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Involvement of Rabbinic and communal authorities in decision-making by haredi Jews in the UK with breast cancer: An interpretative phenomenological analysis

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  • Coleman-Brueckheimer, Kate
  • Spitzer, Joseph
  • Koffman, Jonathan

Abstract

This paper examines how Rabbinic and communal authorities participated in treatment decisions made by a group of strictly orthodox haredi Jews with breast cancer living in London. Semi-structured interviews were conducted with five haredi breast cancer patients. The transcripts were analysed using interpretative phenomenological analysis. Demographic and personal data were collected using structured questionnaires. All participants sought Rabbinic involvement, with four seeking rulings concerning religious rituals and treatment options. Participants' motivations were to ensure their actions accorded with Jewish law and hence God's will. By delegating treatment decisions, decision-making became easier and participants could avoid guilt and blame. They could actively participate in the process by choosing which Rabbi to approach, by providing personal information and by stating their preferences. Attitudes towards Rabbinic involvement were occasionally conflicted. This was related to the understanding that Rabbinic rulings were binding, and occasional doubts that their situation would be correctly interpreted. Three participants consulted the community's 'culture broker' for medical referrals and non-binding advice concerning treatment. Those who consulted the culture broker had to transcend social norms restricting unnecessary contact between men and women. Hence, some participants described talking to him as uncomfortable. Other concerns related to confidentiality. By consulting Rabbinic authorities, haredi cancer patients participated in a socially sanctioned method of decision-making continuous with their religious values. Imposing meaning on their illness in this way may be associated with positive psychological adjustment. Rabbinic and communal figures may endorse therapeutic recommendations and make religious and cultural issues comprehensible to clinicians, and as such healthcare practitioners may benefit from this involvement.

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  • Coleman-Brueckheimer, Kate & Spitzer, Joseph & Koffman, Jonathan, 2009. "Involvement of Rabbinic and communal authorities in decision-making by haredi Jews in the UK with breast cancer: An interpretative phenomenological analysis," Social Science & Medicine, Elsevier, vol. 68(2), pages 323-333, January.
    • Handle: RePEc:eee:socmed:v:68:y:2009:i:2:p:323-333
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    1. Ubel, P. A. & Loewenstein, G., 1997. "The role of decision analysis in informed consent: Choosing between intuition and systematicity," Social Science & Medicine, Elsevier, vol. 44(5), pages 647-656, March.
    2. Koffman, Jonathan & Morgan, Myfanwy & Edmonds, Polly & Speck, Peter & Higginson, Irene J., 2008. ""I know he controls cancer": The meanings of religion among Black Caribbean and White British patients with advanced cancer," Social Science & Medicine, Elsevier, vol. 67(5), pages 780-789, September.
    3. Kate Miriam Loewenthal & Marian Brooke Rogers, 2004. "Culture-Sensitive Counselling, Psychotherapy and Support Groups in the Orthodox-Jewish Community: How they Work and How they are Experienced," International Journal of Social Psychiatry, , vol. 50(3), pages 227-240, September.
    4. Gattellari, Melina & Butow, Phyllis N. & Tattersall, Martin H. N., 2001. "Sharing decisions in cancer care," Social Science & Medicine, Elsevier, vol. 52(12), pages 1865-1878, June.
    5. Goodman, Yehuda & Witztum, Eliezer, 2002. "Cross-cultural encounters between careproviders: rabbis' referral letters to a psychiatric clinic in Israel," Social Science & Medicine, Elsevier, vol. 55(8), pages 1309-1323, October.
    6. Lee, Virginia & Robin Cohen, S. & Edgar, Linda & Laizner, Andrea M. & Gagnon, Anita J., 2006. "Meaning-making intervention during breast or colorectal cancer treatment improves self-esteem, optimism, and self-efficacy," Social Science & Medicine, Elsevier, vol. 62(12), pages 3133-3145, June.
    7. Charles, Cathy & Gafni, Amiram & Whelan, Tim, 1999. "Decision-making in the physician-patient encounter: revisiting the shared treatment decision-making model," Social Science & Medicine, Elsevier, vol. 49(5), pages 651-661, September.
    8. Shaked, Michal, 2005. "The social trajectory of illness: Autism in the ultraorthodox community in Israel," Social Science & Medicine, Elsevier, vol. 61(10), pages 2190-2200, November.
    9. Thuné-Boyle, Ingela C. & Stygall, Jan A. & Keshtgar, Mohammed R. & Newman, Stanton P., 2006. "Do religious/spiritual coping strategies affect illness adjustment in patients with cancer? A systematic review of the literature," Social Science & Medicine, Elsevier, vol. 63(1), pages 151-164, July.
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    2. Carmit Katz & Yochay Nadan & Tamar Zion, 2021. "“Torn between Two Worlds”: Practitioners’ Perceptions of Children in Situations of High Intensity Parental Dispute in the Jewish Ultra-Orthodox Community in Israel," Child Indicators Research, Springer;The International Society of Child Indicators (ISCI), vol. 14(4), pages 1617-1634, August.
    3. Shirley Ben Shlomo & Ayelet Oreg, 2022. "Ultra-Orthodox Lesbian Women in Israel: Alternative Family Structures as a Bridge between Religious and Sexual Identities," IJERPH, MDPI, vol. 19(13), pages 1-21, June.
    4. Nadan, Yochay & Katz, Carmit & Zion, Tamar & Wertheimer, Aya, 2021. "High intensity parental dispute in the Jewish ultra-Orthodox community in Israel: Perspectives of social workers and disaffiliated parents," Children and Youth Services Review, Elsevier, vol. 120(C).

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