IDEAS home Printed from https://ideas.repec.org/a/gam/jijerp/v15y2018i2p341-d131974.html
   My bibliography  Save this article

Mental Health Interventions for Parent Carers of Children with Autistic Spectrum Disorder: Practice Guidelines from a Critical Interpretive Synthesis (CIS) Systematic Review

Author

Listed:
  • Denise Catalano

    (Department of Rehabilitation and Health Services, University of North Texas, Denton, TX 76203, USA)

  • Linda Holloway

    (Department of Rehabilitation and Health Services, University of North Texas, Denton, TX 76203, USA)

  • Elias Mpofu

    (Department of Rehabilitation and Health Services, University of North Texas, Denton, TX 76203, USA
    Department of Educational Psychology, University of Johannesburg, Johannesburg, Auckland Park 2006, South Africa
    Department of Rehabilitation Counselling, University of Sydney, Lidcombe, NSW 2141, Australia)

Abstract

Parent carers of children with Autism Spectrum Disorder (ASD) often report increased levels of stress, depression, and anxiety. Unmet parent carer mental health needs pose a significant risk to the psychological, physical, and social well-being of the parents of the child affected by ASD and jeopardize the adaptive functioning of the family as well as the potential of the child affected by ASD. This systematic review identifies key qualities of interventions supporting the mental health of parent carers and proposes practitioner-parent carer support guidelines. A search of four databases (Medline, PubMed, PsycINFO, and Social Science Data) was conducted to identify studies that met the following criteria: (1) an intervention was delivered to parent carers of a child with ASD under the age of 18 years; (2) the research design allowed for a comparison on outcomes across groups; and (3) outcome measures of the parent carers’ mental health were used. A total of 23 studies met the inclusion criteria. A critical interpretive synthesis approach was used to produce an integrated conceptualization of the evidence. Findings suggest practitioner guidelines to support the mental health and wellbeing of parent carers should include addressing the parent’s self-perspective taking and skill for real time problem-solving.

Suggested Citation

  • Denise Catalano & Linda Holloway & Elias Mpofu, 2018. "Mental Health Interventions for Parent Carers of Children with Autistic Spectrum Disorder: Practice Guidelines from a Critical Interpretive Synthesis (CIS) Systematic Review," IJERPH, MDPI, vol. 15(2), pages 1-23, February.
    • Handle: RePEc:gam:jijerp:v:15:y:2018:i:2:p:341-:d:131974
    as

    Download full text from publisher

    File URL: https://www.mdpi.com/1660-4601/15/2/341/pdf
    Download Restriction: no
    File URL: https://www.mdpi.com/1660-4601/15/2/341/
    Download Restriction: no
    ---><---

    References listed on IDEAS

    as
    1. Sherbourne, Cathy Donald & Stewart, Anita L., 1991. "The MOS social support survey," Social Science & Medicine, Elsevier, vol. 32(6), pages 705-714, January.
    2. Gray, David E., 2003. "Gender and coping: the parents of children with high functioning autism," Social Science & Medicine, Elsevier, vol. 56(3), pages 631-642, February.
    3. Cochrane, J.J. & Goering, P.N. & Rogers, J.M., 1997. "The mental health of informal caregivers in Ontario: An epidemiological survey," American Journal of Public Health, American Public Health Association, vol. 87(12), pages 2002-2007.
    4. Kazuteru Niinomi & Midori Asano & Akiko Kadoma & Kumiko Yoshida & Yukimi Ohashi & Ayako Furuzawa & Mami Yamamoto & Naoko Yamakita & Akiko Mori, 2016. "Developing the “Skippu‐Mama” program for mothers of children with autism spectrum disorder," Nursing & Health Sciences, John Wiley & Sons, vol. 18(3), pages 283-291, September.
    Full references (including those not matched with items on IDEAS)

    Citations

    Citations are extracted by the CitEc Project, subscribe to its RSS feed for this item.
    as


    Cited by:

