Anticipated stigma and blameless guilt: Mothers' evaluation of life with the sex-linked disorder, hypohidrotic ectodermal dysplasia (XHED)
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DOI: 10.1016/j.socscimed.2016.04.027
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- Pescosolido, Bernice A. & Martin, Jack K. & Lang, Annie & Olafsdottir, Sigrun, 2008. "Rethinking theoretical approaches to stigma: A Framework Integrating Normative Influences on Stigma (FINIS)," Social Science & Medicine, Elsevier, vol. 67(3), pages 431-440, August.
- Boardman, Felicity Kate, 2014. "The expressivist objection to prenatal testing: The experiences of families living with genetic disease," Social Science & Medicine, Elsevier, vol. 107(C), pages 18-25.
- Shostak, Sara & Zarhin, Dana & Ottman, Ruth, 2011. "What's at stake? Genetic information from the perspective of people with epilepsy and their family members," Social Science & Medicine, Elsevier, vol. 73(5), pages 645-654, September.
- Kenen, R.H. & Schmidt, R.M., 1978. "Stigmatization of carrier status: Social implications of heterozygote genetic screening programs," American Journal of Public Health, American Public Health Association, vol. 68(11), pages 1116-1120.
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Keywords
United Kingdom; Stigmatisation; Discrimination; Guilt; Blame; X-linked hypohidrotic ectodermal dysplasia; Grandmother; Reproductive decision;All these keywords.
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