IDEAS home Printed from https://ideas.repec.org/a/eee/socmed/v168y2016icp273-282.html
   My bibliography  Save this article

Palliating inside the lines: The effects of borders and boundaries on palliative care in rural Canada

Author

Listed:
  • Giesbrecht, Melissa
  • Crooks, Valorie A.
  • Castleden, Heather
  • Schuurman, Nadine
  • Skinner, Mark
  • Williams, Allison

Abstract

We draw lines to divide our world into specific places, territories, and categories. Although borders and boundaries are dynamic and socially constructed, their existence creates many broad impacts on our lives by geographically distinguishing between groups (e.g., us/them; here/there; inside/outside) at various scales from the national down to the personal spaces of the individual. Particularly, borders and boundaries can be used to define a variety of differing spaces such as the familial, social, economic, political, as well as issues of access – including access to health services. Despite the implicit connection between borders, boundaries, and health, little research has investigated this connection from a health geography perspective. As such, this secondary thematic analysis contributes to addressing this notable gap by examining how borders and boundaries are experienced and perceived to impact access to palliative care in rural Canada from the perspectives of the formal and informal providers of such care. Drawing upon data from qualitative interviews (n = 40) with formal and informal palliative caregivers residing in four different rural Canadian communities, five forms of borders and boundaries were found to directly impact care delivery/receipt: political; jurisdictional; geographical; professional; and cultural. Implicitly and explicitly, participants discussed these borders and boundaries while sharing their experiences of providing palliative care in rural Canada. We conclude by discussing the implications of our findings for palliative care in rural Canada, while also emphasizing the need for more health geography, and related social science, researchers to recognize the significance of borders and boundaries in relation to health and healthcare delivery. Lastly, we emphasize the transferability of these findings to other health sectors, geographical settings, and disciplines.

Suggested Citation

  • Giesbrecht, Melissa & Crooks, Valorie A. & Castleden, Heather & Schuurman, Nadine & Skinner, Mark & Williams, Allison, 2016. "Palliating inside the lines: The effects of borders and boundaries on palliative care in rural Canada," Social Science & Medicine, Elsevier, vol. 168(C), pages 273-282.
  • Handle: RePEc:eee:socmed:v:168:y:2016:i:c:p:273-282
    DOI: 10.1016/j.socscimed.2016.04.037
    as

    Download full text from publisher

    File URL: http://www.sciencedirect.com/science/article/pii/S0277953616302192
    Download Restriction: Full text for ScienceDirect subscribers only

    File URL: https://libkey.io/10.1016/j.socscimed.2016.04.037?utm_source=ideas
    LibKey link: if access is restricted and if your library uses this service, LibKey will redirect you to where you can use your library subscription to access this item
    ---><---

    As the access to this document is restricted, you may want to search for a different version of it.

    References listed on IDEAS

    as
    1. Exley, Catherine & Allen, Davina, 2007. "A critical examination of home care: End of life care as an illustrative case," Social Science & Medicine, Elsevier, vol. 65(11), pages 2317-2327, December.
    2. Donovan, Rhonda & Williams, Allison & Stajduhar, Kelli & Brazil, Kevin & Marshall, Denise, 2011. "The influence of culture on home-based family caregiving at end-of-life: A case study of Dutch reformed family care givers in Ontario, Canada," Social Science & Medicine, Elsevier, vol. 72(3), pages 338-346, February.
    3. Oecd, 2012. "Developments in Mobile Termination," OECD Digital Economy Papers 193, OECD Publishing.
    4. Mier, Nelda & Ory, Marcia G. & Zhan, Dongling & Conkling, Martha & Sharkey, Joseph R. & Burdine, James N., 2008. "Health-related quality of life among Mexican Americans living in colonias at the Texas-Mexico border," Social Science & Medicine, Elsevier, vol. 66(8), pages 1760-1771, April.
    Full references (including those not matched with items on IDEAS)

