IDEAS home Printed from https://ideas.repec.org/a/plo/pone00/0179916.html
   My bibliography  Save this article

Patient-experienced burden of treatment in patients with multimorbidity – A systematic review of qualitative data

Author

Listed:
  • Michael Rosbach
  • John Sahl Andersen

Abstract

Objective: To synthesize existing qualitative literature on patient-experienced burden of treatment in multimorbid patients. Methods: A literature search identified available qualitative studies on the topic of burden of treatment in multimorbidity and meta-ethnography was applied as method. The authors’ original findings were preserved, but also synthesized to new interpretations to investigate the concept of the burden of treatment using the Cumulative Complexity Model. Results: Nine qualitative studies were identified. The majority of the 1367 participants from 34 different countries were multimorbid. The treatment burden components, experienced by patients, were identified for each study. The components financial burden, lack of knowledge, diet and exercise, medication burden and frequent healthcare reminding patients of their health problem were found to attract additional attention from the multimorbid patients. In studies conducted in the US and Australia the financial burden and the time and travel burden were found most straining to patients with deprived socioeconomic status. Conclusions: Healthcare providers need to increase the focus on minimizing multimorbid patients’ burden of treatment. Findings in this review suggest that the weight of the burden needs to be established in the individual patient and components of the burden must be identified.

Suggested Citation

  • Michael Rosbach & John Sahl Andersen, 2017. "Patient-experienced burden of treatment in patients with multimorbidity – A systematic review of qualitative data," PLOS ONE, Public Library of Science, vol. 12(6), pages 1-18, June.
    • Handle: RePEc:plo:pone00:0179916
    DOI: 10.1371/journal.pone.0179916
    as

    Download full text from publisher

    File URL: https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0179916
    Download Restriction: no
    File URL: https://journals.plos.org/plosone/article/file?id=10.1371/journal.pone.0179916&type=printable
    Download Restriction: no
    File URL: https://libkey.io/10.1371/journal.pone.0179916?utm_source=ideas
    LibKey link: if access is restricted and if your library uses this service, LibKey will redirect you to where you can use your library subscription to access this item
    ---><---

    References listed on IDEAS

    as
    1. Campbell, Rona & Pound, Pandora & Pope, Catherine & Britten, Nicky & Pill, Roisin & Morgan, Myfanwy & Donovan, Jenny, 2003. "Evaluating meta-ethnography: a synthesis of qualitative research on lay experiences of diabetes and diabetes care," Social Science & Medicine, Elsevier, vol. 56(4), pages 671-684, February.
    2. Pound, Pandora & Britten, Nicky & Morgan, Myfanwy & Yardley, Lucy & Pope, Catherine & Daker-White, Gavin & Campbell, Rona, 2005. "Resisting medicines: a synthesis of qualitative studies of medicine taking," Social Science & Medicine, Elsevier, vol. 61(1), pages 133-155, July.
    3. David Moher & Alessandro Liberati & Jennifer Tetzlaff & Douglas G Altman & The PRISMA Group, 2009. "Preferred Reporting Items for Systematic Reviews and Meta-Analyses: The PRISMA Statement," PLOS Medicine, Public Library of Science, vol. 6(7), pages 1-6, July.
    Full references (including those not matched with items on IDEAS)

    Citations

    Citations are extracted by the CitEc Project, subscribe to its RSS feed for this item.
    as


    Cited by:

