IDEAS home Printed from https://ideas.repec.org/a/eee/cysrev/v84y2018icp76-81.html
   My bibliography  Save this article

Unmet legal and social advocacy needs of children with sickle cell disease: Implications for health care payer costs

Author

Listed:
  • Sonik, Rajan A.
  • Teasdale, Sarah
  • Parish, Susan L.
  • Champigny, Maria
  • Sprinz, Philippa G.

Abstract

Previous studies of advocacy needs faced by children and families have not differentiated needs that require attorney involvement (“legal advocacy needs”) from needs best addressed by social workers or lay advocates (“social advocacy needs”). Studies have also not examined the relationship between either type of need and health care costs. We developed a novel, replicable process to differentiate between legal advocacy needs and social advocacy needs. We then collected cross-sectional data from a sample of 52 children with sickle cell disease who were at least 1year of age, a population with high advocacy needs and high health care costs. Mean annual health care costs to payers for children whose families had a least one legal advocacy need were $16,314, compared to $5552 for children in families with no legal advocacy needs (P=0.007). After adjusting for covariates, the presence of a legal advocacy need was associated with $12,040 more in health care costs to payers (P=0.02). Whether interventions to prevent and resolve legal advocacy needs can reduce health care costs by addressing the social determinants of health warrants future study.

Suggested Citation

  • Sonik, Rajan A. & Teasdale, Sarah & Parish, Susan L. & Champigny, Maria & Sprinz, Philippa G., 2018. "Unmet legal and social advocacy needs of children with sickle cell disease: Implications for health care payer costs," Children and Youth Services Review, Elsevier, vol. 84(C), pages 76-81.
    • Handle: RePEc:eee:cysrev:v:84:y:2018:i:c:p:76-81
    DOI: 10.1016/j.childyouth.2017.11.023
    as

    Download full text from publisher

    File URL: http://www.sciencedirect.com/science/article/pii/S0190740917307326
    Download Restriction: Full text for ScienceDirect subscribers only
    File URL: https://libkey.io/10.1016/j.childyouth.2017.11.023?utm_source=ideas
    LibKey link: if access is restricted and if your library uses this service, LibKey will redirect you to where you can use your library subscription to access this item
    ---><---

    As the access to this document is restricted, you may want to search for a different version of it.

    References listed on IDEAS

    as
    1. repec:mpr:mprres:5077 is not listed on IDEAS
    2. Alaimo, K. & Olson, C.M. & Frongillo E.A., Jr. & Briefel, R.R., 2001. "Food insufficiency, family income, and health in US preschool and school-aged children," American Journal of Public Health, American Public Health Association, vol. 91(5), pages 781-786.
    3. Sonik, R.A., 2016. "Massachusetts inpatient medicaid cost response to increased supplemental nutrition assistance program benefits," American Journal of Public Health, American Public Health Association, vol. 106(3), pages 443-448.
    Full references (including those not matched with items on IDEAS)

