IDEAS home Printed from https://ideas.repec.org/a/gam/jijerp/v17y2020i7p2218-d337316.html
   My bibliography  Save this article

The Relationship between Health Disparities, Psychosocial Functioning and Health Outcomes in Pediatric Hematology-Oncology and Stem Cell Transplant Populations: Recommendations for Clinical Care

Author

Listed:
  • Evrosina I. Isaac

    (Virginia Commonwealth University School of Medicine, 1201 E. Marshall St #4-100, Richmond, VA 23298, USA
    Children’s Hospital of Richmond at Virginia Commonwealth University, Richmond, VA 23219, USA)

  • Andrea R. Meisman

    (Division of Adolescent and Transition Medicine, Cincinnati Children’s Hospital Medical Center, Cincinnati, OH 45229, USA)

  • Kirstin Drucker

    (Virginia Commonwealth University School of Medicine, 1201 E. Marshall St #4-100, Richmond, VA 23298, USA
    Children’s Hospital of Richmond at Virginia Commonwealth University, Richmond, VA 23219, USA)

  • Stephanie Violante

    (Children’s Hospital of Richmond at Virginia Commonwealth University, Richmond, VA 23219, USA
    Department of Psychology, Virginia Commonwealth University, Richmond, VA 23284, USA)

  • Kathryn L. Behrhorst

    (Children’s Hospital of Richmond at Virginia Commonwealth University, Richmond, VA 23219, USA
    Department of Psychology, Virginia Commonwealth University, Richmond, VA 23284, USA)

  • Alfonso Floyd

    (Children’s Hospital of Richmond at Virginia Commonwealth University, Richmond, VA 23219, USA
    Department of Psychology, Virginia Commonwealth University, Richmond, VA 23284, USA)

  • Jennifer M. Rohan

    (Virginia Commonwealth University School of Medicine, 1201 E. Marshall St #4-100, Richmond, VA 23298, USA
    Department of Psychology, Virginia Commonwealth University, Richmond, VA 23284, USA
    Massey Cancer Center Virginia Commonwealth University, Richmond, VA 23298, USA)

Abstract

Not only do racial and ethnic minority children and adolescents with chronic illness experience disparities in health status and health outcomes, they also experience significant healthcare disparities, including differences in healthcare coverage, access to care, and quality of care. It is well known that the interaction between psychosocial functioning, health behaviors and ethnic and racial disparities, ultimately leads to worse health and psychosocial outcomes in pediatric and AYA chronic illness patient populations, including increased rates of morbidity and mortality. Investigating the impact of racial and ethnic factors on health outcomes, and strategies for reducing these disparities, is of the utmost importance, specifically in life-threatening conditions like cancer and sickle cell disease. This commentary underscores the relative importance of identifying factors that could reduce disparities between minority and non-minority populations. This present paper will focus on the dynamic relationships between health disparities, psychosocial factors and health outcomes within pediatric cancer, sickle cell disease and bone marrow transplant populations, and will offer recommendations for healthcare professionals working with these vulnerable patient populations. The primary goal of this commentary is to provide recommendations for enhancing cultural competency and humility for those working with highly vulnerable patient populations.

Suggested Citation

  • Evrosina I. Isaac & Andrea R. Meisman & Kirstin Drucker & Stephanie Violante & Kathryn L. Behrhorst & Alfonso Floyd & Jennifer M. Rohan, 2020. "The Relationship between Health Disparities, Psychosocial Functioning and Health Outcomes in Pediatric Hematology-Oncology and Stem Cell Transplant Populations: Recommendations for Clinical Care," IJERPH, MDPI, vol. 17(7), pages 1-14, March.
  • Handle: RePEc:gam:jijerp:v:17:y:2020:i:7:p:2218-:d:337316
    as

    Download full text from publisher

    File URL: https://www.mdpi.com/1660-4601/17/7/2218/pdf
    Download Restriction: no

    File URL: https://www.mdpi.com/1660-4601/17/7/2218/
    Download Restriction: no
    ---><---

