IDEAS home Printed from https://ideas.repec.org/a/plo/pone00/0263231.html
   My bibliography  Save this article

An initiative to develop capability-adjusted life years in Sweden (CALY-SWE): Selecting capabilities with a Delphi panel and developing the questionnaire

Author

Listed:
  • Kaspar Walter Meili
  • Anna Månsdotter
  • Linda Richter Sundberg
  • Jan Hjelte
  • Lars Lindholm

Abstract

Introduction: Capability-adjusted life years Sweden (CALY-SWE) are a new Swedish questionnaire-based measure for quality of life based on the capability approach. CALY-SWE are targeted towards use in cost-effectiveness evaluations of social welfare consequences. Here, we first motivate the measure both from a theoretical and from a Swedish policy-making perspective. Then, we outline the core principles of the measure, namely the relation to the capability approach, embedded equity considerations inspired by the fair-innings approach, and the bases for which capabilities should be considered. The aims were to 1) the most vital capabilities for individuals in Sweden, 2) to define a sufficient level of each identified capability to lead a flourishing life, and to 3) develop a complete questionnaire for the measurement of the identified capabilities. Material and methods: For the selection of capabilities, we used a Delphi process with Swedish civil society representants. To inform the questionnaire development, we conducted a web survey in three versions, with each Swedish 500 participants, to assess the distribution of capabilities that resulted from the Delphi process in the Swedish population. Each version was formulated with different strictness so that less strict wordings of a capability level would apply to a larger share of participants. All versions also included questions on inequality aversion regarding financial, educational, and health capabilities. Results: The Delphi process resulted in the following six capabilities: Financial situation & housing, health, social relations, occupations, security, and political & civil rights. We formulated the final phrasing for the questionnaire based on normative reasons and the distribution of capabilities in the population while taking into account inequality aversion. Conclusion: We developed a capability-based model for cost effectiveness economic evaluations of broader social consequences, specific to the Swedish context.

Suggested Citation

  • Kaspar Walter Meili & Anna Månsdotter & Linda Richter Sundberg & Jan Hjelte & Lars Lindholm, 2022. "An initiative to develop capability-adjusted life years in Sweden (CALY-SWE): Selecting capabilities with a Delphi panel and developing the questionnaire," PLOS ONE, Public Library of Science, vol. 17(2), pages 1-21, February.
  • Handle: RePEc:plo:pone00:0263231
    DOI: 10.1371/journal.pone.0263231
    as

    Download full text from publisher

    File URL: https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0263231
    Download Restriction: no

    File URL: https://journals.plos.org/plosone/article/file?id=10.1371/journal.pone.0263231&type=printable
    Download Restriction: no

    File URL: https://libkey.io/10.1371/journal.pone.0263231?utm_source=ideas
    LibKey link: if access is restricted and if your library uses this service, LibKey will redirect you to where you can use your library subscription to access this item
    ---><---

    References listed on IDEAS

    as
    1. Sen, Amartya, 2001. "Development as Freedom," OUP Catalogue, Oxford University Press, number 9780192893307.
    2. Angela Robinson & Anne Spencer, 2006. "Exploring challenges to TTO utilities: valuing states worse than dead," Health Economics, John Wiley & Sons, Ltd., vol. 15(4), pages 393-402, April.
    3. Anna Månsdotter & Björn Ekman & Kaspar Walter Meili & Inna Feldman & Lars Hagberg & Anna-Karin Hurtig & Lars Lindholm, 2020. "Towards capability-adjusted life years in public health and social welfare: Results from a Swedish survey on ranking capabilities," PLOS ONE, Public Library of Science, vol. 15(12), pages 1-15, December.
    4. William J Furlong & David H. Feeny & George W. Torrance & Ronald D. Barr, 2001. "The Health Utilities Index (HUI®) System for Assessing Health-Related Quality of Life in Clinical Studies," Centre for Health Economics and Policy Analysis Working Paper Series 2001-02, Centre for Health Economics and Policy Analysis (CHEPA), McMaster University, Hamilton, Canada.
    5. Amartya Sen, 2004. "Capabilities, Lists, And Public Reason: Continuing The Conversation," Feminist Economics, Taylor & Francis Journals, vol. 10(3), pages 77-80.
    6. Terry N. Flynn & Elisabeth Huynh & Tim J. Peters & Hareth Al‐Janabi & Sam Clemens & Alison Moody & Joanna Coast, 2015. "Scoring the Icecap‐a Capability Instrument. Estimation of a UK General Population Tariff," Health Economics, John Wiley & Sons, Ltd., vol. 24(3), pages 258-269, March.
    7. Joanna Coast & Elisabeth Huynh & Philip Kinghorn & Terry Flynn, 2016. "Complex Valuation: Applying Ideas from the Complex Intervention Framework to Valuation of a New Measure for End-of-Life Care," PharmacoEconomics, Springer, vol. 34(5), pages 499-508, May.
    8. Wagstaff, Adam & van Doorslaer, Eddy & Paci, Pierella, 1991. "On the measurement of horizontal inequity in the delivery of health care," Journal of Health Economics, Elsevier, vol. 10(2), pages 169-205, July.
    9. Ilias Goranitis & Joanna Coast & Ed Day & Alex Copello & Nick Freemantle & Emma Frew, 2017. "Maximizing Health or Sufficient Capability in Economic Evaluation? A Methodological Experiment of Treatment for Drug Addiction," Medical Decision Making, , vol. 37(5), pages 498-511, July.
    Full references (including those not matched with items on IDEAS)