    Most related items

    These are the items that most often cite the same works as this one and are cited by the same works as this one.
    1. Brizmohun, Roshini & Duffy, Patricia A., 2016. "Do Personal Attitudes about Welfare Influence Food Stamp Participation?," 2016 Annual Meeting, July 31-August 2, Boston, Massachusetts 235698, Agricultural and Applied Economics Association.
    2. Gundersen, Craig & Jolliffe, Dean & Tiehen, Laura, 2009. "The challenge of program evaluation: When increasing program participation decreases the relative well-being of participants," Food Policy, Elsevier, vol. 34(4), pages 367-376, August.
    3. Yen-ju Lin & Chun-chih Chen, 2012. "Eating Behavior and the Utilization of Outpatient Services - The Case of Taiwan," Economics Bulletin, AccessEcon, vol. 32(3), pages 2181-2197.
    4. repec:pri:crcwel:wp11-02-ff is not listed on IDEAS
    5. W C J Grobler, 2018. "Coping Strategies and Household Dietary Diversity in a Low Income Neighborhood in South Africa," Proceedings of the 11th International RAIS Conference, November 19-20, 2018 05WG, Research Association for Interdisciplinary Studies.
    6. Daniel L. Millimet & Rusty Tchernis & Muna Husain, 2010. "School Nutrition Programs and the Incidence of Childhood Obesity," Journal of Human Resources, University of Wisconsin Press, vol. 45(3).
    7. Mammen, Sheila & Bauer, Jean W. & Richards, Leslie, 2008. "Understanding Persistent Food Insecurity: A Paradox of Place and Circumstance," Working Paper Series 42168, University of Massachusetts, Amherst, Department of Resource Economics.
    8. Nithya Shankar-Krishnan & Albert Fornieles Deu & David Sánchez-Carracedo, 2021. "Associations Between Food Insecurity And Psychological Wellbeing, Body Image, Disordered Eating And Dietary Habits: Evidence From Spanish Adolescents," Child Indicators Research, Springer;The International Society of Child Indicators (ISCI), vol. 14(1), pages 163-183, February.
    9. Zhiming Qiu & Chanjin Chung, 2017. "Effects of Food Assistance Programs, Demographic Characteristics, and Living Environments on Children¡¯s Food Insecurity," Applied Economics and Finance, Redfame publishing, vol. 4(4), pages 145-159, July.
    10. Katrina Kosec & Jie Song, 2021. "The effects of income fluctuations on undernutrition and overnutrition across the lifecycle," Health Economics, John Wiley & Sons, Ltd., vol. 30(10), pages 2487-2509, September.
    11. Jacknowitz, Alison & Morrissey, Taryn & Brannegan, Andrew, 2015. "Food insecurity across the first five years: Triggers of onset and exit," Children and Youth Services Review, Elsevier, vol. 53(C), pages 24-33.
    12. Victoria R. Carlisle & Patricia E. Jessiman & Katie Breheny & Rona Campbell & Russell Jago & Naomi Leonard & Marcus Robinson & Steve Strong & Judi Kidger, 2023. "A Mixed Methods, Quasi-Experimental Evaluation Exploring the Impact of a Secondary School Universal Free School Meals Intervention Pilot," IJERPH, MDPI, vol. 20(6), pages 1-15, March.
    13. Slack, Kristen Shook & Holl, Jane L. & Yoo, Joan & Amsden, Laura B. & Collins, Emily & Bolger, Kerry, 2007. "Welfare, work, and health care access predictors of low-income children's physical health outcomes," Children and Youth Services Review, Elsevier, vol. 29(6), pages 782-801, June.
    14. Rachel M. Scrivano & Jill J. Juris & Shannon E. Jarrott & Jennifer M. Lobb, 2022. "Extending the Together, We Inspire Smart Eating Curriculum to Intergenerational Nutrition Education: A Pilot Study," IJERPH, MDPI, vol. 19(15), pages 1-14, July.
    15. Gundersen, Craig & Kreider, Brent, 2009. "Bounding the effects of food insecurity on children's health outcomes," Journal of Health Economics, Elsevier, vol. 28(5), pages 971-983, September.
    16. Abouk, Rahi & Adams, Scott, 2022. "Breakfast After the Bell: The Effects of Expanding Access to School Breakfasts on the Weight and Achievement of Elementary School Children," Economics of Education Review, Elsevier, vol. 87(C).
    17. Alisha Coleman-Jensen, 2010. "U.S. Food Insecurity Status: Toward a Refined Definition," Social Indicators Research: An International and Interdisciplinary Journal for Quality-of-Life Measurement, Springer, vol. 95(2), pages 215-230, January.
    18. Dylan B. Jackson & Kevin M. Beaver, 2015. "The Influence of Nutritional Factors on Verbal Deficits and Psychopathic Personality Traits: Evidence of the Moderating Role of the MAOA Genotype," IJERPH, MDPI, vol. 12(12), pages 1-17, December.
    19. Mauricio Reis, 2012. "Food insecurity and the relationship between household income and children's health and nutrition in Brazil," Health Economics, John Wiley & Sons, Ltd., vol. 21(4), pages 405-427, April.
    20. Jansen, Erica C. & Kasper, Nicole & Lumeng, Julie C. & Brophy Herb, Holly E. & Horodynski, Mildred A. & Miller, Alison L. & Contreras, Dawn & Peterson, Karen E., 2017. "Changes in household food insecurity are related to changes in BMI and diet quality among Michigan Head Start preschoolers in a sex-specific manner," Social Science & Medicine, Elsevier, vol. 181(C), pages 168-176.
    21. Jionghua Wang & Bo Huang & Ting Zhang & Hung Wong & Yifan Huang, 2018. "Impact of Housing and Community Conditions on Multidimensional Health among Middle- and Low-Income Groups in Hong Kong," IJERPH, MDPI, vol. 15(6), pages 1-14, May.

    Corrections

    All material on this site has been provided by the respective publishers and authors. You can help correct errors and omissions. When requesting a correction, please mention this item's handle: RePEc:eee:cysrev:v:84:y:2018:i:c:p:76-81. See general information about how to correct material in RePEc.

    If you have authored this item and are not yet registered with RePEc, we encourage you to do it here. This allows to link your profile to this item. It also allows you to accept potential citations to this item that we are uncertain about.

    If CitEc recognized a bibliographic reference but did not link an item in RePEc to it, you can help with this form .

    If you know of missing items citing this one, you can help us creating those links by adding the relevant references in the same way as above, for each refering item. If you are a registered author of this item, you may also want to check the "citations" tab in your RePEc Author Service profile, as there may be some citations waiting for confirmation.

    For technical questions regarding this item, or to correct its authors, title, abstract, bibliographic or download information, contact: Catherine Liu (email available below). General contact details of provider: http://www.elsevier.com/locate/childyouth .

    Please note that corrections may take a couple of weeks to filter through the various RePEc services.

    IDEAS is a RePEc service. RePEc uses bibliographic data supplied by the respective publishers.