IDEAS home Printed from https://ideas.repec.org/a/eee/hepoli/v122y2018i6p590-598.html
   My bibliography  Save this article

The view of experts on initiatives to be undertaken to promote equity in the access to orphan drugs and specialised care for rare diseases in Spain: A Delphi consensus

Author

Listed:
  • Torrent-Farnell, J.
  • Comellas, M.
  • Poveda, J.L.
  • Abaitua, I.
  • Gutiérrez-Solana, L.G.
  • Pérez-López, J.
  • Cruz, J.
  • Urcelay, J.
  • Lizán, L.

Abstract

To reach a consensus amongst experts on the most feasible actions to be undertaken to facilitate patient access to specialised care and orphan drugs (OD) in the public health sector in Spain.

Suggested Citation

  • Torrent-Farnell, J. & Comellas, M. & Poveda, J.L. & Abaitua, I. & Gutiérrez-Solana, L.G. & Pérez-López, J. & Cruz, J. & Urcelay, J. & Lizán, L., 2018. "The view of experts on initiatives to be undertaken to promote equity in the access to orphan drugs and specialised care for rare diseases in Spain: A Delphi consensus," Health Policy, Elsevier, vol. 122(6), pages 590-598.
    • Handle: RePEc:eee:hepoli:v:122:y:2018:i:6:p:590-598
    DOI: 10.1016/j.healthpol.2018.03.002
    as

    Download full text from publisher

    File URL: http://www.sciencedirect.com/science/article/pii/S016885101830054X
    Download Restriction: Full text for ScienceDirect subscribers only
    File URL: https://libkey.io/10.1016/j.healthpol.2018.03.002?utm_source=ideas
    LibKey link: if access is restricted and if your library uses this service, LibKey will redirect you to where you can use your library subscription to access this item
    ---><---

    As the access to this document is restricted, you may want to search for a different version of it.

    References listed on IDEAS

    as
    1. Rowe, Gene & Wright, George, 1999. "The Delphi technique as a forecasting tool: issues and analysis," International Journal of Forecasting, Elsevier, vol. 15(4), pages 353-375, October.
    2. Picavet, Eline & Cassiman, David & Simoens, Steven, 2012. "Evaluating and improving orphan drug regulations in Europe: A Delphi policy study," Health Policy, Elsevier, vol. 108(1), pages 1-9.
    3. Todd Gammie & Christine Y Lu & Zaheer Ud-Din Babar, 2015. "Access to Orphan Drugs: A Comprehensive Review of Legislations, Regulations and Policies in 35 Countries," PLOS ONE, Public Library of Science, vol. 10(10), pages 1-24, October.
    Full references (including those not matched with items on IDEAS)

