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Optimising compassionate nursing care at the end of life in hospital settings

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Listed:
  • Jackie Robinson
  • Tess Moeke‐Maxell
  • Jenny Parr
  • Julia Slark
  • Stella Black
  • Lisa Williams
  • Merryn Gott

Abstract

Background An urgent need to improve palliative care in hospital has been identified. Moreover, service users consistently report care delivered by nurses in hospital as lacking compassion. Compassion is a fundamental component of nursing care, and promoting compassionate care has been identified as a policy priority in many countries. To help address this within the hospital context, we recently completed research exploring bereaved family experiences of good end of life care in hospital. We found that family accounts of good care aligned with Nolan and Dewar's compassionate care framework and subsequently extended the framework to the bi‐cultural context of Aotearoa, New Zealand. Aims and objectives In this discussion paper, we explore synergies between our newly developed Kapakapa Manawa Framework: a bi‐cultural approach to providing compassionate care at the end of life and the Fundamentals of Care. We argue that our framework can be used to support the implementation of the relational component of the Fundamentals of Care and the delivery of compassionate nursing practice in hospitals in Aotearoa, New Zealand. Design Discussion paper. Methods Review of relevant literature and construction of two vignettes describing good end of life care from the perspectives of bereaved family—one Māori and one non‐Māori. The vignettes provide practical examples of how the values of the Kapakapa Manawa Framework can be enacted by nurses to provide compassionate care in alignment with the relationship component of the Fundamentals of Care. Conclusions Whilst the Kapakapa Manawa bi‐cultural compassionate care framework has grown out of research conducted with people nearing the end of their lives, it has the potential to improve nursing care for all hospital inpatients. Relevance to clinical practice Addressing the wider policy and health system factors detailed in the Fundamentals of Care will support its implementation in the clinical setting.

Suggested Citation

  • Jackie Robinson & Tess Moeke‐Maxell & Jenny Parr & Julia Slark & Stella Black & Lisa Williams & Merryn Gott, 2020. "Optimising compassionate nursing care at the end of life in hospital settings," Journal of Clinical Nursing, John Wiley & Sons, vol. 29(11-12), pages 1788-1796, June.
  • Handle: RePEc:wly:jocnur:v:29:y:2020:i:11-12:p:1788-1796
    DOI: 10.1111/jocn.15050
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    References listed on IDEAS

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    1. Alison L. Kitson & Åsa Muntlin Athlin, 2013. "Development and Preliminary Testing of a Framework to Evaluate Patients' Experiences of the Fundamentals of Care: A Secondary Analysis of Three Stroke Survivor Narratives," Nursing Research and Practice, Hindawi, vol. 2013, pages 1-12, June.
    2. Joanne Durkin & Kim Usher & Debra Jackson, 2019. "Embodying compassion: A systematic review of the views of nurses and patients," Journal of Clinical Nursing, John Wiley & Sons, vol. 28(9-10), pages 1380-1392, May.
    3. Durie, M. H., 1985. "A Maori perspective of health," Social Science & Medicine, Elsevier, vol. 20(5), pages 483-486, January.
    4. Louise Bramley & Milika Matiti, 2014. "How does it really feel to be in my shoes? Patients' experiences of compassion within nursing care and their perceptions of developing compassionate nurses," Journal of Clinical Nursing, John Wiley & Sons, vol. 23(19-20), pages 2790-2799, October.
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