    Most related items

    These are the items that most often cite the same works as this one and are cited by the same works as this one.
    1. Cassandra M. Johnson & Marlyn A. Allicock & Joseph R. Sharkey & M. Renée Umstattd Meyer & Luis Gómez & Tyler Prochnow & Chelsey Laviolette & Elva Beltrán & Luz M. Garza, 2022. "Promotoras de Salud in a Father-Focused Nutrition and Physical Activity Program for Border Communities: Approaches and Lessons Learned from Collaboration," IJERPH, MDPI, vol. 19(18), pages 1-22, September.
    2. Lowton, Karen, 2009. "'A bed in the middle of nowhere': Parents' meanings of place of death for adults with cystic fibrosis," Social Science & Medicine, Elsevier, vol. 69(7), pages 1056-1062, October.
    3. Natarajan, Thamaraiselvan & Balasubramanian, Senthil Arasu & Kasilingam, Dharun Lingam, 2017. "Understanding the intention to use mobile shopping applications and its influence on price sensitivity," Journal of Retailing and Consumer Services, Elsevier, vol. 37(C), pages 8-22.
    4. Ken Sexton & Jennifer J. Salinas, 2014. "Concurrent Fetal Exposure to Multiple Environmental Chemicals along the U.S.—Mexico Border: An Exploratory Study in Brownsville, Texas," IJERPH, MDPI, vol. 11(10), pages 1-17, September.
    5. Sinclair, Craig & Smith, Jessica & Toussaint, Yann & Auret, Kirsten, 2014. "Discussing dying in the diaspora: Attitudes towards advance care planning among first generation Dutch and Italian migrants in rural Australia," Social Science & Medicine, Elsevier, vol. 101(C), pages 86-93.
    6. Miguel Ángel Salinero-Fort & Paloma Gómez-Campelo & Carmen Bragado-Alvárez & Juan Carlos Abánades-Herranz & Rodrigo Jiménez-García & Carmen de Burgos-Lunar & on behalf of the Health & Immigration Grou, 2015. "Health-Related Quality of Life of Latin-American Immigrants and Spanish-Born Attended in Spanish Primary Health Care: Socio-Demographic and Psychosocial Factors," PLOS ONE, Public Library of Science, vol. 10(4), pages 1-17, April.
    7. Ken Sexton & Jennifer J. Salinas & Thomas J. McDonald & Rose M. Z. Gowen & Rebecca P. Miller & Joseph B. McCormick & Susan P. Fisher-Hoch, 2013. "Biomarkers of Maternal and Fetal Exposure to Organochlorine Pesticides Measured in Pregnant Hispanic Women from Brownsville, Texas," IJERPH, MDPI, vol. 10(1), pages 1-12, January.
    8. Tessa Morgan & Aamena Bharmal & Robbie Duschinsky & Stephen Barclay, 2020. "Experiences of oldest-old caregivers whose partner is approaching end-of-life: A mixed-method systematic review and narrative synthesis," PLOS ONE, Public Library of Science, vol. 15(6), pages 1-18, June.
    9. Slagboom, M. Nienke & Crone, Mathilde R. & Reis, Ria, 2022. "Exploring syndemic vulnerability across generations: A case study of a former fishing village in the Netherlands," Social Science & Medicine, Elsevier, vol. 295(C).
    10. Ortiz, Gabriela & Rodriguez, Sophia & Pozar, María & Moran, Ashley & Cheney, Ann, 2024. "Seeking care across the US-Mexico border: The experiences of Latinx and Indigenous Mexican caregivers of children with asthma or respiratory distress," Social Science & Medicine, Elsevier, vol. 347(C).
    11. David Harbord & Steffen Hoernig, 2015. "Welfare Analysis of Regulating Mobile Termination Rates in the U.K," Journal of Industrial Economics, Wiley Blackwell, vol. 63(4), pages 673-703, December.
    12. McNamara, Beverley & Rosenwax, Lorna, 2010. "Which carers of family members at the end of life need more support from health services and why?," Social Science & Medicine, Elsevier, vol. 70(7), pages 1035-1041, April.
    13. Ken Sexton & Jennifer J. Salinas & Thomas J. McDonald & Rose M. Z. Gowen & Rebecca P. Miller & Joseph B. McCormick & Susan P. Fisher-Hoch, 2011. "Polycyclic Aromatic Hydrocarbons in Maternal and Umbilical Cord Blood from Pregnant Hispanic Women Living in Brownsville, Texas," IJERPH, MDPI, vol. 8(8), pages 1-15, August.
    14. Rao, Narasimha D., 2013. "Does (better) electricity supply increase household enterprise income in India?," Energy Policy, Elsevier, vol. 57(C), pages 532-541.
    15. Lum, Irene D. & Swartz, Rebecca H. & Kwan, Matthew Y.W., 2016. "Accessibility and use of primary healthcare for immigrants living in the Niagara Region," Social Science & Medicine, Elsevier, vol. 156(C), pages 73-79.
    16. Kongaut, Chatchai & Bohlin, Erik, 2012. "Impacts of mobile termination rates (MTRs) on retail prices: The implication for regulators," 23rd European Regional ITS Conference, Vienna 2012 60348, International Telecommunications Society (ITS).
    17. Lee, Jongyong & Lee, Duk Hee, 2012. "Asymmetry of mobile termination rates and the waterbed effect," 23rd European Regional ITS Conference, Vienna 2012 60353, International Telecommunications Society (ITS).
    18. Rasmus Lema & Björn Johnson & Allan Dahl Andersen & Bengt-Åke Lundvall & Ankur Chaudhary (ed.), 2014. "Low-Carbon Innovation and Development," Globelics Thematic Reviews, Globelics - Global Network for Economics of Learning, Innovation, and Competence Building Systems, Aalborg University, Department of Business and Management, number low-carbon, September.
    19. Baig, Kamran & Shaw-Ridley, Mary & Munoz, Oscar J., 2016. "Applying geo-spatial analysis in community needs assessment: Implications for planning and prioritizing based on data," Evaluation and Program Planning, Elsevier, vol. 58(C), pages 42-48.
    20. Bruni, Attila & Miele, Francesco & Piras, Enrico Maria, 2019. "‘Homemade’: Building, mending, and coordinating a care network," Social Science & Medicine, Elsevier, vol. 237(C), pages 1-1.

    Corrections

    All material on this site has been provided by the respective publishers and authors. You can help correct errors and omissions. When requesting a correction, please mention this item's handle: RePEc:eee:socmed:v:168:y:2016:i:c:p:273-282. See general information about how to correct material in RePEc.

    If you have authored this item and are not yet registered with RePEc, we encourage you to do it here. This allows to link your profile to this item. It also allows you to accept potential citations to this item that we are uncertain about.

    If CitEc recognized a bibliographic reference but did not link an item in RePEc to it, you can help with this form .

    If you know of missing items citing this one, you can help us creating those links by adding the relevant references in the same way as above, for each refering item. If you are a registered author of this item, you may also want to check the "citations" tab in your RePEc Author Service profile, as there may be some citations waiting for confirmation.

    For technical questions regarding this item, or to correct its authors, title, abstract, bibliographic or download information, contact: Catherine Liu (email available below). General contact details of provider: http://www.elsevier.com/wps/find/journaldescription.cws_home/315/description#description .

    Please note that corrections may take a couple of weeks to filter through the various RePEc services.

    IDEAS is a RePEc service. RePEc uses bibliographic data supplied by the respective publishers.