IDEAS home Printed from https://ideas.repec.org/a/wly/hlthec/v30y2021i9p1990-2003.html
   My bibliography  Save this article

Challenges in developing capability measures for children and young people for use in the economic evaluation of health and care interventions

Author

Listed:
  • Paul Mark Mitchell
  • Samantha Husbands
  • Sarah Byford
  • Philip Kinghorn
  • Cara Bailey
  • Tim J. Peters
  • Joanna Coast

Abstract

Methods for measuring outcomes suitable for economic evaluations of health and care interventions have primarily focused on adults. The validity of such methods for children and young people is questionable in areas including the outcome domains measured and how they are measured and valued, with most existing measures narrowly focusing on health. Novel methods for assessing benefits beyond health by focusing on a person's capability have also concentrated on adults to date. This paper aims to set out the rationale for capability measures in children and young people. It argues for the need to expand the evaluative space beyond health functioning towards broader capabilities, with children and young people playing an integral role in capability measure development. Drawing from existing literature, specific challenges related to the identification, measurement, and valuation of capabilities in children and young people are also discussed. Finally, the practical implications for conducting economic evaluation when measuring and valuing capabilities at different stages across the life‐course are illustrated. We develop an alternative framework based on conceiving capabilities as evolving across the life‐course. This framework may also be helpful in thinking about how to model health outcomes across the life‐course.

Suggested Citation

  • Paul Mark Mitchell & Samantha Husbands & Sarah Byford & Philip Kinghorn & Cara Bailey & Tim J. Peters & Joanna Coast, 2021. "Challenges in developing capability measures for children and young people for use in the economic evaluation of health and care interventions," Health Economics, John Wiley & Sons, Ltd., vol. 30(9), pages 1990-2003, September.
  • Handle: RePEc:wly:hlthec:v:30:y:2021:i:9:p:1990-2003
    DOI: 10.1002/hec.4363
    as

    Download full text from publisher

    File URL: https://doi.org/10.1002/hec.4363
    Download Restriction: no

    File URL: https://libkey.io/10.1002/hec.4363?utm_source=ideas
    LibKey link: if access is restricted and if your library uses this service, LibKey will redirect you to where you can use your library subscription to access this item
    ---><---

