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Community based qualitative health research: negotiating ethics in India

Author

Listed:
  • Avanish Kumar

    (Management Development Institute)

  • Meerambika Mahapatro

    (National Institute of Health and Family Welfare)

Abstract

In the last two decades, rise of community-based qualitative health research (CBQHR) has given impetus to deliberations on ethics, primarily on inequality between the researcher and the researched, and the principles of flexible and non-deductive field design adopted in CBQHR. The paper attempts to understand ethics as a process of negotiation at various stages in the field after the Research Ethical Board’s (REB’s) approval. The paper identifies three vulnerable stages of ethical negotiations: consent at commencement stage; data-collection stage (interview, observations, and ethnography); and data analysis at the collation stage in the context of a developing economy. Analysis suggests that REBs need to graduate from a product certification to ethical governance process to address the inherent flexibility and inequality that exists between the researcher and researched in developing countries like India.

Suggested Citation

  • Avanish Kumar & Meerambika Mahapatro, 2018. "Community based qualitative health research: negotiating ethics in India," Quality & Quantity: International Journal of Methodology, Springer, vol. 52(3), pages 1437-1446, May.
    • Handle: RePEc:spr:qualqt:v:52:y:2018:i:3:d:10.1007_s11135-017-0548-x
    DOI: 10.1007/s11135-017-0548-x
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    References listed on IDEAS

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    1. Liedtka, Jeanne M., 1992. "Exploring Ethical Issues Using Personal Interviews," Business Ethics Quarterly, Cambridge University Press, vol. 2(2), pages 161-181, April.
    2. Wendler, D. & Emanuel, E.J. & Lie, R.K., 2004. "The standard of care debate: Can research in developing countries be both ethical and responsive to those countries' health needs?," American Journal of Public Health, American Public Health Association, vol. 94(6), pages 923-928.
    3. Smith, Stephanie L. & Neupane, Shailes, 2011. "Factors in health initiative success: Learning from Nepal's newborn survival initiative," Social Science & Medicine, Elsevier, vol. 72(4), pages 568-575, February.
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