IDEAS home Printed from https://ideas.repec.org/a/gam/jijerp/v16y2019i10p1776-d232634.html
   My bibliography  Save this article

Pilot Testing of a Patient Decision Aid for Adolescents with Severe Obesity in US Pediatric Weight Management Programs within the COMPASS Network

Author

Listed:
  • Jaime Moore

    (Department of Pediatrics, Section of Nutrition, University of Colorado School of Medicine, Aurora, CO 80045, USA)

  • Matthew Haemer

    (Department of Pediatrics, Section of Nutrition, University of Colorado School of Medicine, Aurora, CO 80045, USA)

  • Nazrat Mirza

    (Children’s National Medical Center, Washington, DC 20010, USA)

  • Ying Z Weatherall

    (Department of Surgery, University of Tennessee Health Science Center, Memphis, TN 38103, USA)

  • Joan Han

    (Department of Pediatrics, University of Tennessee Health Science Center, Memphis, TN 38103, USA
    Department of Physiology, University of Tennessee Health Science Center, Memphis, TN 38103, USA
    Children’s Foundation Research Institute, Le Bonheur Children’s Hospital, Memphis, TN 38103, USA)

  • Caren Mangarelli

    (Duke Children’s Healthy Lifestyles Program, Durham, NC 27705, USA)

  • Mary Jane Hawkins

    (Children’s Hospital & Medical Center, Omaha, NE 68114, USA)

  • Stavra Xanthakos

    (Division of Pediatric Gastroenterology, Hepatology and Nutrition, Cincinnati Children’s Hospital Medical Center, Cincinnati, OH 45267, USA
    Department of Pediatrics, University of Cincinnati College of Medicine, Cincinnati, OH 45267, USA)

  • Robert Siegel

    (Heart Institute, Cincinnati Children’s Hospital Medical Center, Cincinnati, OH 45267, USA
    Department of Pediatrics, University of Cincinnati College of Medicine, Cincinnati, OH 45267, USA)

Abstract

Shared decision-making (SDM) is a best practice for delivering high-quality, patient-centered care when there are multiple options from which to choose. A patient decision aid (PDA) to promote SDM for the treatment of adolescent severe obesity was piloted among 12–17-year-olds ( n = 31) from six pediatric weight management programs within the Childhood Obesity Multi Program Analysis and Study System (COMPASS). Medical providers used a brochure that described indications, risks, and benefits of intensive lifestyle management alone versus bariatric surgery plus lifestyle. Immediately after, patients/families completed a survey. Patient/family perceptions of provider effort to promote understanding of health issues, to listen to what mattered most to them, and to include what mattered most to them in choosing next steps averaged 8.6, 8.8, and 8.7, respectively (0 = no effort, 9 = every effort). Nearly all (96%) reported knowing the risks/benefits of each treatment option and feeling clear about which risks/benefits mattered most to them. Most (93%) reported having enough support/advice to make a choice, and 89% felt sure about what the best choice was. Providers largely found the PDA to be feasible and acceptable. This pilot will guide a more rigorous study to determine the PDA’s effectiveness to support decision-making for adolescent severe obesity treatment.

Suggested Citation

  • Jaime Moore & Matthew Haemer & Nazrat Mirza & Ying Z Weatherall & Joan Han & Caren Mangarelli & Mary Jane Hawkins & Stavra Xanthakos & Robert Siegel, 2019. "Pilot Testing of a Patient Decision Aid for Adolescents with Severe Obesity in US Pediatric Weight Management Programs within the COMPASS Network," IJERPH, MDPI, vol. 16(10), pages 1-12, May.
    • Handle: RePEc:gam:jijerp:v:16:y:2019:i:10:p:1776-:d:232634
    as

    Download full text from publisher

    File URL: https://www.mdpi.com/1660-4601/16/10/1776/pdf
    Download Restriction: no
    File URL: https://www.mdpi.com/1660-4601/16/10/1776/
    Download Restriction: no
    ---><---

