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Radical collaboration during a global health emergency: development of the RDA COVID-19 data sharing recommendations and guidelines

Author

Listed:
  • Brian Pickering
  • Timea Biro
  • Claire Austin
  • Alexander Bernier
  • Louise Bezuidenhout

    (University of Oxford)

  • Carlos Casorrán

    (ULB - Département d'Informatique [Bruxelles] - ULB - Faculté des Sciences [Bruxelles] - ULB - Université libre de Bruxelles)

  • Francis Crawley
  • Romain David

    (ERINHA-AISBL - European Research Infrastructure on Highly Pathogenic Agents)

  • Claudia Engelhardt

    (SUB Göttingen - Göttingen State and University Library - Georg-August-University = Georg-August-Universität Göttingen)

  • Geta Mitrea
  • Ingvill Constanze Mochmann
  • Rajini Nagrani
  • Mary O'Brien-Uhlmansiek
  • Simon Parker

    (DKFZ - German Cancer Research Center - Deutsches Krebsforschungszentrum [Heidelberg])

  • Minglu Wang
  • Leyla Jael Castro
  • Zoe Cournia
  • Kheeran Dharmawardena
  • Gayo Diallo

    (BPH - Bordeaux population health - UB - Université de Bordeaux - Institut de Santé Publique, d'Épidémiologie et de Développement (ISPED) - INSERM - Institut National de la Santé et de la Recherche Médicale)

  • Ingrid Dillo

    (DANS-KNAW - Data Archiving and Networked Services - KNAW - Royal Netherlands Academy of Arts and Sciences)

  • Alejandra Gonzalez-Beltran
  • Anupama Gururaj
  • Sridhar Gutam
  • Natalie Harrower
  • Jitendra Jonnagaddala
  • Katherine Mcneill
  • Daniel Mietchen
  • Amy Pienta
  • Panayiota Polydoratou
  • Marcos Roberto Tovani-Palone

Abstract

Background: The coronavirus disease 2019 (COVID-19) global pandemic required a rapid and effective response. This included ethical and legally appropriate sharing of data. The European Commission (EC) called upon the Research Data Alliance (RDA) to recruit experts worldwide to quickly develop recommendations and guidelines for COVID-related data sharing. Purpose: The purpose of the present work was to explore how the RDA succeeded in engaging the participation of its community of scientists in a rapid response to the EC request. Methods: A survey questionnaire was developed and distributed among RDA COVID-19 work group members. A mixed-methods approach was used for analysis of the survey data. Results: The three constructs of radical collaboration (inclusiveness, distributed digital practices, productive and sustainable collaboration) were found to be well supported in both the quantitative and qualitative analyses of the survey data. Other social factors, such as motivation and group identity were also found to be important to the success of this extreme collaborative effort. Conclusions: Recommendations and suggestions for future work were formulated for consideration by the RDA to strengthen effective expert collaboration and interdisciplinary efforts.

Suggested Citation

  • Brian Pickering & Timea Biro & Claire Austin & Alexander Bernier & Louise Bezuidenhout & Carlos Casorrán & Francis Crawley & Romain David & Claudia Engelhardt & Geta Mitrea & Ingvill Constanze Mochman, 2021. "Radical collaboration during a global health emergency: development of the RDA COVID-19 data sharing recommendations and guidelines," Post-Print hal-03663823, HAL.
    • Handle: RePEc:hal:journl:hal-03663823
    DOI: 10.12688/openreseurope.13369.1
    Note: View the original document on HAL open archive server: https://hal.science/hal-03663823
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    References listed on IDEAS

    as
    1. Bo Xie & Daqing He & Tim Mercer & Youfa Wang & Dan Wu & Kenneth R. Fleischmann & Yan Zhang & Linda H. Yoder & Keri K. Stephens & Michael Mackert & Min Kyung Lee, 2020. "Global health crises are also information crises: A call to action," Journal of the Association for Information Science & Technology, Association for Information Science & Technology, vol. 71(12), pages 1419-1423, December.
    2. Guo, Y. & Kopec, J.A. & Cibere, J. & Li, L.C. & Goldsmith, C.H., 2016. "Population survey features and response rates: A randomized experiment," American Journal of Public Health, American Public Health Association, vol. 106(8), pages 1422-1426.
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