    References listed on IDEAS

    as
    1. MacKillop, Eleanor & Sheard, Sally, 2018. "Quantifying life: Understanding the history of Quality-Adjusted Life-Years (QALYs)," Social Science & Medicine, Elsevier, vol. 211(C), pages 359-366.
    2. Comim,Flavio & Qizilbash,Mozaffar & Alkire,Sabina (ed.), 2008. "The Capability Approach," Cambridge Books, Cambridge University Press, number 9780521862875, October.
    3. Paul Anand & Laurence S. J. Roope & Anthony J. Culyer & Ron Smith, 2020. "Disability and multidimensional quality of life: A capability approach to health status assessment," Health Economics, John Wiley & Sons, Ltd., vol. 29(7), pages 748-765, July.
    4. Al-Janabi, Hareth & Keeley, Thomas & Mitchell, Paul & Coast, Joanna, 2013. "Can capabilities be self-reported? A think aloud study," Social Science & Medicine, Elsevier, vol. 87(C), pages 116-122.
    5. Simon, Judit & Anand, Paul & Gray, Alastair & Rugkåsa, Jorun & Yeeles, Ksenija & Burns, Tom, 2013. "Operationalising the capability approach for outcome measurement in mental health research," Social Science & Medicine, Elsevier, vol. 98(C), pages 187-196.
    6. Gang Chen & Julie Ratcliffe, 2015. "A Review of the Development and Application of Generic Multi-Attribute Utility Instruments for Paediatric Populations," PharmacoEconomics, Springer, vol. 33(10), pages 1013-1028, October.
    7. Caroline Sarojini Hart, 2016. "How Do Aspirations Matter?," Journal of Human Development and Capabilities, Taylor & Francis Journals, vol. 17(3), pages 324-341, July.
    8. Amartya Sen, 2004. "Capabilities, Lists, And Public Reason: Continuing The Conversation," Feminist Economics, Taylor & Francis Journals, vol. 10(3), pages 77-80.
    9. Jeff Richardson & Angelo Iezzi & Munir A. Khan & Gang Chen & Aimee Maxwell, 2016. "Measuring the Sensitivity and Construct Validity of 6 Utility Instruments in 7 Disease Areas," Medical Decision Making, , vol. 36(2), pages 147-159, February.
    10. Greco, Giulia & Skordis-Worrall, Jolene & Mkandawire, Bryan & Mills, Anne, 2015. "What is a good life? Selecting capabilities to assess women's quality of life in rural Malawi," Social Science & Medicine, Elsevier, vol. 130(C), pages 69-78.
    11. Pickles, Kristen & Lancsar, Emily & Seymour, Janelle & Parkin, David & Donaldson, Cam & Carter, Stacy M., 2019. "Accounts from developers of generic health state utility instruments explain why they produce different QALYs: A qualitative study," Social Science & Medicine, Elsevier, vol. 240(C).
    12. Giulia Greco & Paula Lorgelly & Inthira Yamabhai, 2016. "Outcomes in Economic Evaluations of Public Health Interventions in Low‐ and Middle‐Income Countries: Health, Capabilities and Subjective Wellbeing," Health Economics, John Wiley & Sons, Ltd., vol. 25(S1), pages 83-94, February.
    13. Kinghorn, Philip, 2019. "Using deliberative methods to establish a sufficient state of capability well-being for use in decision-making in the contexts of public health and social care," Social Science & Medicine, Elsevier, vol. 240(C).
    14. Sepideh Yousefzadeh & Mario Biggeri & Caterina Arciprete & Hinke Haisma, 2019. "A Capability Approach to Child Growth," Child Indicators Research, Springer;The International Society of Child Indicators (ISCI), vol. 12(2), pages 711-731, April.
    15. Khadka, Jyoti & Kwon, Joseph & Petrou, Stavros & Lancsar, Emily & Ratcliffe, Julie, 2019. "Mind the (inter-rater) gap. An investigation of self-reported versus proxy-reported assessments in the derivation of childhood utility values for economic evaluation: A systematic review," Social Science & Medicine, Elsevier, vol. 240(C).
    16. Flavio Cunha & James J. Heckman & Susanne M. Schennach, 2010. "Estimating the Technology of Cognitive and Noncognitive Skill Formation," Econometrica, Econometric Society, vol. 78(3), pages 883-931, May.
