IDEAS home Printed from https://ideas.repec.org/a/eee/socmed/v75y2012i12p2345-2352.html
   My bibliography  Save this article

Altruism and participation in longitudinal health research? Insights from the Whitehall II Study

Author

Listed:
  • Mein, Gill
  • Seale, Clive
  • Rice, Helen
  • Johal, Suneeta
  • Ashcroft, Richard E.
  • Ellison, George
  • Tinker, Anthea

Abstract

Research that follows people over a period of time (longitudinal or panel studies) is important in understanding the ageing process and changes over time in the lives of older people. Older people may choose to leave studies due to frailty, or illness and this may diminish the value of the study. However, people also drop out of studies for other reasons and understanding the motivation behind participation or drop out may prevent further loss of valuable longitudinal information and assist the continuation of longitudinal studies.

Suggested Citation

  • Mein, Gill & Seale, Clive & Rice, Helen & Johal, Suneeta & Ashcroft, Richard E. & Ellison, George & Tinker, Anthea, 2012. "Altruism and participation in longitudinal health research? Insights from the Whitehall II Study," Social Science & Medicine, Elsevier, vol. 75(12), pages 2345-2352.
    • Handle: RePEc:eee:socmed:v:75:y:2012:i:12:p:2345-2352
    DOI: 10.1016/j.socscimed.2012.09.006
    as

    Download full text from publisher

    File URL: http://www.sciencedirect.com/science/article/pii/S0277953612006697
    Download Restriction: Full text for ScienceDirect subscribers only
    File URL: https://libkey.io/10.1016/j.socscimed.2012.09.006?utm_source=ideas
    LibKey link: if access is restricted and if your library uses this service, LibKey will redirect you to where you can use your library subscription to access this item
    ---><---

    As the access to this document is restricted, you may want to search for a different version of it.

    References listed on IDEAS

    as
    1. Ribisl, Kurt M. & Walton, Maureen A. & Mowbray, Carol T. & Luke, Douglas A. & Davidson, William S. & Bootsmiller, Bonnie J., 1996. "Minimizing participant attrition in panel studies through the use of effective retention and tracking strategies: Review and recommendations," Evaluation and Program Planning, Elsevier, vol. 19(1), pages 1-25, February.
    2. Mein, G. & Higgs, P. & Ferrie, J. & Stansfeld, S. A., 1998. "Paradigms of retirement: the importance of health and ageing in the whitehall ii study," Social Science & Medicine, Elsevier, vol. 47(4), pages 535-545, August.
    3. Morris, Norma & Bàlmer, Brian, 2006. "Volunteer human subjects' understandings of their participation in a biomedical research experiment," Social Science & Medicine, Elsevier, vol. 62(4), pages 998-1008, February.
    Full references (including those not matched with items on IDEAS)

    Citations

    Citations are extracted by the CitEc Project, subscribe to its RSS feed for this item.
    as


    Cited by:

    1. Drevs, Florian & Gebele, Christoph & Tscheulin, Dieter K., 2014. "The patient perspective of clinical training—An empirical study about patient motives to participate," Health Policy, Elsevier, vol. 118(1), pages 74-83.

