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Spirituality and religiosity of non‐directed (altruistic) living kidney donors

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Listed:
  • Ariella Maghen
  • Grecia B Vargas
  • Sarah E Connor
  • Sima Nassiri
  • Elisabeth M Hicks
  • Lorna Kwan
  • Amy D Waterman
  • Sally L Maliski
  • Jeffrey L Veale

Abstract

Aims and objectives To describe the spirituality and religiosity of 30 non‐directed (altruistic) living kidney donors in the USA and explore how they may have affected their motivations to donate and donation process experiences. Background The rise in non‐directed donors and their ability to initiate kidney chains offer a novel approach to help alleviate the overextended kidney transplant wait list in the USA. However, little is known about the non‐directed donors’ motivations, characteristics and experiences. Design We conducted a qualitative‐dominant study and used a grounded theory approach to analyse data. Methods Thirty participants completed in‐depth interviews between April 2013–April 2015. Three analysts independently read and coded interview transcripts. Grounded theory techniques were used to develop descriptive categories and identify topics related to the non‐directed donors donation experience. Results Sixteen of the 30 non‐directed donorss discussed the topic of spirituality and religiosity when describing their donation experiences, regardless of whether they were actively practising a religion at the time of donation. Specifically, three themes were identified within spirituality and religiosity: motivation to donate, support in the process, and justification of their donation decisions postdonation. Conclusions Findings from this study are the first to describe how spirituality and religiosity influenced the experiences of U.S. non‐directed donorss and may help improve non‐directed donors educational resources for future spiritual or religious non‐directed donors, and the overall non‐directed donors donation experience in efforts to increase the living donor pool. Relevance to clinical practice Spirituality and religiosity are often overlooked yet potentially influential factors in Western medicine, as demonstrated through the experiences of Jehovah's Witnesses and their religious restrictions while undergoing surgery and the beliefs of Christian Scientists against taking medications and receiving medical procedures. Understanding needs of non‐directed donors specifically with spirituality and religiosity can better position kidney transplant centres and teams to improve predonation screening of non‐directed donor candidates and provide support services during the donation process.

Suggested Citation

  • Ariella Maghen & Grecia B Vargas & Sarah E Connor & Sima Nassiri & Elisabeth M Hicks & Lorna Kwan & Amy D Waterman & Sally L Maliski & Jeffrey L Veale, 2018. "Spirituality and religiosity of non‐directed (altruistic) living kidney donors," Journal of Clinical Nursing, John Wiley & Sons, vol. 27(7-8), pages 1662-1672, April.
  • Handle: RePEc:wly:jocnur:v:27:y:2018:i:7-8:p:1662-1672
    DOI: 10.1111/jocn.14223
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    References listed on IDEAS

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    1. Rees, Michael Kenneth & Kopke, Jonathan E. & Pelletier, Ronald P. & Segev, Dorry L. & Rutter, Matthew E. & Fabrega, Alfredo J. & Rogers, Jeffrey David & Pankewycz, Oleh G. & Hiller, Janet & Roth, Alvi, 2009. "A Nonsimultaneous, Extended, Altruistic-Donor Chain," Scholarly Articles 29408291, Harvard University Department of Economics.
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