    17. Terry N. Flynn & Elisabeth Huynh & Tim J. Peters & Hareth Al‐Janabi & Sam Clemens & Alison Moody & Joanna Coast, 2015. "Scoring the Icecap‐a Capability Instrument. Estimation of a UK General Population Tariff," Health Economics, John Wiley & Sons, Ltd., vol. 24(3), pages 258-269, March.
    18. Torbjørn Wisløff & Gunhild Hagen & Vida Hamidi & Espen Movik & Marianne Klemp & Jan Olsen, 2014. "Estimating QALY Gains in Applied Studies: A Review of Cost-Utility Analyses Published in 2010," PharmacoEconomics, Springer, vol. 32(4), pages 367-375, April.
    19. Donna Rowen & Oliver Rivero-Arias & Nancy Devlin & Julie Ratcliffe, 2020. "Review of Valuation Methods of Preference-Based Measures of Health for Economic Evaluation in Child and Adolescent Populations: Where are We Now and Where are We Going?," PharmacoEconomics, Springer, vol. 38(4), pages 325-340, April.
    20. John Brazier & Aki Tsuchiya, 2015. "Improving Cross-Sector Comparisons: Going Beyond the Health-Related QALY," Applied Health Economics and Health Policy, Springer, vol. 13(6), pages 557-565, December.
    21. Ingrid Robeyns, 2003. "Sen'S Capability Approach And Gender Inequality: Selecting Relevant Capabilities," Feminist Economics, Taylor & Francis Journals, vol. 9(2-3), pages 61-92.
    22. Mitchell, Paul Mark & Roberts, Tracy E. & Barton, Pelham M. & Coast, Joanna, 2015. "Assessing sufficient capability: A new approach to economic evaluation," Social Science & Medicine, Elsevier, vol. 139(C), pages 71-79.
    23. Jaya Krishnakumar, 2007. "Going Beyond Functionings to Capabilities: An Econometric Model to Explain and Estimate Capabilities," Journal of Human Development and Capabilities, Taylor & Francis Journals, vol. 8(1), pages 39-63.
    24. Anand, Paul & Dolan, Paul, 2005. "Equity, capabilities and health," Social Science & Medicine, Elsevier, vol. 60(2), pages 219-222, January.
    25. Mario Biggeri & Renato Libanora & Stefano Mariani & Leonardo Menchini, 2006. "Children Conceptualizing their Capabilities: Results of a Survey Conducted during the First Children's World Congress on Child Labour," Journal of Human Development and Capabilities, Taylor & Francis Journals, vol. 7(1), pages 59-83.
    26. Julie Ratcliffe & Leah Couzner & Terry Flynn & Michael Sawyer & Katherine Stevens & John Brazier & Leonie Burgess, 2011. "Valuing child health utility 9D health states with a young adolescent sample," Applied Health Economics and Health Policy, Springer, vol. 9(1), pages 15-27, January.
    27. Donna Rowen & Ismail Azzabi Zouraq & Helene Chevrou-Severac & Ben Hout, 2017. "International Regulations and Recommendations for Utility Data for Health Technology Assessment," PharmacoEconomics, Springer, vol. 35(1), pages 11-19, December.
    28. Kim Dalziel & Max Catchpool & Borja García-Lorenzo & Inigo Gorostiza & Richard Norman & Oliver Rivero-Arias, 2020. "Feasibility, Validity and Differences in Adolescent and Adult EQ-5D-Y Health State Valuation in Australia and Spain: An Application of Best–Worst Scaling," PharmacoEconomics, Springer, vol. 38(5), pages 499-513, May.
    29. Lorgelly, Paula K. & Lorimer, Karen & Fenwick, Elisabeth A.L. & Briggs, Andrew H. & Anand, Paul, 2015. "Operationalising the capability approach as an outcome measure in public health: The development of the OCAP-18," Social Science & Medicine, Elsevier, vol. 142(C), pages 68-81.
    30. Paul Anand & Laurence Roope, 2016. "The development and happiness of very young children," Social Choice and Welfare, Springer;The Society for Social Choice and Welfare, vol. 47(4), pages 825-851, December.
    31. Grewal, Ini & Lewis, Jane & Flynn, Terry & Brown, Jackie & Bond, John & Coast, Joanna, 2006. "Developing attributes for a generic quality of life measure for older people: Preferences or capabilities?," Social Science & Medicine, Elsevier, vol. 62(8), pages 1891-1901, April.