    Citations

    Citations are extracted by the CitEc Project, subscribe to its RSS feed for this item.
    as


    Cited by:

    1. Heijdra Suasnabar, Jan M. & Finch, Aureliano Paolo & Mulhern, Brendan & van den Akker-van Marle, M. Elske, 2024. "Exploring the measurement of health related quality of life and broader instruments: A dimensionality analysis," Social Science & Medicine, Elsevier, vol. 346(C).

    Most related items

    These are the items that most often cite the same works as this one and are cited by the same works as this one.
    1. Robinson, Jude & Chiumento, Anna & Kasujja, Rosco & Rutayisire, Theoneste & White, Ross, 2022. "The ‘good life’, personal appearance, and mental health of Congolese refugees in Rwanda and Uganda," Social Science & Medicine, Elsevier, vol. 293(C).
    2. Joanna Coast & Cara Bailey & Rosanna Orlando & Kathy Armour & Rachel Perry & Louise Jones & Philip Kinghorn, 2018. "Adaptation, Acceptance and Adaptive Preferences in Health and Capability Well-Being Measurement Amongst Those Approaching End of Life," The Patient: Patient-Centered Outcomes Research, Springer;International Academy of Health Preference Research, vol. 11(5), pages 539-546, October.
    3. Petra Baji & Miklós Farkas & Ágota Dobos & Zsombor Zrubka & Levente Kovács & László Gulácsi & Márta Péntek, 2021. "Comparing the measurement properties of the ICECAP-A and ICECAP-O instruments in ages 50–70: a cross-sectional study on a representative sample of the Hungarian general population," The European Journal of Health Economics, Springer;Deutsche Gesellschaft für Gesundheitsökonomie (DGGÖ), vol. 22(9), pages 1453-1466, December.
    4. Huynh, Elisabeth & Coast, Joanna & Rose, John & Kinghorn, Philip & Flynn, Terry, 2017. "Values for the ICECAP-Supportive Care Measure (ICECAP-SCM) for use in economic evaluation at end of life," Social Science & Medicine, Elsevier, vol. 189(C), pages 114-128.
    5. Malakar, Yuwan, 2018. "Evaluating the role of rural electrification in expanding people's capabilities in India," Energy Policy, Elsevier, vol. 114(C), pages 492-498.
    6. Leonie C. Steckermeier, 2021. "The Value of Autonomy for the Good Life. An Empirical Investigation of Autonomy and Life Satisfaction in Europe," Social Indicators Research: An International and Interdisciplinary Journal for Quality-of-Life Measurement, Springer, vol. 154(2), pages 693-723, April.
    7. Aizaki, Hideo & Fogarty, James, 2019. "An R package and tutorial for case 2 best–worst scaling," Journal of choice modelling, Elsevier, vol. 32(C), pages 1-1.
    8. Chad S. Boda & Turaj Faran & Murray Scown & Kelly Dorkenoo & Brian C. Chaffin & Maryam Nastar & Emily Boyd, 2021. "Loss and damage from climate change and implicit assumptions of sustainable development," Climatic Change, Springer, vol. 164(1), pages 1-18, January.
    9. Matthew Franklin & Katherine Payne & Rachel A. Elliott, 2018. "Quantifying the Relationship between Capability and Health in Older People: Can’t Map, Won’t Map," Medical Decision Making, , vol. 38(1), pages 79-94, January.
    10. Paul Mark Mitchell & Samantha Husbands & Sarah Byford & Philip Kinghorn & Cara Bailey & Tim J. Peters & Joanna Coast, 2021. "Challenges in developing capability measures for children and young people for use in the economic evaluation of health and care interventions," Health Economics, John Wiley & Sons, Ltd., vol. 30(9), pages 1990-2003, September.
    11. Samer A. Kharroubi & Yara Beyh & Marwa Diab El Harake & Dalia Dawoud & Donna Rowen & John Brazier, 2020. "Examining the Feasibility and Acceptability of Valuing the Arabic Version of SF-6D in a Lebanese Population," IJERPH, MDPI, vol. 17(3), pages 1-15, February.