    References listed on IDEAS

    as
    1. Charles, Cathy & Gafni, Amiram & Whelan, Tim, 1999. "Decision-making in the physician-patient encounter: revisiting the shared treatment decision-making model," Social Science & Medicine, Elsevier, vol. 49(5), pages 651-661, September.
    Full references (including those not matched with items on IDEAS)

    Citations

    Citations are extracted by the CitEc Project, subscribe to its RSS feed for this item.
    as


    Cited by:

    1. Valentina Martinelli & Simran Singh & Pierluigi Politi & Riccardo Caccialanza & Andrea Peri & Andrea Pietrabissa & Matteo Chiappedi, 2023. "Ethics of Bariatric Surgery in Adolescence and Its Implications for Clinical Practice," IJERPH, MDPI, vol. 20(2), pages 1-11, January.
    2. Robert Siegel & Meghan E. McGrady & Linda Dynan & Roohi Kharofa & Kristin Stackpole & Paula Casson & Francesca Siegel & Nadine A. Kasparian, 2022. "Effects of Loss and Gain Incentives on Adherence in Pediatric Weight Management: Preliminary Studies and Economic Evaluation of a Theoretical Trial," IJERPH, MDPI, vol. 20(1), pages 1-14, December.

    Most related items

    These are the items that most often cite the same works as this one and are cited by the same works as this one.
    1. Karnieli-Miller, Orit & Eisikovits, Zvi, 2009. "Physician as partner or salesman? Shared decision-making in real-time encounters," Social Science & Medicine, Elsevier, vol. 69(1), pages 1-8, July.
    2. Paul C. Schroy III & Karen Emmons & Ellen Peters & Julie T. Glick & Patricia A. Robinson & Maria A. Lydotes & Shamini Mylvanaman & Stephen Evans & Christine Chaisson & Michael Pignone & Marianne Prout, 2011. "The Impact of a Novel Computer-Based Decision Aid on Shared Decision Making for Colorectal Cancer Screening," Medical Decision Making, , vol. 31(1), pages 93-107, January.
    3. Kevin Mertz & Romil F. Shah & Sara L. Eppler & Jeffrey Yao & Marc Safran & Ariel Palanca & Serena S. Hu & Michael Gardner & Derek F. Amanatullah & Robin N. Kamal, 2020. "A Simple Goal Elicitation Tool Improves Shared Decision Making in Outpatient Orthopedic Surgery: A Randomized Controlled Trial," Medical Decision Making, , vol. 40(6), pages 766-773, August.
    4. Sarah-Maude Deschênes & Marie-Pierre Gagnon & France Légaré & Annie Lapointe & Stéphane Turcotte & Sophie Desroches, 2013. "Psychosocial Factors of Dietitians' Intentions to Adopt Shared Decision Making Behaviours: A Cross-Sectional Survey," PLOS ONE, Public Library of Science, vol. 8(5), pages 1-7, May.
    5. Clarissa Hsu & David T. Liss & Dominick L. Frosch & Emily O. Westbrook & David Arterburn, 2017. "Exploring Provider Reactions to Decision Aid Distribution and Shared Decision Making," Medical Decision Making, , vol. 37(1), pages 113-126, January.
    6. Lee, Yin-Yang & Lin, Julia L., 2010. "Do patient autonomy preferences matter? Linking patient-centered care to patient-physician relationships and health outcomes," Social Science & Medicine, Elsevier, vol. 71(10), pages 1811-1818, November.
    7. Coast, Joanna, 2018. "A history that goes hand in hand: Reflections on the development of health economics and the role played by Social Science & Medicine, 1967–2017," Social Science & Medicine, Elsevier, vol. 196(C), pages 227-232.
    8. Underman, Kelly & Hirshfield, Laura E., 2016. "Detached concern?: Emotional socialization in twenty-first century medical education," Social Science & Medicine, Elsevier, vol. 160(C), pages 94-101.
    9. Chen Zhang & Kevin Fiscella & Yu Liu, 2022. "Exploring the Role of Provider–Patient Communication in Women’s Sexual Health and Pre-Exposure Prophylaxis Care in the Primary Care Settings in New York State of the United States," IJERPH, MDPI, vol. 19(13), pages 1-15, July.
    10. Carla Brailey & Brittany C. Slatton, 2024. "Centering Black Women’s Voices: Illuminating Systemic Racism in Maternal Healthcare Experiences," Societies, MDPI, vol. 14(5), pages 1-12, May.