    32. Giulia Greco, 2018. "Setting the Weights: The Women’s Capabilities Index for Malawi," Social Indicators Research: An International and Interdisciplinary Journal for Quality-of-Life Measurement, Springer, vol. 135(2), pages 457-478, January.
    33. Joanna Coast, 2019. "Assessing capability in economic evaluation: a life course approach?," The European Journal of Health Economics, Springer;Deutsche Gesellschaft für Gesundheitsökonomie (DGGÖ), vol. 20(6), pages 779-784, August.
    34. Richard Cookson, 2005. "QALYs and the capability approach," Health Economics, John Wiley & Sons, Ltd., vol. 14(8), pages 817-829, August.
    35. John Dagsvik, 2013. "Making Sen’s capability approach operational: a random scale framework," Theory and Decision, Springer, vol. 74(1), pages 75-105, January.
    36. Culyer, A J, 1989. "The Normative Economics of Health Care Finance and Provision," Oxford Review of Economic Policy, Oxford University Press and Oxford Review of Economic Policy Limited, vol. 5(1), pages 34-58, Spring.
    37. Huynh, Elisabeth & Coast, Joanna & Rose, John & Kinghorn, Philip & Flynn, Terry, 2017. "Values for the ICECAP-Supportive Care Measure (ICECAP-SCM) for use in economic evaluation at end of life," Social Science & Medicine, Elsevier, vol. 189(C), pages 114-128.
    38. Joanna Coast & Cara Bailey & Rosanna Orlando & Kathy Armour & Rachel Perry & Louise Jones & Philip Kinghorn, 2018. "Adaptation, Acceptance and Adaptive Preferences in Health and Capability Well-Being Measurement Amongst Those Approaching End of Life," The Patient: Patient-Centered Outcomes Research, Springer;International Academy of Health Preference Research, vol. 11(5), pages 539-546, October.
    39. Sudhir Anand and Amartya Sen, 1994. "Human development Index: Methodology and Measurement," Human Development Occasional Papers (1992-2007) HDOCPA-1994-02, Human Development Report Office (HDRO), United Nations Development Programme (UNDP).
    40. Miriam Teschl & Flavio Comim, 2005. "Adaptive Preferences and Capabilities: Some Preliminary Conceptual Explorations," Review of Social Economy, Taylor & Francis Journals, vol. 63(2), pages 229-247.
    41. Joanna Coast & Richard Smith & Paula Lorgelly, 2008. "Should the capability approach be applied in Health Economics?," Health Economics, John Wiley & Sons, Ltd., vol. 17(6), pages 667-670, June.
    42. Giulia Greco & Paula Lorgelly & Inthira Yamabhai, 2016. "Outcomes in Economic Evaluations of Public Health Interventions in Low‐ and Middle‐Income Countries: Health, Capabilities and Subjective Wellbeing," Health Economics, John Wiley & Sons, Ltd., vol. 25, pages 83-94, February.
    43. Julie Ratcliffe & Elisabeth Huynh & Katherine Stevens & John Brazier & Michael Sawyer & Terry Flynn, 2016. "Nothing About Us Without Us? A Comparison of Adolescent and Adult Health‐State Values for the Child Health Utility‐9D Using Profile Case Best–Worst Scaling," Health Economics, John Wiley & Sons, Ltd., vol. 25(4), pages 486-496, April.
    44. Rob Arbuckle & Linda Abetz-Webb, 2013. "“Not Just Little Adults”: Qualitative Methods to Support the Development of Pediatric Patient-Reported Outcomes," The Patient: Patient-Centered Outcomes Research, Springer;International Academy of Health Preference Research, vol. 6(3), pages 143-159, September.
    45. Drummond, Michael F. & Sculpher, Mark J. & Claxton, Karl & Stoddart, Greg L. & Torrance, George W., 2015. "Methods for the Economic Evaluation of Health Care Programmes," OUP Catalogue, Oxford University Press, edition 4, number 9780199665884.
    46. Coast, Joanna & Flynn, Terry N. & Natarajan, Lucy & Sproston, Kerry & Lewis, Jane & Louviere, Jordan J. & Peters, Tim J., 2008. "Valuing the ICECAP capability index for older people," Social Science & Medicine, Elsevier, vol. 67(5), pages 874-882, September.
    Full references (including those not matched with items on IDEAS)