    Most related items

    These are the items that most often cite the same works as this one and are cited by the same works as this one.
    1. Prommer, Lisa & Tiberius, Victor & Kraus, Sascha, 2020. "Exploring the future of startup leadership development," Journal of Business Venturing Insights, Elsevier, vol. 14(C).
    2. Bas Kolen & Matthijs Kok & Ira Helsloot & Bob Maaskant, 2013. "EvacuAid: A Probabilistic Model to Determine the Expected Loss of Life for Different Mass Evacuation Strategies During Flood Threats," Risk Analysis, John Wiley & Sons, vol. 33(7), pages 1312-1333, July.
    3. Meissner, Philip & Brands, Christian & Wulf, Torsten, 2017. "Quantifiying blind spots and weak signals in executive judgment: A structured integration of expert judgment into the scenario development process," International Journal of Forecasting, Elsevier, vol. 33(1), pages 244-253.
    4. Fabio Salamanca-Buentello & Mary V Seeman & Abdallah S Daar & Ross E G Upshur, 2020. "The ethical, social, and cultural dimensions of screening for mental health in children and adolescents of the developing world," PLOS ONE, Public Library of Science, vol. 15(8), pages 1-25, August.
    5. Prianto Budi Saptono & Gustofan Mahmud & Intan Pratiwi & Dwi Purwanto & Ismail Khozen & Muhamad Akbar Aditama & Siti Khodijah & Maria Eurelia Wayan & Rina Yuliastuty Asmara & Ferry Jie, 2023. "Development of Climate-Related Disclosure Indicators for Application in Indonesia: A Delphi Method Study," Sustainability, MDPI, vol. 15(14), pages 1-25, July.
    6. Heiskanen, Aleksi & Hurmekoski, Elias & Toppinen, Anne & Näyhä, Annukka, 2022. "Exploring the unknowns – State of the art in qualitative forest-based sector foresight research," Forest Policy and Economics, Elsevier, vol. 135(C).
    7. Lin, Tun & De Guzman, Franklin, 2007. "Tourism for pro-poor and sustainable growth: economic analysis of tourism projects," MPRA Paper 24994, University Library of Munich, Germany.
    8. Di Zio, Simone & Bolzan, Mario & Marozzi, Marco, 2021. "Classification of Delphi outputs through robust ranking and fuzzy clustering for Delphi-based scenarios," Technological Forecasting and Social Change, Elsevier, vol. 173(C).
    9. Litsiou, Konstantia & Polychronakis, Yiannis & Karami, Azhdar & Nikolopoulos, Konstantinos, 2022. "Relative performance of judgmental methods for forecasting the success of megaprojects," International Journal of Forecasting, Elsevier, vol. 38(3), pages 1185-1196.
    10. Nicholas Bagley & Benjamin Berger & Amitabh Chandra & Craig Garthwaite & Ariel D. Stern, 2018. "The Orphan Drug Act at 35: Observations and an Outlook for the Twenty-First Century," NBER Chapters, in: Innovation Policy and the Economy, Volume 19, pages 97-137, National Bureau of Economic Research, Inc.
    11. Philip Rogiers & Stijn Viaene & Jan Leysen, 2020. "The digital future of internal staffing: A vision for transformational electronic human resource management," Intelligent Systems in Accounting, Finance and Management, John Wiley & Sons, Ltd., vol. 27(4), pages 182-196, October.
    12. Yaniv, Ilan, 2011. "Group diversity and decision quality: Amplification and attenuation of the framing effect," International Journal of Forecasting, Elsevier, vol. 27(1), pages 41-49.
    13. Alyami, Saleh. H. & Rezgui, Yacine & Kwan, Alan, 2013. "Developing sustainable building assessment scheme for Saudi Arabia: Delphi consultation approach," Renewable and Sustainable Energy Reviews, Elsevier, vol. 27(C), pages 43-54.
    14. Jason C Hsu & Huai-Chueh Wu & Wen-Chia Feng & Chih-Ho Chou & Edward Chia-Cheng Lai & Christine Y Lu, 2018. "Disease and economic burden for rare diseases in Taiwan: A longitudinal study using Taiwan’s National Health Insurance Research Database," PLOS ONE, Public Library of Science, vol. 13(9), pages 1-14, September.
    15. Arkadiusz Wisniowski & Nico Keilman & Jakub Bijak & Solveig Christiansen & Jonathan J. Forster & Peter W.F Smith & James Raymer, 2012. "Augmenting migration statistics with expert knowledge," Norface Discussion Paper Series 2012005, Norface Research Programme on Migration, Department of Economics, University College London.
    16. Ngoy Kabemba S. & Chisumbe Sampa & Petere Gaida & Mwiya Balimu & Mwanaumo Erastus, 2023. "Factors Influencing Professional Indemnity Insurance Use in Construction Risk Management," Baltic Journal of Real Estate Economics and Construction Management, Sciendo, vol. 11(1), pages 199-220, January.
    17. Frederico Fernandes Ávila & Regina C. Alvalá & Rodolfo M. Mendes & Diogo J. Amore, 2024. "Socio-geoenvironmental vulnerability index (SGeoVI) derived from hybrid modeling related to populations at-risk to landslides," Natural Hazards: Journal of the International Society for the Prevention and Mitigation of Natural Hazards, Springer;International Society for the Prevention and Mitigation of Natural Hazards, vol. 120(9), pages 8121-8151, July.
    18. van Asselt, E.D. & Meuwissen, M.P.M. & van Asseldonk, M.A.P.M. & Sterrenburg, P. & Mengelers, M.J.B. & van der Fels-Klerx, H.J., 2011. "Approach for a pro-active emerging risk system on biofuel by-products in feed," Food Policy, Elsevier, vol. 36(3), pages 421-429, June.
    19. Makkonen, Mari & Pätäri, Satu & Jantunen, Ari & Viljainen, Satu, 2012. "Competition in the European electricity markets – outcomes of a Delphi study," Energy Policy, Elsevier, vol. 44(C), pages 431-440.
    20. Georg Aichholzer, 2002. "Das ExpertInnen-Delphi: methodische Grundlagen und Anwendungsfeld ‘Technology Foresight‘ (The Expert Delphi: Methodology and Application in 'Technology Foresight')," ITA manu:scripts 02_01, Institute of Technology Assessment (ITA).

    Corrections

    All material on this site has been provided by the respective publishers and authors. You can help correct errors and omissions. When requesting a correction, please mention this item's handle: RePEc:eee:hepoli:v:122:y:2018:i:6:p:590-598. See general information about how to correct material in RePEc.

    If you have authored this item and are not yet registered with RePEc, we encourage you to do it here. This allows to link your profile to this item. It also allows you to accept potential citations to this item that we are uncertain about.

    If CitEc recognized a bibliographic reference but did not link an item in RePEc to it, you can help with this form .

    If you know of missing items citing this one, you can help us creating those links by adding the relevant references in the same way as above, for each refering item. If you are a registered author of this item, you may also want to check the "citations" tab in your RePEc Author Service profile, as there may be some citations waiting for confirmation.

    For technical questions regarding this item, or to correct its authors, title, abstract, bibliographic or download information, contact: Catherine Liu or the person in charge (email available below). General contact details of provider: http://www.elsevier.com/locate/healthpol .

    Please note that corrections may take a couple of weeks to filter through the various RePEc services.

    IDEAS is a RePEc service. RePEc uses bibliographic data supplied by the respective publishers.