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Quality of Life, Physical and Mental Health of Family Caregivers of Dependent People with Complex Chronic Disease: Protocol of a Cohort Study

Author

Listed:
  • Raquel Marfil-Gómez

    (Department of Nursing, Faculty of Health Sciences, University of Málaga, 29017 Málaga, Spain)

  • Marta Morales-Puerto

    (Agencia Sanitaria Costa del Sol. Marbella, 29651 Málaga, Spain)

  • Álvaro León-Campos

    (Department of Nursing, Faculty of Health Sciences, University of Málaga, 29017 Málaga, Spain
    Instituto de Investigación Biomédica de Málaga (IBIMA), 29010 Málaga, Spain)

  • José Miguel Morales-Asencio

    (Department of Nursing, Faculty of Health Sciences, University of Málaga, 29017 Málaga, Spain
    Instituto de Investigación Biomédica de Málaga (IBIMA), 29010 Málaga, Spain)

  • Juan Carlos Morilla-Herrera

    (Department of Nursing, Faculty of Health Sciences, University of Málaga, 29017 Málaga, Spain
    Instituto de Investigación Biomédica de Málaga (IBIMA), 29010 Málaga, Spain
    Servicio Andaluz de Salud (SAS), Distrito Sanitario Málaga—Valle del Guadalhorce, 29009 Málaga, Spain)

  • Eva Timonet-Andreu

    (Agencia Sanitaria Costa del Sol. Marbella, 29651 Málaga, Spain)

  • Magdalena Cuevas-Fernández Gallego

    (Department of Nursing, Faculty of Health Sciences, University of Málaga, 29017 Málaga, Spain
    Instituto de Investigación Biomédica de Málaga (IBIMA), 29010 Málaga, Spain
    Servicio Andaluz de Salud (SAS), Distrito Sanitario Málaga—Valle del Guadalhorce, 29009 Málaga, Spain)

  • Celia Martí-García

    (Department of Nursing, Faculty of Health Sciences, University of Málaga, 29017 Málaga, Spain
    Instituto de Investigación Biomédica de Málaga (IBIMA), 29010 Málaga, Spain)

  • Inmaculada López-Leiva

    (Department of Nursing, Faculty of Health Sciences, University of Málaga, 29017 Málaga, Spain
    Instituto de Investigación Biomédica de Málaga (IBIMA), 29010 Málaga, Spain)

  • Silvia García-Mayor

    (Department of Nursing, Faculty of Health Sciences, University of Málaga, 29017 Málaga, Spain
    Instituto de Investigación Biomédica de Málaga (IBIMA), 29010 Málaga, Spain)

Abstract

Background: informal caregivers have a high risk of suffering from diseases derived from the chronic stress to which they are subjected for their dedication to the care of their relatives. Such stress has a direct influence on the person cared for, mainly affecting the quality of their care. Therefore, the aim of the present study is to assess the association of caregiving on physical and mental perceived health in family caregivers of dependent adults with complex chronic diseases. Methods: a prospective longitudinal cohort study, with a follow-up period of 36 months (HUELLA cohort). The exposed cohort will be formed by family caregivers of dependent patients with complex chronic pathologies. The unexposed cohort will be taken from the general population adjusted for age, sex and health. Outcome variables will include attendance to health services, consumption of psychoactive drugs, dedication to care (only in exposed cohort), concession of the Act on Promotion of Personal Autonomy and Care for dependent persons (exposed only), perceived physical and mental health, depression level, burden level and new diagnosis of chronic pathology of the caregiver during the study. Results: the expected results will be applicable and will incorporate improvements to the usual health system clinical practice, providing feedback to professionals dedicated to the provision, planning and design of services to family caregivers, as well as to groups and organizations of caregivers. Conclusions: investments in preventing low-quality informal care are key, mainly through early identification and interventions to support caregivers who suffer from stress, anxiety or depression.

Suggested Citation

  • Raquel Marfil-Gómez & Marta Morales-Puerto & Álvaro León-Campos & José Miguel Morales-Asencio & Juan Carlos Morilla-Herrera & Eva Timonet-Andreu & Magdalena Cuevas-Fernández Gallego & Celia Martí-Garc, 2020. "Quality of Life, Physical and Mental Health of Family Caregivers of Dependent People with Complex Chronic Disease: Protocol of a Cohort Study," IJERPH, MDPI, vol. 17(20), pages 1-8, October.
    • Handle: RePEc:gam:jijerp:v:17:y:2020:i:20:p:7489-:d:428225
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    References listed on IDEAS

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    1. Joan Costa‐Font & Martin Karlsson & Henning Øien, 2016. "Careful in the Crisis? Determinants of Older People's Informal Care Receipt in Crisis‐Struck European Countries," Health Economics, John Wiley & Sons, Ltd., vol. 25(S2), pages 25-42, November.
    2. repec:wly:hlthec:v:25:y:2016:i::p:25-42 is not listed on IDEAS
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    2. Nurul Athirah Naserrudin & Mohammad Saffree Jeffree & Nirmal Kaur & Syed Sharizman Syed Abdul Rahim & Mohd Yusof Ibrahim, 2022. "Study on the Development of a Conceptual Framework to Identify the Risk Factors of Diabetic Retinopathy among Diabetic Patients: A Concept Paper," IJERPH, MDPI, vol. 19(19), pages 1-10, September.

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