    Citations

    Citations are extracted by the CitEc Project, subscribe to its RSS feed for this item.
    as


    Cited by:

    1. Husbands, Samantha & Mitchell, Paul Mark & Kinghorn, Philip & Byford, Sarah & Bailey, Cara & Anand, Paul & Peters, Tim J. & Floredin, Isabella & Coast, Joanna, 2024. "Is well-becoming important for children and young people? Evidence from in-depth interviews with children and young people and their parents," LSE Research Online Documents on Economics 122060, London School of Economics and Political Science, LSE Library.

    Most related items

    These are the items that most often cite the same works as this one and are cited by the same works as this one.
    1. Joanna Coast, 2019. "Assessing capability in economic evaluation: a life course approach?," The European Journal of Health Economics, Springer;Deutsche Gesellschaft für Gesundheitsökonomie (DGGÖ), vol. 20(6), pages 779-784, August.
    2. Mitchell, Paul Mark & Roberts, Tracy E. & Barton, Pelham M. & Coast, Joanna, 2015. "Assessing sufficient capability: A new approach to economic evaluation," Social Science & Medicine, Elsevier, vol. 139(C), pages 71-79.
    3. Paul Anand & Laurence S. J. Roope & Anthony J. Culyer & Ron Smith, 2020. "Disability and multidimensional quality of life: A capability approach to health status assessment," Health Economics, John Wiley & Sons, Ltd., vol. 29(7), pages 748-765, July.
    4. Giulia Greco, 2018. "Setting the Weights: The Women’s Capabilities Index for Malawi," Social Indicators Research: An International and Interdisciplinary Journal for Quality-of-Life Measurement, Springer, vol. 135(2), pages 457-478, January.
    5. Coast, Joanna, 2018. "A history that goes hand in hand: Reflections on the development of health economics and the role played by Social Science & Medicine, 1967–2017," Social Science & Medicine, Elsevier, vol. 196(C), pages 227-232.
    6. Hareth Al‐Janabi, 2018. "Do capability and functioning differ? A study of U.K. survey responses," Health Economics, John Wiley & Sons, Ltd., vol. 27(3), pages 465-479, March.
    7. Enrica Chiappero‐Martinetti & Paola Salardi & Francesco Scervini, 2019. "Estimating conversion rates: A new empirical strategy with an application to health care in Italy," Health Economics, John Wiley & Sons, Ltd., vol. 28(6), pages 748-764, June.
    8. Kibel, Mia & Vanstone, Meredith, 2017. "Reconciling ethical and economic conceptions of value in health policy using the capabilities approach: A qualitative investigation of Non-Invasive Prenatal Testing," Social Science & Medicine, Elsevier, vol. 195(C), pages 97-104.
    9. Coast, Joanna & Smith, Richard D. & Lorgelly, Paula, 2008. "Welfarism, extra-welfarism and capability: The spread of ideas in health economics," Social Science & Medicine, Elsevier, vol. 67(7), pages 1190-1198, October.
    10. Wildman, John & McMeekin, Peter & Grieve, Eleanor & Briggs, Andrew, 2016. "Economic evaluation of integrated new technologies for health and social care: Suggestions for policy makers, users and evaluators," Social Science & Medicine, Elsevier, vol. 169(C), pages 141-148.
    11. Myles-Jay Linton & Paul Mark Mitchell & Hareth Al-Janabi & Michael Schlander & Jeff Richardson & Angelo Iezzi & Jasper Ubels & Joanna Coast, 2020. "Comparing the German Translation of the ICECAP-A Capability Wellbeing Measure to the Original English Version: Psychometric Properties across Healthy Samples and Seven Health Condition Groups," Applied Research in Quality of Life, Springer;International Society for Quality-of-Life Studies, vol. 15(3), pages 651-673, July.
    12. Paul Mark Mitchell & Tracy E. Roberts & Pelham M. Barton & Joanna Coast, 2017. "Applications of the Capability Approach in the Health Field: A Literature Review," Social Indicators Research: An International and Interdisciplinary Journal for Quality-of-Life Measurement, Springer, vol. 133(1), pages 345-371, August.
