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Clinicians’ versus caregivers’ ratings of burden in patients with schizophrenia and bipolar disorder

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  • Sandeep Grover
  • Subho Chakrabarti
  • Deepak Ghormode
  • Alakananda Dutt
  • Natasha Kate
  • Parmanand Kulhara

Abstract

Background: Only a few studies have evaluated the similarities and differences between clinicians’ and caregivers’ rating of burden of caring for a person with chronic mental illness. Aim: To compare clinician-rated and caregiver-rated burden in a population of patients with either schizophrenia or bipolar disorder, using two different scales to measure caregiver burden. Methodology: Caregivers of patients with schizophrenia ( n = 65) or bipolar disorder ( n = 57) completed the Hindi version of the Involvement Evaluation Questionnaire (Hindi-IEQ) by themselves. Clinicians rated the burden on the Family Burden Interview Schedule (FBI) based on semi-structured interview with the same caregivers. Results: Both total objective and subjective burden on the FBI (clinician ratings) demonstrated significant positive correlations with the total Hindi-IEQ (caregiver ratings) scores. Most areas of burden on the FBI correlated positively with the tension and the worrying-urging II subscales, as well as the total Hindi-IEQ scores. According to clinicians, a significantly higher percentage of caregivers of patients with schizophrenia were experiencing a moderate to severe degree of subjective burden; objective burden in this group was also significantly higher in the domains of effect on the mental health of caregivers. Contrastingly, caregivers of patients with bipolar disorder judged burden to be higher in this group than schizophrenia. Conclusions: There were many areas of agreement as well as some significant discrepancies between clinicians’ and caregivers’ assessment of burden in this population of patients. This suggests that a comprehensive evaluation of burden should include assessments by both clinicians and caregivers of patients.

Suggested Citation

  • Sandeep Grover & Subho Chakrabarti & Deepak Ghormode & Alakananda Dutt & Natasha Kate & Parmanand Kulhara, 2014. "Clinicians’ versus caregivers’ ratings of burden in patients with schizophrenia and bipolar disorder," International Journal of Social Psychiatry, , vol. 60(4), pages 330-336, June.
    • Handle: RePEc:sae:socpsy:v:60:y:2014:i:4:p:330-336
    DOI: 10.1177/0020764013488708
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    References listed on IDEAS

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    1. Lok Raj & Parmanand Kulhara & Ajit Avasthi, 1991. "Social Burden of Positive and Negative Schizophrenia," International Journal of Social Psychiatry, , vol. 37(4), pages 242-250, December.
    2. J. Hoenig & Marian W. Hamilton, 1966. "The Schizophrenic Patient in the Community and His Effect On the Household," International Journal of Social Psychiatry, , vol. 12(3), pages 165-176, June.
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