linkage Study (Cos-Q)," IJERPH, MDPI, vol. 19(15), pages 1-17, August.
    2. Laura C. Edney & Jackie Roseleur & Tim Bright & David I. Watson & Gaston Arnolda & Jeffrey Braithwaite & Geoffrey P. Delaney & Winston Liauw & Rebecca Mitchell & Jonathan Karnon, 2023. "DAta Linkage to Enhance Cancer Care (DaLECC): Protocol of a Large Australian Data Linkage Study," IJERPH, MDPI, vol. 20(11), pages 1-16, May.
    3. Annie Bygrave & Kate Whittaker & Christine Paul & Elizabeth A. Fradgley & Megan Varlow & Sanchia Aranda, 2021. "Australian Experiences of Out-of-Pocket Costs and Financial Burden Following a Cancer Diagnosis: A Systematic Review," IJERPH, MDPI, vol. 18(5), pages 1-19, March.
    4. Louisa G. Gordon & William Leung & Richard Johns & Bronwen McNoe & Daniel Lindsay & Katharina M. D. Merollini & Thomas M. Elliott & Rachel E. Neale & Catherine M. Olsen & Nirmala Pandeya & David C. Wh, 2022. "Estimated Healthcare Costs of Melanoma and Keratinocyte Skin Cancers in Australia and Aotearoa New Zealand in 2021," IJERPH, MDPI, vol. 19(6), pages 1-14, March.

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