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The Relationship between Health Disparities, Psychosocial Functioning and Health Outcomes in Pediatric Hematology-Oncology and Stem Cell Transplant Populations: Recommendations for Clinical Care

Author

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  • Evrosina I. Isaac

    (Virginia Commonwealth University School of Medicine, 1201 E. Marshall St #4-100, Richmond, VA 23298, USA
    Children’s Hospital of Richmond at Virginia Commonwealth University, Richmond, VA 23219, USA)

  • Andrea R. Meisman

    (Division of Adolescent and Transition Medicine, Cincinnati Children’s Hospital Medical Center, Cincinnati, OH 45229, USA)

  • Kirstin Drucker

    (Virginia Commonwealth University School of Medicine, 1201 E. Marshall St #4-100, Richmond, VA 23298, USA
    Children’s Hospital of Richmond at Virginia Commonwealth University, Richmond, VA 23219, USA)

  • Stephanie Violante

    (Children’s Hospital of Richmond at Virginia Commonwealth University, Richmond, VA 23219, USA
    Department of Psychology, Virginia Commonwealth University, Richmond, VA 23284, USA)

  • Kathryn L. Behrhorst

    (Children’s Hospital of Richmond at Virginia Commonwealth University, Richmond, VA 23219, USA
    Department of Psychology, Virginia Commonwealth University, Richmond, VA 23284, USA)

  • Alfonso Floyd

    (Children’s Hospital of Richmond at Virginia Commonwealth University, Richmond, VA 23219, USA
    Department of Psychology, Virginia Commonwealth University, Richmond, VA 23284, USA)

  • Jennifer M. Rohan

    (Virginia Commonwealth University School of Medicine, 1201 E. Marshall St #4-100, Richmond, VA 23298, USA
    Department of Psychology, Virginia Commonwealth University, Richmond, VA 23284, USA
    Massey Cancer Center Virginia Commonwealth University, Richmond, VA 23298, USA)

Abstract

Not only do racial and ethnic minority children and adolescents with chronic illness experience disparities in health status and health outcomes, they also experience significant healthcare disparities, including differences in healthcare coverage, access to care, and quality of care. It is well known that the interaction between psychosocial functioning, health behaviors and ethnic and racial disparities, ultimately leads to worse health and psychosocial outcomes in pediatric and AYA chronic illness patient populations, including increased rates of morbidity and mortality. Investigating the impact of racial and ethnic factors on health outcomes, and strategies for reducing these disparities, is of the utmost importance, specifically in life-threatening conditions like cancer and sickle cell disease. This commentary underscores the relative importance of identifying factors that could reduce disparities between minority and non-minority populations. This present paper will focus on the dynamic relationships between health disparities, psychosocial factors and health outcomes within pediatric cancer, sickle cell disease and bone marrow transplant populations, and will offer recommendations for healthcare professionals working with these vulnerable patient populations. The primary goal of this commentary is to provide recommendations for enhancing cultural competency and humility for those working with highly vulnerable patient populations.

Suggested Citation

  • Evrosina I. Isaac & Andrea R. Meisman & Kirstin Drucker & Stephanie Violante & Kathryn L. Behrhorst & Alfonso Floyd & Jennifer M. Rohan, 2020. "The Relationship between Health Disparities, Psychosocial Functioning and Health Outcomes in Pediatric Hematology-Oncology and Stem Cell Transplant Populations: Recommendations for Clinical Care," IJERPH, MDPI, vol. 17(7), pages 1-14, March.
  • Handle: RePEc:gam:jijerp:v:17:y:2020:i:7:p:2218-:d:337316
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    References listed on IDEAS

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    1. Hall, W.J. & Chapman, M.V. & Lee, K.M. & Merino, Y.M. & Thomas, T.W. & Payne, B.K. & Eng, E. & Day, S.H. & Coyne-Beasley, T., 2015. "Implicit racial/ethnic bias among health care professionals and its influence on health care outcomes: A systematic review," American Journal of Public Health, American Public Health Association, vol. 105(12), pages 60-76.
    2. Braveman, P.A. & Kumanyika, S. & Fielding, J. & LaVeist, T. & Borrell, L.N. & Manderscheid, R. & Troutman, A., 2011. "Health disparities and health equity: The issue is justice," American Journal of Public Health, American Public Health Association, vol. 101(SUPPL. 1), pages 149-155.
    3. Warnecke, R.B. & Oh, A. & Breen, N. & Gehlert, S. & Paskett, E. & Tucker, K.L. & Lurie, N. & Rebbeck, T. & Goodwin, J. & Flack, J. & Srinivasan, S. & Kerner, J. & Heurtin-Roberts, S. & Abeles, R. & Ty, 2008. "Approaching health disparities from a population perspective: The National Institutes of Health Centers for Population Health and Health Disparities," American Journal of Public Health, American Public Health Association, vol. 98(9), pages 1608-1615.
    4. Kilbourne, A.M. & Switzer, G. & Hyman, K. & Crowley-Matoka, M. & Fine, M.J., 2006. "Advancing health disparities research within the health care system: A conceptual framework," American Journal of Public Health, American Public Health Association, vol. 96(12), pages 2113-2121.
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