IDEAS home Printed from https://ideas.repec.org/a/eee/socmed/v123y2014icp202-209.html
   My bibliography  Save this article

The voluntary sector and health policy: The role of national level health consumer and patients' organisations in the UK

Author

Listed:
  • Baggott, Rob
  • Jones, Kathryn

Abstract

This article explores the policy role of health consumer and patients' organisations (HCPOs), an important subset of the UK voluntary health sector. Based on research findings from two surveys, the article examines the activities, resources and contacts of HCPOs. It also assesses their impact on health policy and reform. There is some evidence that HCPOs can influence policy and reform. However, much depends on the alliances they build with other policy actors (including other HCPOs), their resources and leadership. HCPOs seem to have more impact on the detail of policy than on the direction of travel. In addition, there are potentially adverse consequences for HCPOs that do engage with the policy process, which may partly explain why some are wary of such involvement. For example, it is possible that HCPOs can be manipulated by government and other powerful policy actors such as health professionals and the drugs industry.

Suggested Citation

  • Baggott, Rob & Jones, Kathryn, 2014. "The voluntary sector and health policy: The role of national level health consumer and patients' organisations in the UK," Social Science & Medicine, Elsevier, vol. 123(C), pages 202-209.
    • Handle: RePEc:eee:socmed:v:123:y:2014:i:c:p:202-209
    DOI: 10.1016/j.socscimed.2014.07.016
    as

    Download full text from publisher

    File URL: http://www.sciencedirect.com/science/article/pii/S0277953614004456
    Download Restriction: Full text for ScienceDirect subscribers only
    File URL: https://libkey.io/10.1016/j.socscimed.2014.07.016?utm_source=ideas
    LibKey link: if access is restricted and if your library uses this service, LibKey will redirect you to where you can use your library subscription to access this item
    ---><---

    As the access to this document is restricted, you may want to search for a different version of it.

    References listed on IDEAS

    as
    1. Crossley, Nick, 2006. "The field of psychiatric contention in the UK, 1960-2000," Social Science & Medicine, Elsevier, vol. 62(3), pages 552-563, February.
    2. Hemminki, Elina & Toiviainen, Hanna K. & Vuorenkoski, Lauri, 2010. "Co-operation between patient organisations and the drug industry in Finland," Social Science & Medicine, Elsevier, vol. 70(8), pages 1171-1175, April.
    3. Rabeharisoa, Vololona, 2006. "From representation to mediation: The shaping of collective mobilization on muscular dystrophy in France," Social Science & Medicine, Elsevier, vol. 62(3), pages 564-576, February.
    4. Kendall, Jeremy, 2000. "The mainstreaming of the third sector into public policy in England in the late 1990s: whys and wherefores," LSE Research Online Documents on Economics 29028, London School of Economics and Political Science, LSE Library.
    5. Jennings, M. Kent, 1999. "Political Responses to Pain and Loss Presidential Address, American Political Science Association, 1998," American Political Science Review, Cambridge University Press, vol. 93(1), pages 1-13, March.
    6. Salter, Brian, 2003. "Patients and doctors: reformulating the UK health policy community?," Social Science & Medicine, Elsevier, vol. 57(5), pages 927-936, September.
    7. Baggott, Rob & Jones, Kathryn L., 2011. "Prevention better than cure? Health consumer and patients' organisations and public health," Social Science & Medicine, Elsevier, vol. 73(4), pages 530-534, August.
    Full references (including those not matched with items on IDEAS)

    Citations

    Citations are extracted by the CitEc Project, subscribe to its RSS feed for this item.
    as


    Cited by:

    1. Hayley Alderson & Eileen Kaner & Amy O’Donnell & Angela Bate, 2022. "A Qualitative Exploration of Stakeholder Involvement in Decision-Making for Alcohol Treatment and Prevention Services," IJERPH, MDPI, vol. 19(4), pages 1-14, February.
    2. Epstein, Steven, 2016. "The politics of health mobilization in the United States: The promise and pitfalls of “disease constituencies”," Social Science & Medicine, Elsevier, vol. 165(C), pages 246-254.
    3. Croft, Charlotte & Currie, Graeme, 2020. "Realizing policy aspirations of voluntary sector involvement in integrated care provision: Insights from the English National Health Service," Health Policy, Elsevier, vol. 124(5), pages 549-555.
    4. Panos Kanavos & Olivier Wouters & Jean Mossman & Mary G. Baker & Ingrid Kössler, 2017. "Patient Power as a Driver for Change: Reality or Rhetoric?," Global Policy, London School of Economics and Political Science, vol. 8, pages 133-138, March.
    5. repec:bla:glopol:v:8:y:2017:i:s2:p:133-138 is not listed on IDEAS

