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The limits of responsible innovation: Exploring care, vulnerability and precision medicine

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  • Kerr, Anne
  • Hill, Rosemary L.
  • Till, Christopher

Abstract

Drawing on insights from feminist and Science and Technology Studies writing on care and vulnerability, this paper will critically explore conceptualisations of responsibility, care and vulnerability in relation to contemporary approaches to Responsible Innovation (RI). Drawing on examples of some of the social and ethical challenges of precision medicine, we highlight the on-going, distributed and complex nature of innovation and responsibilities in relation to markets, patient and carer experience and data practices associated with these new technologies to highlight some of the limits of RI. We end by reflecting on the implications of our analysis for the social and ethical challenges of precision medicine and RI more generally.

Suggested Citation

  • Kerr, Anne & Hill, Rosemary L. & Till, Christopher, 2018. "The limits of responsible innovation: Exploring care, vulnerability and precision medicine," Technology in Society, Elsevier, vol. 52(C), pages 24-31.
  • Handle: RePEc:eee:teinso:v:52:y:2018:i:c:p:24-31
    DOI: 10.1016/j.techsoc.2017.03.004
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    1. Helen Dakin & Nancy Devlin & Yan Feng & Nigel Rice & Phill O'Neill & David Parkin, 2015. "The Influence of Cost‐Effectiveness and Other Factors on Nice Decisions," Health Economics, John Wiley & Sons, Ltd., vol. 24(10), pages 1256-1271, October.
    2. Richard Owen & Phil Macnaghten & Jack Stilgoe, 2012. "Responsible research and innovation: From science in society to science for society, with society," Science and Public Policy, Oxford University Press, vol. 39(6), pages 751-760, December.
    3. Rena Conti & David L. Veenstra & Katrina Armstrong & Lawrence J. Lesko & Scott D. Grosse, 2010. "Personalized Medicine and Genomics: Challenges and Opportunities in Assessing Effectiveness, Cost-Effectiveness, and Future Research Priorities," Medical Decision Making, , vol. 30(3), pages 328-340, May.
    4. Stilgoe, Jack & Owen, Richard & Macnaghten, Phil, 2013. "Developing a framework for responsible innovation," Research Policy, Elsevier, vol. 42(9), pages 1568-1580.
    5. Hallowell, N. & Foster, C. & Eeles, R. & Ardern-Jones, A. & Watson, M., 2004. "Accommodating risk: Responses to BRCA1/2 genetic testing of women who have had cancer," Social Science & Medicine, Elsevier, vol. 59(3), pages 553-565, August.
    6. Jennifer Moye & Daniel C. Marson, 2007. "Assessment of Decision-Making Capacity in Older Adults: An Emerging Area of Practice and Research," The Journals of Gerontology: Series B, The Gerontological Society of America, vol. 62(1), pages 3-11.
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    Cited by:

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