IDEAS home Printed from https://ideas.repec.org/a/sae/socpsy/v56y2010i4p389-401.html
   My bibliography  Save this article

Perceptions of User Involvement: a User-Led Study

Author

Listed:
  • Diana Rose

    (Service User Research Enterprise (SURE), PO34 Institute of Psychiatry, King's College London, UK, d.rose@iop.kcl.ac.uk)

  • Pete Fleischmann

    (Principal Advisor Participation, Social Care Institute for Excellence, London, UK)

  • Peter Schofield

    (Department of General Practice and Primary Care, King's College London School of Medicine, UK)

Abstract

Background: User involvement in health services has been a priority for government since 1990. In mental health, concern has been expressed that involved service users (activists) are not representative of ‘ordinary’ patients. Aims: (i) To investigate service users’ perceptions of the outcomes of user involvement in two London boroughs. (ii) To determine whether the perceptions of outcomes differ between activists and non-activists. Method: The study was user-led. The user-researchers compiled a semi-structured interview schedule which they then administered to a sample of 40 people; 20 were defined as activists and 20 as non-activists. There were also 20 participants in each borough. Results: Activists were aware of more user groups and forms of user involvement than non-activists. However, in terms of perceptions of the outcomes of user involvement, there was little difference between the activists and non-activists. Discussion: There is very little extant work on the outcomes of user involvement in mental health services. This study examined this and, contrary to reservations often expressed, there was little difference between activists and non-activists. Conclusion: This is a pilot study. Further work should examine perceptions of the outcomes of user involvement by other stakeholders, for example, front-line workers, managers, carers and commissioners.

Suggested Citation

  • Diana Rose & Pete Fleischmann & Peter Schofield, 2010. "Perceptions of User Involvement: a User-Led Study," International Journal of Social Psychiatry, , vol. 56(4), pages 389-401, July.
    • Handle: RePEc:sae:socpsy:v:56:y:2010:i:4:p:389-401
    DOI: 10.1177/0020764009106618
    as

    Download full text from publisher

    File URL: https://journals.sagepub.com/doi/10.1177/0020764009106618
    Download Restriction: no
    File URL: https://libkey.io/10.1177/0020764009106618?utm_source=ideas
    LibKey link: if access is restricted and if your library uses this service, LibKey will redirect you to where you can use your library subscription to access this item
    ---><---

    References listed on IDEAS

    as
    1. Rutter, Deborah & Manley, Catherine & Weaver, Tim & Crawford, Mike J. & Fulop, Naomi, 2004. "Patients or partners? Case studies of user involvement in the planning and delivery of adult mental health services in London," Social Science & Medicine, Elsevier, vol. 58(10), pages 1973-1984, May.
    Full references (including those not matched with items on IDEAS)