    Most related items

    These are the items that most often cite the same works as this one and are cited by the same works as this one.
    1. Butcher John & Casey John & Dalton Bronwen, 2012. "An Australian National Compact - Something old, something new?," Nonprofit Policy Forum, De Gruyter, vol. 3(2), pages 1-44, October.
    2. Alia Aghajanian & Patricia Justino & Jean-Pierre Tranchant, 2020. "Riots and social capital in urban India," WIDER Working Paper Series wp-2020-42, World Institute for Development Economic Research (UNU-WIDER).
    3. Britten, Nicky & Denford, Sarah & Harris-Golesworthy, Faith & Jibson, Steph & Pyart, Nigel & Stein, Ken, 2015. "Patient involvement in drug licensing: A case study," Social Science & Medicine, Elsevier, vol. 131(C), pages 289-296.
    4. Kendall, Jeremy, 2001. "The third sector and the development of European public policy: a framework for analysis," LSE Research Online Documents on Economics 29062, London School of Economics and Political Science, LSE Library.
    5. Manville, Graham & Greatbanks, Richard, 2020. "Performance management in hybrid organisations: A study in social housing," European Management Journal, Elsevier, vol. 38(3), pages 533-545.
    6. Shai Mulinari & Andreas Vilhelmsson & Emily Rickard & Piotr Ozieranski, 2020. "Five years of pharmaceutical industry funding of patient organisations in Sweden: Cross-sectional study of companies, patient organisations and drugs," PLOS ONE, Public Library of Science, vol. 15(6), pages 1-19, June.
    7. Tessa Brannan & Peter John & Gerry Stoker, 2006. "Active Citizenship and Effective Public Services and Programmes: How Can We Know What Really Works?," Urban Studies, Urban Studies Journal Limited, vol. 43(5-6), pages 993-1008, May.
    8. Kosec, Katrina & Mo, Cecilia Hyunjung, 2017. "Aspirations and the Role of Social Protection: Evidence from a Natural Disaster in Rural Pakistan," World Development, Elsevier, vol. 97(C), pages 49-66.
    9. Lopes, Edilene & Carter, Drew & Street, Jackie, 2015. "Power relations and contrasting conceptions of evidence in patient-involvement processes used to inform health funding decisions in Australia," Social Science & Medicine, Elsevier, vol. 135(C), pages 84-91.
    10. Kim Suyoung, 2019. "The Less-Known History of the Voluntary Sector in an East Asian Welfare Regime: A South Korean Case," Nonprofit Policy Forum, De Gruyter, vol. 10(1), pages 1-13, January.
    11. Bojovic, Neva & Geiger, Susi, 2023. "Epistemic and institutional recognition work in changing conditions of social visibility: Anosmia's journey from the shadows to the spotlight," Social Science & Medicine, Elsevier, vol. 338(C).
    12. Stacciarini, João Henrique Santana, 2023. "The Consolidation of the Pharmaceutical Sector in the Global Economy: Growth, Influence, Deviations, and Marketing," SocArXiv 6728p_v1, Center for Open Science.
    13. Wan, Zheng & Wang, Xuefeng & Sperling, Daniel, 2013. "Policy and politics behind the public transportation systems of China's medium-sized cities: Evidence from the Huizhou reform," Utilities Policy, Elsevier, vol. 27(C), pages 1-8.
    14. Lennart Sjöberg & Britt-Marie Drottz-Sjöberg, 2008. "Risk Perception by Politicians and the Public," Energy & Environment, , vol. 19(3-4), pages 455-483, July.
    15. Deakin, Nicholas, 2000. "“Putting narrow-mindedness out of countenance”: the UK voluntary sector in the new millennium," LSE Research Online Documents on Economics 29034, London School of Economics and Political Science, LSE Library.
    16. Antoni F. Tulla & Ana Vera & Carles Guirado & Natàlia Valldeperas, 2020. "The Return on Investment in Social Farming: A Strategy for Sustainable Rural Development in Rural Catalonia," Sustainability, MDPI, vol. 12(11), pages 1-28, June.
    17. Cace, Sorin, 2010. "Good Practices in Social Economy in Greece and in Other States of the European Union," MPRA Paper 79940, University Library of Munich, Germany.
    18. Noerreslet, Mikkel & Larsen, Jakob B. & Traulsen, Janine M., 2005. "The medicine user--Lost in translation?: Analysis of the official political debate prior to the deregulation of the Danish medicine distribution system," Social Science & Medicine, Elsevier, vol. 61(8), pages 1733-1740, October.
    19. Dimond, Rebecca & Doheny, Shane & Ballard, Lisa & Clarke, Angus, 2022. "Genetic testing and family entanglements," Social Science & Medicine, Elsevier, vol. 298(C).
    20. David Conradson, 2008. "Expressions of Charity and Action towards Justice: Faith-based Welfare Provision in Urban New Zealand," Urban Studies, Urban Studies Journal Limited, vol. 45(10), pages 2117-2141, September.

    Corrections

    All material on this site has been provided by the respective publishers and authors. You can help correct errors and omissions. When requesting a correction, please mention this item's handle: RePEc:eee:socmed:v:123:y:2014:i:c:p:202-209. See general information about how to correct material in RePEc.

    If you have authored this item and are not yet registered with RePEc, we encourage you to do it here. This allows to link your profile to this item. It also allows you to accept potential citations to this item that we are uncertain about.

    If CitEc recognized a bibliographic reference but did not link an item in RePEc to it, you can help with this form .

    If you know of missing items citing this one, you can help us creating those links by adding the relevant references in the same way as above, for each refering item. If you are a registered author of this item, you may also want to check the "citations" tab in your RePEc Author Service profile, as there may be some citations waiting for confirmation.

    For technical questions regarding this item, or to correct its authors, title, abstract, bibliographic or download information, contact: Catherine Liu (email available below). General contact details of provider: http://www.elsevier.com/wps/find/journaldescription.cws_home/315/description#description .

    Please note that corrections may take a couple of weeks to filter through the various RePEc services.

    IDEAS is a RePEc service. RePEc uses bibliographic data supplied by the respective publishers.