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Gaining insight into the supportive care needs of women experiencing gynaecological cancer: A qualitative study

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  • Natalie Williams
  • Georgia Griffin
  • Victoria Farrell
  • Yvonne L. Hauck

Abstract

Aim and objectives To gain insight into the supportive care needs of Western Australian women experiencing gynaecological cancer. Background Meeting the supportive care needs of people living with cancer is becoming increasingly important as advances in cancer treatment contribute to growing numbers of survivors. International evidence suggests between 24%–56% of women with gynaecological cancer have unmet supportive care needs and that psychological challenges, information provision and holistic care are priorities. No qualitative investigation has previously explored women's journey of gynaecological cancer within the Australian setting. Design A qualitative descriptive design was used. Methods Women treated for gynaecological cancer were recruited from a tertiary public women's hospital in Western Australia. Thematic analysis was conducted on qualitative data collected from 190 women over 12 months through written open‐ended survey responses and telephone interviews. The COnsolidated criteria for REporting Qualitative research (COREQ) guided presentation of results. Results Analysis yielded five themes and four subthemes: (a) Communication style directs the experience (subthemes: feeling supported; absence of empathy); (b) It's not just about the disease (subthemes: life has changed; holistic care); (c) A desire for information; (d) Drawing upon resilience; and (e) Navigating the system. Discussion Exploration of the women's needs leads to the discussion of three concepts. Communication styles, harnessing women's resilience and alternative models of care are evaluated for their capacity to improve care and women's quality of life into survivorship. Recommendations are made for further research and possible interventions that can be translated into the clinical setting. Conclusion Women with gynaecological cancer described complex often unmet supportive care needs and interactions with the healthcare system. Insight gained directs suggestions for improved service provision. Relevance to clinical practice Improved patient‐centred communication, harnessing resilience as a resource and alternative models of care for follow‐up are encouraged as areas of improvement for clinicians and care services.

Suggested Citation

  • Natalie Williams & Georgia Griffin & Victoria Farrell & Yvonne L. Hauck, 2020. "Gaining insight into the supportive care needs of women experiencing gynaecological cancer: A qualitative study," Journal of Clinical Nursing, John Wiley & Sons, vol. 29(9-10), pages 1684-1694, May.
  • Handle: RePEc:wly:jocnur:v:29:y:2020:i:9-10:p:1684-1694
    DOI: 10.1111/jocn.15221
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    References listed on IDEAS

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    1. Memnun Seven & Eda Sahin & Sakine Yilmaz & Aygul Akyuz, 2016. "Palliative care needs of patients with gynaecologic cancer," Journal of Clinical Nursing, John Wiley & Sons, vol. 25(21-22), pages 3152-3159, November.
    2. Zenobia Chan & Carmen Kan & Patrick Lee & Isabel Chan & Joyce Lam, 2012. "A systematic review of qualitative studies: patients’ experiences of preoperative communication," Journal of Clinical Nursing, John Wiley & Sons, vol. 21(5‐6), pages 812-824, March.
    3. Olivia Cook & Meredith McIntyre & Katrina Recoche, 2015. "Exploration of the role of specialist nurses in the care of women with gynaecological cancer: a systematic review," Journal of Clinical Nursing, John Wiley & Sons, vol. 24(5-6), pages 683-695, March.
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