    Most related items

    These are the items that most often cite the same works as this one and are cited by the same works as this one.
    1. Lydia Lewis, 2014. "User Involvement in Mental Health Services: A Case of Power over Discourse," Sociological Research Online, , vol. 19(1), pages 1-15, February.
    2. Lorenza Magliano & Andrea Fiorillo & Heidegret Del Vecchio & Claudio Malangone & Corrado De Rosa & Carla Bachelet & Giampiero Cesari & Rosa D'Ambrogio & Francesca Fulgosi Cigala & Franco Veltro & Paol, 2009. "Development and Validation of a Self-Reported Questionnaire On Users’ Opinions About Schizophrenia: a Participatory Research," International Journal of Social Psychiatry, , vol. 55(5), pages 425-441, September.
    3. Trude Andreassen & Adriana Melnic & Rejane Figueiredo & Kåre Moen & Ofelia Şuteu & Florian Nicula & Giske Ursin & Elisabete Weiderpass, 2018. "Attendance to cervical cancer screening among Roma and non-Roma women living in North-Western region of Romania," International Journal of Public Health, Springer;Swiss School of Public Health (SSPH+), vol. 63(5), pages 609-619, June.
    4. Martin, Graham P., 2008. "Representativeness, legitimacy and power in public involvement in health-service management," Social Science & Medicine, Elsevier, vol. 67(11), pages 1757-1765, December.
    5. Aveling, Emma-Louise & Martin, Graham, 2013. "Realising the transformative potential of healthcare partnerships: Insights from divergent literatures and contrasting cases in high- and low-income country contexts," Social Science & Medicine, Elsevier, vol. 92(C), pages 74-82.
    6. Marianne Storm & Kjell Hausken & Knud Knudsen, 2011. "Inpatient service providers’ perspectives on service user involvement in Norwegian community mental health centres," International Journal of Social Psychiatry, , vol. 57(6), pages 551-563, November.
    7. de Freitas, Cláudia & Martin, Graham, 2015. "Inclusive public participation in health: Policy, practice and theoretical contributions to promote the involvement of marginalised groups in healthcare," Social Science & Medicine, Elsevier, vol. 135(C), pages 31-39.
    8. Laura Chisholm & Sue Holttum & Neil Springham, 2018. "Processes in an Experience-Based Co-Design Project With Family Carers in Community Mental Health," SAGE Open, , vol. 8(4), pages 21582440188, October.
    9. Westerink, Henrike J. & Oirbans, Tom & Garvelink, Mirjam M. & van Uden-Kraan, Cornelia F. & Zouitni, Ouisam & Bart, Hans A.J. & van der Wees, Philip J. & van der Nat, Paul B., 2023. "Barriers and facilitators of meaningful patient participation at the collective level in healthcare organizations: A systematic review," Health Policy, Elsevier, vol. 138(C).
    10. Croft, Charlotte & Currie, Graeme & Staniszewska, Sophie, 2016. "Moving from rational to normative ideologies of control over public involvement: A case of continued managerial dominance," Social Science & Medicine, Elsevier, vol. 162(C), pages 124-132.
    11. Marit B Rise & Marit Solbjør & Aslak Steinsbekk, 2014. "Experiences from the implementation of a comprehensive development plan for user involvement in a mental health hospital: A qualitative case study," International Journal of Social Psychiatry, , vol. 60(4), pages 387-395, June.
    12. Davidson, Joyce, 2007. "Caring and daring to complain: An examination of UK national phobics society members' perception of primary care," Social Science & Medicine, Elsevier, vol. 65(3), pages 560-571, August.
    13. Haldane, Victoria & Singh, Shweta R. & Srivastava, Aastha & Chuah, Fiona L.H. & Koh, Gerald C.H. & Chia, Kee Seng & Perel, Pablo & Legido-Quigley, Helena, 2020. "Community involvement in the development and implementation of chronic condition programmes across the continuum of care in high- and upper-middle income countries: A systematic review," Health Policy, Elsevier, vol. 124(4), pages 419-437.
    14. Djellouli, Nehla & Jones, Lorelei & Barratt, Helen & Ramsay, Angus I.G. & Towndrow, Steven & Oliver, Sandy, 2019. "Involving the public in decision-making about large-scale changes to health services: A scoping review," Health Policy, Elsevier, vol. 123(7), pages 635-645.

    Corrections

    All material on this site has been provided by the respective publishers and authors. You can help correct errors and omissions. When requesting a correction, please mention this item's handle: RePEc:sae:socpsy:v:56:y:2010:i:4:p:389-401. See general information about how to correct material in RePEc.

    If you have authored this item and are not yet registered with RePEc, we encourage you to do it here. This allows to link your profile to this item. It also allows you to accept potential citations to this item that we are uncertain about.

    If CitEc recognized a bibliographic reference but did not link an item in RePEc to it, you can help with this form .

    If you know of missing items citing this one, you can help us creating those links by adding the relevant references in the same way as above, for each refering item. If you are a registered author of this item, you may also want to check the "citations" tab in your RePEc Author Service profile, as there may be some citations waiting for confirmation.

    For technical questions regarding this item, or to correct its authors, title, abstract, bibliographic or download information, contact: SAGE Publications (email available below). General contact details of provider: .

    Please note that corrections may take a couple of weeks to filter through the various RePEc services.

    IDEAS is a RePEc service. RePEc uses bibliographic data supplied by the respective publishers.