    1. Brooks C. Wingo & James H. Rimmer, 2018. "Emerging Trends in Health Promotion for People with Disabilities," IJERPH, MDPI, vol. 15(4), pages 1-2, April.
    2. Nikoletta Mavroeidi & Christos Sifnaios & Ariadne Ntinou & Giorgos Iatrou & Olympia Konstantakopoulou & María Merino Martínez & Martina Nucifora & Ibrahim Tanrikulu & Antonios Vadolas, 2024. "Exploring the Potential Impact of Training on Short-Term Quality of Life and Stress of Parents of Children with Autism: The Integrative Parents’ Autism Training Module," IJERPH, MDPI, vol. 21(4), pages 1-21, April.
    3. Mengxian Zhao & Yonghao You & Shihui Chen & Linlin Li & Xiru Du & Yongtai Wang, 2021. "Effects of a Web-Based Parent–Child Physical Activity Program on Mental Health in Parents of Children with ASD," IJERPH, MDPI, vol. 18(24), pages 1-17, December.

    Most related items

    These are the items that most often cite the same works as this one and are cited by the same works as this one.
    1. Valéria Teresa Saraiva Lino & Nádia Cristina Pinheiro Rodrigues & Mônica Kramer de Noronha Andrade & Inês Nascimento de Carvalho Reis & Lucília Almeida Elias Lopes & Soraya Atie, 2019. "Association between visual problems, insufficient emotional support and urinary incontinence with disability in elderly people living in a poor district in Rio de Janeiro, Brazil: A six-year follow-up," PLOS ONE, Public Library of Science, vol. 14(5), pages 1-12, May.
    2. White, Lynn & McQuillan, Julia & Greil, Arthur L. & Johnson, David R., 2006. "Infertility: Testing a helpseeking model," Social Science & Medicine, Elsevier, vol. 62(4), pages 1031-1041, February.
    3. Liping Ye & Xinping Zhang, 2021. "The association mechanism between social network types and health‐related behaviours among the elderly in rural Hubei Province, China," International Journal of Health Planning and Management, Wiley Blackwell, vol. 36(3), pages 826-846, May.
    4. Patrick Nürnberger & Dirk von Lewinski & Hans-Bernd Rothenhäusler & Celine Braun & Patrick Reinbacher & Ewald Kolesnik & Andreas Baranyi, 2022. "A biopsychosocial model of severe fear of COVID-19," PLOS ONE, Public Library of Science, vol. 17(2), pages 1-16, February.
    5. Francis, Jacinta & Wood, Lisa J. & Knuiman, Matthew & Giles-Corti, Billie, 2012. "Quality or quantity? Exploring the relationship between Public Open Space attributes and mental health in Perth, Western Australia," Social Science & Medicine, Elsevier, vol. 74(10), pages 1570-1577.
    6. Srinivasan Chokkanathan & Aravindhan Natarajan, 2018. "Perceived Quality of Life following Elder Mistreatment in Rural India," The Journals of Gerontology: Series B, The Gerontological Society of America, vol. 73(5), pages 69-80.
    7. Kenneth G. Rice & Fernán Arana & Hannah Wetstone & Michelle Aiello & Barbara Durán, 2023. "Predicting and Moderating COVID-Fear and Stress among College Students in Argentina and the USA," IJERPH, MDPI, vol. 20(15), pages 1-20, August.
    8. Zinn, Andrew & Palmer, Ashley N. & Nam, Eunji, 2017. "Developmental heterogeneity of perceived social support among former foster youth," Children and Youth Services Review, Elsevier, vol. 76(C), pages 51-58.
    9. César Merino-Soto & Alicia Boluarte Carbajal & Filiberto Toledano-Toledano & Laura A. Nabors & Miguel Ángel Núñez-Benítez, 2022. "A New Story on the Multidimensionality of the MSPSS: Validity of the Internal Structure through Bifactor ESEM," IJERPH, MDPI, vol. 19(2), pages 1-17, January.
    10. Mariana Sanchez & Eduardo Romano & Christyl Dawson & Hui Huang & Alicia Sneij & Elena Cyrus & Patria Rojas & Miguel Ángel Cano & Judith Brook & Mario De La Rosa, 2016. "Drinking and Driving among Recent Latino Immigrants: The Impact of Neighborhoods and Social Support," IJERPH, MDPI, vol. 13(11), pages 1-15, October.
    11. Ellen G. Levine & Grace J. Yoo & Caryn Aviv, 2017. "Predictors of Quality of Life among Ethnically Diverse Breast Cancer Survivors," Applied Research in Quality of Life, Springer;International Society for Quality-of-Life Studies, vol. 12(1), pages 1-16, March.
