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Exploring the Potential Impact of Training on Short-Term Quality of Life and Stress of Parents of Children with Autism: The Integrative Parents’ Autism Training Module

Author

Listed:
  • Nikoletta Mavroeidi

    (Department of Scientific Documentation and Education, Child and Adolescent Center, 12123 Peristeri, Greece)

  • Christos Sifnaios

    (Department of Scientific Documentation and Education, Child and Adolescent Center, 12123 Peristeri, Greece)

  • Ariadne Ntinou

    (EPIONI Greek Carers Network, 15125 Marousi, Greece)

  • Giorgos Iatrou

    (Department of Scientific Documentation and Education, Child and Adolescent Center, 12123 Peristeri, Greece
    Department of Psychology, University of West Macedonia, 53100 Florina, Greece)

  • Olympia Konstantakopoulou

    (Center for Health Services Management and Evaluation, Department of Nursing, National and Kapodistrian University of Athens, 11527 Athens, Greece)

  • María Merino Martínez

    (Asociación Autismo Burgos, 09001 Burgos, Spain)

  • Martina Nucifora

    (Controvento Onlus, 95123 Catania, Italy)

  • Ibrahim Tanrikulu

    (Department of Psychological Counseling & Guidance, Faculty of Education Gaziantep University, Şehitkamil-Gaziantep 27310, Turkey)

  • Antonios Vadolas

    (Department of Scientific Documentation and Education, Child and Adolescent Center, 12123 Peristeri, Greece)

Abstract

Parents of autistic children experience high levels of parental stress and low quality of life related to the demanding child caring burden they experience. Parent education and training programs are acknowledged to improve parental well-being and reduce parenting stress. In the framework of the Erasmus+ Integrative Autism Parents Training Project (IPAT), we developed the IPAT Training Module based on parents’ expressed needs, in order to improve parental quality of life (QoL) and decrease their perceived stress. Sixty-two parents from four countries participated in the IPAT Module Training activity. We used WHOQOL-BREF and Perceived Stress Scale (PSS-10 version) for QoL and stress, respectively, before and after training and a study-specific questionnaire to assess participants’ satisfaction. Parents’ QoL improved significantly in the environment domain and specific items, while stress levels remained unmodified. Training appeared more advantageous for parents with lower initial QoL and those whose child had been enrolled in a special education program for an extended duration. Parents were quite satisfied, in particular those with lower initial social relationships QoL. Larger studies including a control group are necessary to support preliminary evidence provided by this study, identify additional effect moderators, and disentangle the contribution of different components of the training.

Suggested Citation

  • Nikoletta Mavroeidi & Christos Sifnaios & Ariadne Ntinou & Giorgos Iatrou & Olympia Konstantakopoulou & María Merino Martínez & Martina Nucifora & Ibrahim Tanrikulu & Antonios Vadolas, 2024. "Exploring the Potential Impact of Training on Short-Term Quality of Life and Stress of Parents of Children with Autism: The Integrative Parents’ Autism Training Module," IJERPH, MDPI, vol. 21(4), pages 1-21, April.
    • Handle: RePEc:gam:jijerp:v:21:y:2024:i:4:p:474-:d:1375088
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    References listed on IDEAS

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    1. Denise Catalano & Linda Holloway & Elias Mpofu, 2018. "Mental Health Interventions for Parent Carers of Children with Autistic Spectrum Disorder: Practice Guidelines from a Critical Interpretive Synthesis (CIS) Systematic Review," IJERPH, MDPI, vol. 15(2), pages 1-23, February.
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