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Risk, trust, and altruism in genetic data sharing

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  • Zeeshan Samad
  • Myrna Wooders
  • Bradley Malin
  • Yevgeniy Vorobeychik

Abstract

How does concern about genetic data privacy compare with other concerns? We conduct behavioral experiments to compare risk attitudes towards sharing genetic data with a healthcare provider with risk attitudes towards sharing financial data with a money manager. Both scenarios involve identical decisions and monetary stakes, permitting us to focus on how the framing of data sharing influences attitudes. To delve deeper into individual motivations to share data, we provide treatments that study how data sharers' altruism and trust affect their decisions. Our findings (with 162 subjects) indicate that individuals are more willing to risk a loss to privacy of genetic data (for an anticipated return framed as health benefits) than they are to risk loss of financial data (for an anticipated return in financial benefits). We also find that 50%–60% of data recipients choose to protect another person's data, with no significant differences between frames.

Suggested Citation

  • Zeeshan Samad & Myrna Wooders & Bradley Malin & Yevgeniy Vorobeychik, 2023. "Risk, trust, and altruism in genetic data sharing," Journal of Public Economic Theory, Association for Public Economic Theory, vol. 25(6), pages 1251-1269, December.
    • Handle: RePEc:bla:jpbect:v:25:y:2023:i:6:p:1251-1269
    DOI: 10.1111/jpet.12678
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