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Discredited legacy: Stigma and familial amyloid polyneuropathy in Northwestern Portugal

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  • Mendes, Álvaro
  • Sousa, Liliana
  • Sequeiros, Jorge
  • Clarke, Angus

Abstract

Genetic inherited conditions may result in feelings of stigmatisation, mainly because of visible physical appearance and its transmissibility to offspring.

Suggested Citation

  • Mendes, Álvaro & Sousa, Liliana & Sequeiros, Jorge & Clarke, Angus, 2017. "Discredited legacy: Stigma and familial amyloid polyneuropathy in Northwestern Portugal," Social Science & Medicine, Elsevier, vol. 182(C), pages 73-80.
    • Handle: RePEc:eee:socmed:v:182:y:2017:i:c:p:73-80
    DOI: 10.1016/j.socscimed.2017.04.026
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    References listed on IDEAS

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    1. Whitley, Rob & Denise Campbell, Rosalyn, 2014. "Stigma, agency and recovery amongst people with severe mental illness," Social Science & Medicine, Elsevier, vol. 107(C), pages 1-8.
    2. Kenen, R.H. & Schmidt, R.M., 1978. "Stigmatization of carrier status: Social implications of heterozygote genetic screening programs," American Journal of Public Health, American Public Health Association, vol. 68(11), pages 1116-1120.
    3. Boardman, Felicity Kate, 2014. "The expressivist objection to prenatal testing: The experiences of families living with genetic disease," Social Science & Medicine, Elsevier, vol. 107(C), pages 18-25.
    4. Pescosolido, Bernice A. & Martin, Jack K. & Lang, Annie & Olafsdottir, Sigrun, 2008. "Rethinking theoretical approaches to stigma: A Framework Integrating Normative Influences on Stigma (FINIS)," Social Science & Medicine, Elsevier, vol. 67(3), pages 431-440, August.
    5. Parker, Richard & Aggleton, Peter, 2003. "HIV and AIDS-related stigma and discrimination: a conceptual framework and implications for action," Social Science & Medicine, Elsevier, vol. 57(1), pages 13-24, July.
    6. Clarke, Angus, 2016. "Anticipated stigma and blameless guilt: Mothers' evaluation of life with the sex-linked disorder, hypohidrotic ectodermal dysplasia (XHED)," Social Science & Medicine, Elsevier, vol. 158(C), pages 141-148.
    7. Green, Sara E., 2003. ""What do you mean 'what's wrong with her?'": stigma and the lives of families of children with disabilities," Social Science & Medicine, Elsevier, vol. 57(8), pages 1361-1374, October.
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    Cited by:

    1. Mariana Amorim & Susana Silva & Helena Machado & Elisa Leão Teles & Maria João Baptista & Tiago Maia & Ngozi Nwebonyi & Cláudia de Freitas, 2022. "Benefits and Risks of Sharing Genomic Data for Research: Comparing the Views of Rare Disease Patients, Informal Carers and Healthcare Professionals," IJERPH, MDPI, vol. 19(14), pages 1-16, July.

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