    References listed on IDEAS

    as
    1. Hall, W.J. & Chapman, M.V. & Lee, K.M. & Merino, Y.M. & Thomas, T.W. & Payne, B.K. & Eng, E. & Day, S.H. & Coyne-Beasley, T., 2015. "Implicit racial/ethnic bias among health care professionals and its influence on health care outcomes: A systematic review," American Journal of Public Health, American Public Health Association, vol. 105(12), pages 60-76.
    2. Braveman, P.A. & Kumanyika, S. & Fielding, J. & LaVeist, T. & Borrell, L.N. & Manderscheid, R. & Troutman, A., 2011. "Health disparities and health equity: The issue is justice," American Journal of Public Health, American Public Health Association, vol. 101(SUPPL. 1), pages 149-155.
    3. Warnecke, R.B. & Oh, A. & Breen, N. & Gehlert, S. & Paskett, E. & Tucker, K.L. & Lurie, N. & Rebbeck, T. & Goodwin, J. & Flack, J. & Srinivasan, S. & Kerner, J. & Heurtin-Roberts, S. & Abeles, R. & Ty, 2008. "Approaching health disparities from a population perspective: The National Institutes of Health Centers for Population Health and Health Disparities," American Journal of Public Health, American Public Health Association, vol. 98(9), pages 1608-1615.
    4. Kilbourne, A.M. & Switzer, G. & Hyman, K. & Crowley-Matoka, M. & Fine, M.J., 2006. "Advancing health disparities research within the health care system: A conceptual framework," American Journal of Public Health, American Public Health Association, vol. 96(12), pages 2113-2121.
    Full references (including those not matched with items on IDEAS)