    11. Ishikawa, Hirono & Hashimoto, Hideki & Kiuchi, Takahiro, 2013. "The evolving concept of “patient-centeredness” in patient–physician communication research," Social Science & Medicine, Elsevier, vol. 96(C), pages 147-153.
    12. K. D. Valentine & Ha Vo & Floyd J. Fowler Jr. & Suzanne Brodney & Michael J. Barry & Karen R. Sepucha, 2021. "Development and Evaluation of the Shared Decision Making Process Scale: A Short Patient-Reported Measure," Medical Decision Making, , vol. 41(2), pages 108-119, February.
    13. Tate, Alexandra, 2020. "Invoking death: How oncologists discuss a deadly outcome," Social Science & Medicine, Elsevier, vol. 246(C).
    14. Wirtz, Veronika & Cribb, Alan & Barber, Nick, 2006. "Patient-doctor decision-making about treatment within the consultation--A critical analysis of models," Social Science & Medicine, Elsevier, vol. 62(1), pages 116-124, January.
    15. Kirsten J. McCaffery & Sian K. Smith & Michael Wolf, 2010. "The Challenge of Shared Decision Making Among Patients With Lower Literacy: A Framework for Research and Development," Medical Decision Making, , vol. 30(1), pages 35-44, January.
    16. Dyer, Thomas Anthony & Owens, Janine & Robinson, Peter Glenn, 2014. "The acceptability of care delegation in skill-mix: The salience of trust," Health Policy, Elsevier, vol. 117(2), pages 170-178.
    17. Pamela B. Peele & Laura A. Siminoff & Ying Xu & Peter M. Ravdin, 2005. "Decreased Use of Adjuvant Breast Cancer Therapy in a Randomized Controlled Trial of a Decision Aid with Individualized Risk Information," Medical Decision Making, , vol. 25(3), pages 301-307, May.
    18. Coleman-Brueckheimer, Kate & Spitzer, Joseph & Koffman, Jonathan, 2009. "Involvement of Rabbinic and communal authorities in decision-making by haredi Jews in the UK with breast cancer: An interpretative phenomenological analysis," Social Science & Medicine, Elsevier, vol. 68(2), pages 323-333, January.
    19. Shosh Shahrabani & Amiram Gafni & Uri Ben-Zion, 2008. "Low Flu Shot Rates Puzzle—Some Plausible Behavioral Explanations," The American Economist, Sage Publications, vol. 52(1), pages 66-72, March.
    20. Nick Bansback & Mark Harrison & Carlo Marra, 2016. "Does Introducing Imprecision around Probabilities for Benefit and Harm Influence the Way People Value Treatments?," Medical Decision Making, , vol. 36(4), pages 490-502, May.

    Corrections

    All material on this site has been provided by the respective publishers and authors. You can help correct errors and omissions. When requesting a correction, please mention this item's handle: RePEc:gam:jijerp:v:16:y:2019:i:10:p:1776-:d:232634. See general information about how to correct material in RePEc.

    If you have authored this item and are not yet registered with RePEc, we encourage you to do it here. This allows to link your profile to this item. It also allows you to accept potential citations to this item that we are uncertain about.

    If CitEc recognized a bibliographic reference but did not link an item in RePEc to it, you can help with this form .

    If you know of missing items citing this one, you can help us creating those links by adding the relevant references in the same way as above, for each refering item. If you are a registered author of this item, you may also want to check the "citations" tab in your RePEc Author Service profile, as there may be some citations waiting for confirmation.

    For technical questions regarding this item, or to correct its authors, title, abstract, bibliographic or download information, contact: MDPI Indexing Manager (email available below). General contact details of provider: https://www.mdpi.com .

    Please note that corrections may take a couple of weeks to filter through the various RePEc services.

    IDEAS is a RePEc service. RePEc uses bibliographic data supplied by the respective publishers.