    1. Shikha Gupta & Mary Ann McColl & Sara J.T. Guilcher & Karen Smith, 2019. "Managing Medication Cost Burden: A Qualitative Study Exploring Experiences of People with Disabilities in Canada," IJERPH, MDPI, vol. 16(17), pages 1-17, August.
    2. Léontine Goldzahl & Jonathan Stokes & Matt Sutton, 2022. "The effects of multi‐disciplinary integrated care on healthcare utilization: Evidence from a natural experiment in the UK," Health Economics, John Wiley & Sons, Ltd., vol. 31(10), pages 2142-2169, October.
    3. Aurore Lesage & Brice Leclère & Leïla Moret & Clément Le Glatin, 2021. "Decreasing patient-reported burden of treatment: A systematic review of quantitative interventional studies," PLOS ONE, Public Library of Science, vol. 16(1), pages 1-15, January.
    4. Cheng Cheng & Jie Bai & Cong‐Yan Yang & Ming Li & Kerry Inder & Sally Wai‐Chi Chan, 2019. "Patients' experiences of coping with multiple chronic conditions: A qualitative descriptive study," Journal of Clinical Nursing, John Wiley & Sons, vol. 28(23-24), pages 4400-4411, December.
    5. Lawless, Michael T. & Tieu, Matthew & Feo, Rebecca & Kitson, Alison L., 2021. "Theories of self-care and self-management of long-term conditions by community-dwelling older adults: A systematic review and meta-ethnography," Social Science & Medicine, Elsevier, vol. 287(C).