    Most related items

    These are the items that most often cite the same works as this one and are cited by the same works as this one.
    1. Puckett, Cassidy & Wong, Jenise C. & Daley, Tanicia C. & Cossen, Kristina, 2020. "How organizations shape medical technology allocation: Insulin pumps and pediatric patients with type 1 diabetes," Social Science & Medicine, Elsevier, vol. 249(C).
    2. Klaas H J Ultee & Elke K M Tjeertes & Frederico Bastos Gonçalves & Ellen V Rouwet & Anton G M Hoofwijk & Robert Jan Stolker & Hence J M Verhagen & Sanne E Hoeks, 2018. "The relation between household income and surgical outcome in the Dutch setting of equal access to and provision of healthcare," PLOS ONE, Public Library of Science, vol. 13(1), pages 1-13, January.
    3. Liu, Jiawei & Niederdeppe, Jeff, 2024. "Effects of communicating health disparities using social comparison framing: A comprehensive review," Social Science & Medicine, Elsevier, vol. 348(C).
    4. Judith Muhonja Ochieng & Janice D. Crist, 2021. "“I put diabetes on the shelf†: African-American Women’s Perceptions of Risk for Diabetes Complications," Clinical Nursing Research, , vol. 30(7), pages 1012-1022, September.
    5. Tamara Power & Denise Wilson & Odette Best & Teresa Brockie & Lisa Bourque Bearskin & Eugenia Millender & John Lowe, 2020. "COVID‐19 and Indigenous Peoples: An imperative for action," Journal of Clinical Nursing, John Wiley & Sons, vol. 29(15-16), pages 2737-2741, August.
    6. Chapman, Mimi V. & Hall, William J. & Lee, Kent & Colby, Robert & Coyne-Beasley, Tamera & Day, Steve & Eng, Eugenia & Lightfoot, Alexandra F. & Merino, Yesenia & Simán, Florence M. & Thomas, Tainayah , 2018. "Making a difference in medical trainees' attitudes toward Latino patients: A pilot study of an intervention to modify implicit and explicit attitudes," Social Science & Medicine, Elsevier, vol. 199(C), pages 202-208.
    7. Brian D. Schwartz & Alexis Horst & Jenifer A. Fisher & Nicole Michels & Lon J. Van Winkle, 2020. "Fostering Empathy, Implicit Bias Mitigation, and Compassionate Behavior in a Medical Humanities Course," IJERPH, MDPI, vol. 17(7), pages 1-15, March.
    8. Jessica Naidu & Elizabeth Oddone Paolucci & Tanvir C. Turin, 2023. "A Critical Lens on Health: Key Principles of Critical Discourse Analysis and Its Benefits to Anti-Racism in Population Public Health Research," Societies, MDPI, vol. 13(2), pages 1-10, February.
    9. Carla Brailey & Brittany C. Slatton, 2024. "Centering Black Women’s Voices: Illuminating Systemic Racism in Maternal Healthcare Experiences," Societies, MDPI, vol. 14(5), pages 1-12, May.
    10. James, Aimee & Daley, Christine M. & Greiner, K.A., 2011. "“Cutting” on cancer: Attitudes about cancer spread and surgery among primary care patients in the USA," Social Science & Medicine, Elsevier, vol. 73(11), pages 1669-1673.
    11. Elisabeth Paul & Céline Deville & Oriane Bodson & N'koué Emmanuel Sambiéni & Ibrahima Thiam & Marc Bourgeois & Valéry Ridde & Fabienne Fecher, 2019. "How is equity approached in universal health coverage? An analysis of global and country policy documents in Benin and Senegal," ULB Institutional Repository 2013/298047, ULB -- Universite Libre de Bruxelles.
    12. Meenakshi Richardson & Sara F. Waters, 2023. "Indigenous Voices Against Suicide: A Meta-Synthesis Advancing Prevention Strategies," IJERPH, MDPI, vol. 20(22), pages 1-19, November.
    13. Mark R. Umbricht & Frank Fernandez & Guillermo Ortega, 2023. "The Blind Side of College Athletics: Examining California’s Student Athlete Bill of Rights and Athletic Expenditures," Research in Higher Education, Springer;Association for Institutional Research, vol. 64(1), pages 33-57, February.
    14. Ursula Meidert & Godela Dönnges & Thomas Bucher & Frank Wieber & Andreas Gerber-Grote, 2023. "Unconscious Bias among Health Professionals: A Scoping Review," IJERPH, MDPI, vol. 20(16), pages 1-28, August.
    15. Shannon M Lynch & Elizabeth Handorf & Kristen A Sorice & Elizabeth Blackman & Lisa Bealin & Veda N Giri & Elias Obeid & Camille Ragin & Mary Daly, 2020. "The effect of neighborhood social environment on prostate cancer development in black and white men at high risk for prostate cancer," PLOS ONE, Public Library of Science, vol. 15(8), pages 1-18, August.
    16. Rosana L. Bravo & Ángela Gutiérrez & Lené F. Levy‐Storms, 2022. "Patient‐Provider Relationships in an All‐Inclusive Specialized Geriatric Program: A Longitudinal Qualitative Study among Older Foreign‐Born Latinos with Multimorbidities," Journal of Elder Policy, John Wiley & Sons, vol. 2(2), pages 191-214, September.
    17. Bastos, João L. & Harnois, Catherine E. & Paradies, Yin C., 2018. "Health care barriers, racism, and intersectionality in Australia," Social Science & Medicine, Elsevier, vol. 199(C), pages 209-218.
    18. Jill Furzer & Boriana Miloucheva, 2020. "The Long Arm of the Clean Air Act: Pollution Abatement and COVID-19 Racial Disparities," Working Papers tecipa-668, University of Toronto, Department of Economics.
    19. Gagnon-Dufresne, Marie-Catherine & Gautier, Lara & Beaujoin, Camille & Boivin, Pauline & Coulibaly, Abdourahmane & Richard, Zoé & Gomes de Medeiros, Stéphanie & Dutra Da Nóbrega, Raylson Emanuel & de , 2023. "Did the design and planning of testing and contact tracing interventions for COVID-19 consider social inequalities in health? A multiple case study from Brazil, Canada, France & Mali," Social Science & Medicine, Elsevier, vol. 335(C).
    20. Kelly, Michael & Morgan, Antony & Ellis, Simon & Younger, Tricia & Huntley, Jane & Swann, Catherine, 2010. "Evidence based public health: A review of the experience of the National Institute of Health and Clinical Excellence (NICE) of developing public health guidance in England," Social Science & Medicine, Elsevier, vol. 71(6), pages 1056-1062, September.

    Corrections

    All material on this site has been provided by the respective publishers and authors. You can help correct errors and omissions. When requesting a correction, please mention this item's handle: RePEc:gam:jijerp:v:17:y:2020:i:7:p:2218-:d:337316. See general information about how to correct material in RePEc.

    If you have authored this item and are not yet registered with RePEc, we encourage you to do it here. This allows to link your profile to this item. It also allows you to accept potential citations to this item that we are uncertain about.

    If CitEc recognized a bibliographic reference but did not link an item in RePEc to it, you can help with this form .

    If you know of missing items citing this one, you can help us creating those links by adding the relevant references in the same way as above, for each refering item. If you are a registered author of this item, you may also want to check the "citations" tab in your RePEc Author Service profile, as there may be some citations waiting for confirmation.

    For technical questions regarding this item, or to correct its authors, title, abstract, bibliographic or download information, contact: MDPI Indexing Manager (email available below). General contact details of provider: https://www.mdpi.com .

    Please note that corrections may take a couple of weeks to filter through the various RePEc services.

    IDEAS is a RePEc service. RePEc uses bibliographic data supplied by the respective publishers.