    12. Kinghorn, Philip, 2019. "Using deliberative methods to establish a sufficient state of capability well-being for use in decision-making in the contexts of public health and social care," Social Science & Medicine, Elsevier, vol. 240(C).
    13. Megan Devonald & Nicola Jones & Sally Youssef, 2022. "‘We Have No Hope for Anything’: Exploring Interconnected Economic, Social and Environmental Risks to Adolescents in Lebanon," Sustainability, MDPI, vol. 14(4), pages 1-17, February.
    14. Tendai Zawaira & Matthew W. Clance & Carolyn Chisadza, 2020. "Social Institutions and Gender-Biased Outcomes in sub-Saharan Africa," Working Papers 2020101, University of Pretoria, Department of Economics.
    15. Chen Yu, 2020. "Targeted industrial poverty alleviation in China’s Rural Areas: Evidence From Yulin Township," Journal of Advances in Humanities and Social Sciences, Dr. Yi-Hsing Hsieh, vol. 6(2), pages 78-88.
    16. Fleurbaey, Marc & Schokkaert, Erik, 2009. "Unfair inequalities in health and health care," Journal of Health Economics, Elsevier, vol. 28(1), pages 73-90, January.
    17. Antoinette Baujard & Muriel Gilardone, 2017. "Sen is not a capability theorist," Journal of Economic Methodology, Taylor & Francis Journals, vol. 24(1), pages 1-19, January.
    18. Martin Binder & Tom Broekel, 2011. "Applying a Non-parametric Efficiency Analysis to Measure Conversion Efficiency in Great Britain," Journal of Human Development and Capabilities, Taylor & Francis Journals, vol. 12(2), pages 257-281.
    19. Jeff Round & Mike Paulden, 2018. "Incorporating equity in economic evaluations: a multi-attribute equity state approach," The European Journal of Health Economics, Springer;Deutsche Gesellschaft für Gesundheitsökonomie (DGGÖ), vol. 19(4), pages 489-498, May.
    20. Ratcliffe, Julie & Huynh, Elisabeth & Chen, Gang & Stevens, Katherine & Swait, Joffre & Brazier, John & Sawyer, Michael & Roberts, Rachel & Flynn, Terry, 2016. "Valuing the Child Health Utility 9D: Using profile case best worst scaling methods to develop a new adolescent specific scoring algorithm," Social Science & Medicine, Elsevier, vol. 157(C), pages 48-59.

    More about this item

    Statistics

    Access and download statistics

    Corrections

    All material on this site has been provided by the respective publishers and authors. You can help correct errors and omissions. When requesting a correction, please mention this item's handle: RePEc:plo:pone00:0263231. See general information about how to correct material in RePEc.

    If you have authored this item and are not yet registered with RePEc, we encourage you to do it here. This allows to link your profile to this item. It also allows you to accept potential citations to this item that we are uncertain about.

    If CitEc recognized a bibliographic reference but did not link an item in RePEc to it, you can help with this form .

    If you know of missing items citing this one, you can help us creating those links by adding the relevant references in the same way as above, for each refering item. If you are a registered author of this item, you may also want to check the "citations" tab in your RePEc Author Service profile, as there may be some citations waiting for confirmation.

    For technical questions regarding this item, or to correct its authors, title, abstract, bibliographic or download information, contact: plosone (email available below). General contact details of provider: https://journals.plos.org/plosone/ .

    Please note that corrections may take a couple of weeks to filter through the various RePEc services.

    IDEAS is a RePEc service. RePEc uses bibliographic data supplied by the respective publishers.