    13. Mohammad Abu-Zaineh & Maame Esi Woode, 2018. "Investigating the Dimensions of Youth Wellbeing: An Exploratory Structural Equation Modelling Approach Applied to Palestine," Child Indicators Research, Springer;The International Society of Child Indicators (ISCI), vol. 11(1), pages 57-78, February.
    14. Marco Ricardo Téllez Cabrera, 2018. "Giving arguments to operationalize health capabilities in economic evaluations of health interventions," Journal of Social and Economic Development, Springer;Institute for Social and Economic Change, vol. 20(2), pages 240-255, October.
    15. Ilias Goranitis & Joanna Coast & Ed Day & Alex Copello & Nick Freemantle & Emma Frew, 2017. "Maximizing Health or Sufficient Capability in Economic Evaluation? A Methodological Experiment of Treatment for Drug Addiction," Medical Decision Making, , vol. 37(5), pages 498-511, July.
    16. Paula Lorgelly, 2015. "Choice of Outcome Measure in an Economic Evaluation: A Potential Role for the Capability Approach," PharmacoEconomics, Springer, vol. 33(8), pages 849-855, August.
    17. Ian Ross & Giulia Greco & Charles Opondo & Zaida Adriano & Rassul Nala & Joe Brown & Robert Dreibelbis & Oliver Cumming, 2022. "Measuring and valuing broader impacts in public health: Development of a sanitation‐related quality of life instrument in Maputo, Mozambique," Health Economics, John Wiley & Sons, Ltd., vol. 31(3), pages 466-480, March.
    18. Lorgelly, Paula K. & Lorimer, Karen & Fenwick, Elisabeth A.L. & Briggs, Andrew H. & Anand, Paul, 2015. "Operationalising the capability approach as an outcome measure in public health: The development of the OCAP-18," Social Science & Medicine, Elsevier, vol. 142(C), pages 68-81.
    19. Simon, Judit & Anand, Paul & Gray, Alastair & Rugkåsa, Jorun & Yeeles, Ksenija & Burns, Tom, 2013. "Operationalising the capability approach for outcome measurement in mental health research," Social Science & Medicine, Elsevier, vol. 98(C), pages 187-196.
    20. Gang Chen & Julie Ratcliffe & Billingsley Kaambwa & Nikki McCaffrey & Jeff Richardson, 2018. "Empirical Comparison Between Capability and Two Health-Related Quality of Life Measures," Social Indicators Research: An International and Interdisciplinary Journal for Quality-of-Life Measurement, Springer, vol. 140(1), pages 175-190, November.

    More about this item

    Statistics

    Access and download statistics

    Corrections

    All material on this site has been provided by the respective publishers and authors. You can help correct errors and omissions. When requesting a correction, please mention this item's handle: RePEc:wly:hlthec:v:30:y:2021:i:9:p:1990-2003. See general information about how to correct material in RePEc.

    If you have authored this item and are not yet registered with RePEc, we encourage you to do it here. This allows to link your profile to this item. It also allows you to accept potential citations to this item that we are uncertain about.

    If CitEc recognized a bibliographic reference but did not link an item in RePEc to it, you can help with this form .

    If you know of missing items citing this one, you can help us creating those links by adding the relevant references in the same way as above, for each refering item. If you are a registered author of this item, you may also want to check the "citations" tab in your RePEc Author Service profile, as there may be some citations waiting for confirmation.

    For technical questions regarding this item, or to correct its authors, title, abstract, bibliographic or download information, contact: Wiley Content Delivery (email available below). General contact details of provider: http://www3.interscience.wiley.com/cgi-bin/jhome/5749 .

    Please note that corrections may take a couple of weeks to filter through the various RePEc services.

    IDEAS is a RePEc service. RePEc uses bibliographic data supplied by the respective publishers.