    12. Petro Mlyakado, Budeba & Li, Jessica Chi-Mei & Xinshan Jia, Cindy, 2023. "Online sexual exploitation of adolescents in Tanzania: Explaining help-seeking intention using the theory of planned behaviour," Children and Youth Services Review, Elsevier, vol. 154(C).
    13. José Antonio Llosa & Esteban Agulló-Tomás & Sara Menéndez-Espina & María Luz Rivero-Díaz & Enrique Iglesias-Martínez, 2022. "Self-Criticism in In-Work Poverty: The Mediating Role of Social Support in the Era of Flexibility," IJERPH, MDPI, vol. 19(1), pages 1-16, January.
    14. Kathleen Finlayson & Helen Edwards & Mary Courtney, 2010. "The impact of psychosocial factors on adherence to compression therapy to prevent recurrence of venous leg ulcers," Journal of Clinical Nursing, John Wiley & Sons, vol. 19(9‐10), pages 1289-1297, May.
    15. Mieko Yoshihama & Jun Sung Hong & Yueqi Yan, 2022. "Everyday Discrimination and Depressive Symptoms among Gujarati Adults: Gender Difference in the Role of Social Support," IJERPH, MDPI, vol. 19(14), pages 1-13, July.
    16. Cristina Dumitrache & Gill Windle & Ramona Rubio Herrera, 2015. "Do Social Resources Explain the Relationship Between Optimism and Life Satisfaction in Community-Dwelling Older People? Testing a Multiple Mediation Model," Journal of Happiness Studies, Springer, vol. 16(3), pages 633-654, June.
    17. Lisa Hightow-Weidman & Sara LeGrand & Seul Ki Choi & Joseph Egger & Christopher B Hurt & Kathryn E Muessig, 2017. "Exploring the HIV continuum of care among young black MSM," PLOS ONE, Public Library of Science, vol. 12(6), pages 1-20, June.
    18. Ruth Palan Lopez & A.J. Guarino, 2011. "Uncertainty and Decision Making for Residents with Dementia," Clinical Nursing Research, , vol. 20(3), pages 228-240, August.
    19. Tonorezos, Emily S. & Breysse, Patrick N. & Matsui, Elizabeth C. & McCormack, Meredith C. & Curtin-Brosnan, Jean & Williams, D'Ann & Hansel, Nadia N. & Eggleston, Peyton A. & Diette, Gregory B., 2008. "Does neighborhood violence lead to depression among caregivers of children with asthma?," Social Science & Medicine, Elsevier, vol. 67(1), pages 31-37, July.
    20. Rita H. Ryu & Britta Larsen & Andrea LaCroix & Steve Nguyen & Alex Ivan B. Posis & Benjamin T. Schumacher & Suzanne C. Danhauer & Hilary A. Tindle & John Bellettiere, 2023. "Associations of Physical Activity and Sedentary Behavior with Optimism and Positive Affect in Older Women," Journal of Happiness Studies, Springer, vol. 24(2), pages 717-743, February.

    Corrections

    All material on this site has been provided by the respective publishers and authors. You can help correct errors and omissions. When requesting a correction, please mention this item's handle: RePEc:gam:jijerp:v:15:y:2018:i:2:p:341-:d:131974. See general information about how to correct material in RePEc.

    If you have authored this item and are not yet registered with RePEc, we encourage you to do it here. This allows to link your profile to this item. It also allows you to accept potential citations to this item that we are uncertain about.

    If CitEc recognized a bibliographic reference but did not link an item in RePEc to it, you can help with this form .

    If you know of missing items citing this one, you can help us creating those links by adding the relevant references in the same way as above, for each refering item. If you are a registered author of this item, you may also want to check the "citations" tab in your RePEc Author Service profile, as there may be some citations waiting for confirmation.

    For technical questions regarding this item, or to correct its authors, title, abstract, bibliographic or download information, contact: MDPI Indexing Manager (email available below). General contact details of provider: https://www.mdpi.com .

    Please note that corrections may take a couple of weeks to filter through the various RePEc services.

    IDEAS is a RePEc service. RePEc uses bibliographic data supplied by the respective publishers.