    Most related items

    These are the items that most often cite the same works as this one and are cited by the same works as this one.
    1. Tarani Chandola & Patrick Rouxel & Michael G Marmot & Meena Kumari, 2018. "Retirement and Socioeconomic Differences in Diurnal Cortisol: Longitudinal Evidence From a Cohort of British Civil Servants," The Journals of Gerontology: Series B, The Gerontological Society of America, vol. 73(3), pages 447-456.
    2. Zang, Emma, 2020. "Spillover effects of a husband's retirement on a woman's health: Evidence from urban China," Social Science & Medicine, Elsevier, vol. 245(C).
    3. Mindlis, Irina & Livert, David & Federman, Alex D. & Wisnivesky, Juan P. & Revenson, Tracey A., 2020. "Racial/ethnic concordance between patients and researchers as a predictor of study attrition," Social Science & Medicine, Elsevier, vol. 255(C).
    4. Haggerty, Kevin P. & Fleming, Charles B. & Catalano, Richard F. & Petrie, Renee S. & Rubin, Ronald J. & Grassley, Mary H., 2008. "Ten years later: Locating and interviewing children of drug abusers," Evaluation and Program Planning, Elsevier, vol. 31(1), pages 1-9, February.
    5. Murphy, Elizabeth & Dingwall, Robert, 2007. "Informed consent, anticipatory regulation and ethnographic practice," Social Science & Medicine, Elsevier, vol. 65(11), pages 2223-2234, December.
    6. Dixon-Woods, Mary & Ashcroft, Richard E. & Jackson, Clare J. & Tobin, Martin D. & Kivits, Joelle & Burton, Paul R. & Samani, Nilesh J., 2007. "Beyond "misunderstanding": Written information and decisions about taking part in a genetic epidemiology study," Social Science & Medicine, Elsevier, vol. 65(11), pages 2212-2222, December.
    7. Elberse, Janneke Elisabeth & Pittens, Carina Anna Cornelia Maria & de Cock Buning, Tjard & Broerse, Jacqueline Elisabeth Willy, 2012. "Patient involvement in a scientific advisory process: Setting the research agenda for medical products," Health Policy, Elsevier, vol. 107(2), pages 231-242.
    8. Davis, Erin & Demby, Hilary & Jenner, Lynne Woodward & Gregory, Alethia & Broussard, Marsha, 2016. "Adapting an evidence-based model to retain adolescent study participants in longitudinal research," Evaluation and Program Planning, Elsevier, vol. 54(C), pages 102-111.
    9. Reza Che Daniels & Kim P. Ingle & Timothy S. L. Brophy, 2022. "Determinants of attrition between Waves 1 and 2 of South Africa's National Income Dynamics Study – Coronavirus Rapid Mobile Survey (NIDS‐CRAM)," South African Journal of Economics, Economic Society of South Africa, vol. 90(4), pages 535-552, December.
    10. Stone Celeste & Scott Leslie & Battle Danielle & Maher Patricia, 2014. "Locating Longitudinal Respondents After a 50-Year Hiatus," Journal of Official Statistics, Sciendo, vol. 30(2), pages 311-334, June.
    11. McGaha, Annette & Boothroyd, Roger A. & Poythress, Norman G. & Petrila, John & Ort, Rhonda G., 2002. "Lessons from the Broward County Mental Health Court Evaluation," Evaluation and Program Planning, Elsevier, vol. 25(2), pages 125-135, May.
    12. Wilke, Dina J. & Radey, Melissa & Langenderfer-Magruder, Lisa, 2017. "Recruitment and retention of child welfare workers in longitudinal research: Successful strategies from the Florida Study of Professionals for Safe Families," Children and Youth Services Review, Elsevier, vol. 78(C), pages 122-128.
    13. Silvia Russo & Michele Roccato & Alessio Vieno, 2013. "Criminal Victimization and Crime Risk Perception: A Multilevel Longitudinal Study," Social Indicators Research: An International and Interdisciplinary Journal for Quality-of-Life Measurement, Springer, vol. 112(3), pages 535-548, July.
    14. Fisher, Jill A. & Cottingham, Marci D. & Kalbaugh, Corey A., 2015. "Peering into the pharmaceutical “pipeline”: Investigational drugs, clinical trials, and industry priorities," Social Science & Medicine, Elsevier, vol. 131(C), pages 322-330.
    15. Cox, Susan M. & McDonald, Michael, 2013. "Ethics is for human subjects too: Participant perspectives on responsibility in health research," Social Science & Medicine, Elsevier, vol. 98(C), pages 224-231.
    16. Coen, Anita Saranga & Patrick, Diane C. & Shern, David L., 1996. "Minimizing attrition in longitudinal studies of special populations: An integrated management approach," Evaluation and Program Planning, Elsevier, vol. 19(4), pages 309-319, November.
    17. McGonagle Katherine A. & Schoeni Robert F. & Couper Mick P., 2013. "The Effects of a Between-Wave Incentive Experiment on Contact Update and Production Outcomes in a Panel Study," Journal of Official Statistics, Sciendo, vol. 29(2), pages 261-276, September.
    18. Schaap, Rosanne & de Wind, Astrid & Coenen, Pieter & Proper, Karin & Boot, Cécile, 2018. "The effects of exit from work on health across different socioeconomic groups: A systematic literature review," Social Science & Medicine, Elsevier, vol. 198(C), pages 36-45.
    19. Tobler, Amy L. & Komro, Kelli A., 2011. "Contemporary options for longitudinal follow-up: Lessons learned from a cohort of urban adolescents," Evaluation and Program Planning, Elsevier, vol. 34(2), pages 87-96, May.
    20. Blakeslee, Jennifer E. & Del Quest, A. & Powers, Jennifer & Powers, Laurie E. & Geenen, Sarah & Nelson, May & Dalton, Lawrence D. & McHugh, Elizabeth, 2013. "Reaching everyone: Promoting the inclusion of youth with disabilities in evaluating foster care outcomes," Children and Youth Services Review, Elsevier, vol. 35(11), pages 1801-1808.

    Corrections

    All material on this site has been provided by the respective publishers and authors. You can help correct errors and omissions. When requesting a correction, please mention this item's handle: RePEc:eee:socmed:v:75:y:2012:i:12:p:2345-2352. See general information about how to correct material in RePEc.

    If you have authored this item and are not yet registered with RePEc, we encourage you to do it here. This allows to link your profile to this item. It also allows you to accept potential citations to this item that we are uncertain about.

    If CitEc recognized a bibliographic reference but did not link an item in RePEc to it, you can help with this form .

    If you know of missing items citing this one, you can help us creating those links by adding the relevant references in the same way as above, for each refering item. If you are a registered author of this item, you may also want to check the "citations" tab in your RePEc Author Service profile, as there may be some citations waiting for confirmation.

    For technical questions regarding this item, or to correct its authors, title, abstract, bibliographic or download information, contact: Catherine Liu (email available below). General contact details of provider: http://www.elsevier.com/wps/find/journaldescription.cws_home/315/description#description .

    Please note that corrections may take a couple of weeks to filter through the various RePEc services.

    IDEAS is a RePEc service. RePEc uses bibliographic data supplied by the respective publishers.