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The influence of regional health care structures on delay in diagnosis of rare diseases: The case of Marfan Syndrome

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  • Roll, Kathrin

Abstract

This study investigates the relative influence of the regional availability of health care resources (measured by physician densities, number of health care centers) on health care quality (measured by delay in diagnosis), based on data for the rare disease Marfan Syndrome.

Suggested Citation

  • Roll, Kathrin, 2012. "The influence of regional health care structures on delay in diagnosis of rare diseases: The case of Marfan Syndrome," Health Policy, Elsevier, vol. 105(2), pages 119-127.
    • Handle: RePEc:eee:hepoli:v:105:y:2012:i:2:p:119-127
    DOI: 10.1016/j.healthpol.2012.02.003
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    2. Ansgar Lange & Anne Prenzler & Oliver Bachmann & Roland Linder & Sarah Neubauer & Jan Zeidler & Michael Manns & J.-Matthias von der Schulenburg, 2015. "Regional differences in health care of patients with inflammatory bowel disease in Germany," Health Economics Review, Springer, vol. 5(1), pages 1-11, December.
    3. Juan Benito-Lozano & Greta Arias-Merino & Mario Gómez-Martínez & Alba Ancochea-Díaz & Aitor Aparicio-García & Manuel Posada de la Paz & Verónica Alonso-Ferreira, 2022. "Diagnostic Process in Rare Diseases: Determinants Associated with Diagnostic Delay," IJERPH, MDPI, vol. 19(11), pages 1-14, May.
    4. Mazumdar, Soumya & Winter, Alix & Liu, Ka-Yuet & Bearman, Peter, 2013. "Spatial clusters of autism births and diagnoses point to contextual drivers of increased prevalence," Social Science & Medicine, Elsevier, vol. 95(C), pages 87-96.
    5. Eibich, Peter & Ziebarth, Nicolas R., 2014. "Analyzing regional variation in health care utilization using (rich) household microdata," Health Policy, Elsevier, vol. 114(1), pages 41-53.
    6. Marcel Hanisch & Sabrina Wiemann & Susanne Jung & Johannes Kleinheinz & Lauren Bohner, 2018. "Oral Health-Related Quality of Life in People with Rare Hereditary Connective Tissue Disorders: Marfan Syndrome," IJERPH, MDPI, vol. 15(11), pages 1-8, October.

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