    Most related items

    These are the items that most often cite the same works as this one and are cited by the same works as this one.
    1. David J Clarke, 2014. "Nursing practice in stroke rehabilitation: systematic review and meta‐ethnography," Journal of Clinical Nursing, John Wiley & Sons, vol. 23(9-10), pages 1201-1226, May.
    2. Rebecca J Bartlett Ellis & Janet L Welch, 2017. "Medication‐taking behaviours in chronic kidney disease with multiple chronic conditions: a meta‐ethnographic synthesis of qualitative studies," Journal of Clinical Nursing, John Wiley & Sons, vol. 26(5-6), pages 586-598, March.
    3. Helle Feddersen & Tine Mechlenborg Kristiansen & Pernille Tanggaard Andersen & Kim Hørslev‐Petersen & Jette Primdahl, 2017. "Construction of meaningful identities in the context of rheumatoid arthritis, motherhood and paid work: A meta‐ethnography," Journal of Clinical Nursing, John Wiley & Sons, vol. 26(23-24), pages 4117-4128, December.
    4. Crovini, Chiara & Ossola, Giovanni & Britzelmaier, Bernd, 2021. "How to reconsider risk management in SMEs? An Advanced, Reasoned and Organised Literature Review," European Management Journal, Elsevier, vol. 39(1), pages 118-134.
    5. Kushagra Kulshreshtha & Vikas Tripathi & Naval Bajpai, 2018. "1971–2017: Evolution, exploration and test of time of conjoint analysis," Quality & Quantity: International Journal of Methodology, Springer, vol. 52(6), pages 2893-2919, November.
    6. Blacklock, C. & Ward, A.M. & Heneghan, C. & Thompson, M., 2014. "Exploring the migration decisions of health workers and trainees from Africa: A meta-ethnographic synthesis," Social Science & Medicine, Elsevier, vol. 100(C), pages 99-106.
    7. Malpass, Alice & Shaw, Alison & Sharp, Debbie & Walter, Fiona & Feder, Gene & Ridd, Matthew & Kessler, David, 2009. ""Medication career" or "Moral career"? The two sides of managing antidepressants: A meta-ethnography of patients' experience of antidepressants," Social Science & Medicine, Elsevier, vol. 68(1), pages 154-168, January.
    8. İlkay Unay-Gailhard & Mark A. Brennen, 2022. "How digital communications contribute to shaping the career paths of youth: a review study focused on farming as a career option," Agriculture and Human Values, Springer;The Agriculture, Food, & Human Values Society (AFHVS), vol. 39(4), pages 1491-1508, December.
    9. Mahin Ghafari & Vali Baigi & Zahra Cheraghi & Amin Doosti-Irani, 2016. "The Prevalence of Asymptomatic Bacteriuria in Iranian Pregnant Women: A Systematic Review and Meta-Analysis," PLOS ONE, Public Library of Science, vol. 11(6), pages 1-10, June.
    10. Elizabeth T Cafiero-Fonseca & Andrew Stawasz & Sydney T Johnson & Reiko Sato & David E Bloom, 2017. "The full benefits of adult pneumococcal vaccination: A systematic review," PLOS ONE, Public Library of Science, vol. 12(10), pages 1-23, October.
    11. Santos Urbina & Sofía Villatoro & Jesús Salinas, 2021. "Self-Regulated Learning and Technology-Enhanced Learning Environments in Higher Education: A Scoping Review," Sustainability, MDPI, vol. 13(13), pages 1-12, June.
    12. Oded Berger-Tal & Alison L Greggor & Biljana Macura & Carrie Ann Adams & Arden Blumenthal & Amos Bouskila & Ulrika Candolin & Carolina Doran & Esteban Fernández-Juricic & Kiyoko M Gotanda & Catherine , 2019. "Systematic reviews and maps as tools for applying behavioral ecology to management and policy," Behavioral Ecology, International Society for Behavioral Ecology, vol. 30(1), pages 1-8.
    13. Nadine Desrochers & Adèle Paul‐Hus & Jen Pecoskie, 2017. "Five decades of gratitude: A meta‐synthesis of acknowledgments research," Journal of the Association for Information Science & Technology, Association for Information Science & Technology, vol. 68(12), pages 2821-2833, December.
    14. Maryono, Maryono & Killoes, Aditya Marendra & Adhikari, Rajendra & Abdul Aziz, Ammar, 2024. "Agriculture development through multi-stakeholder partnerships in developing countries: A systematic literature review," Agricultural Systems, Elsevier, vol. 213(C).
    15. Alene Sze Jing Yong & Yi Heng Lim & Mark Wing Loong Cheong & Ednin Hamzah & Siew Li Teoh, 2022. "Willingness-to-pay for cancer treatment and outcome: a systematic review," The European Journal of Health Economics, Springer;Deutsche Gesellschaft für Gesundheitsökonomie (DGGÖ), vol. 23(6), pages 1037-1057, August.
    16. Xue-Ying Xu & Hong Kong & Rui-Xiang Song & Yu-Han Zhai & Xiao-Fei Wu & Wen-Si Ai & Hong-Bo Liu, 2014. "The Effectiveness of Noninvasive Biomarkers to Predict Hepatitis B-Related Significant Fibrosis and Cirrhosis: A Systematic Review and Meta-Analysis of Diagnostic Test Accuracy," PLOS ONE, Public Library of Science, vol. 9(6), pages 1-16, June.
    17. Vicente Miñana-Signes & Manuel Monfort-Pañego & Javier Valiente, 2021. "Teaching Back Health in the School Setting: A Systematic Review of Randomized Controlled Trials," IJERPH, MDPI, vol. 18(3), pages 1-18, January.
    18. Agnieszka A. Tubis & Katarzyna Grzybowska, 2022. "In Search of Industry 4.0 and Logistics 4.0 in Small-Medium Enterprises—A State of the Art Review," Energies, MDPI, vol. 15(22), pages 1-26, November.
    19. Obsa Urgessa Ayana & Jima Degaga, 2022. "Effects of rural electrification on household welfare: a meta-regression analysis," International Review of Economics, Springer;Happiness Economics and Interpersonal Relations (HEIRS), vol. 69(2), pages 209-261, June.
    20. Caloffi, Annalisa & Colovic, Ana & Rizzoli, Valentina & Rossi, Federica, 2023. "Innovation intermediaries' types and functions: A computational analysis of the literature," Technological Forecasting and Social Change, Elsevier, vol. 189(C).

    More about this item

    Statistics

    Access and download statistics

    Corrections

    All material on this site has been provided by the respective publishers and authors. You can help correct errors and omissions. When requesting a correction, please mention this item's handle: RePEc:plo:pone00:0179916. See general information about how to correct material in RePEc.

    If you have authored this item and are not yet registered with RePEc, we encourage you to do it here. This allows to link your profile to this item. It also allows you to accept potential citations to this item that we are uncertain about.

    If CitEc recognized a bibliographic reference but did not link an item in RePEc to it, you can help with this form .

    If you know of missing items citing this one, you can help us creating those links by adding the relevant references in the same way as above, for each refering item. If you are a registered author of this item, you may also want to check the "citations" tab in your RePEc Author Service profile, as there may be some citations waiting for confirmation.

    For technical questions regarding this item, or to correct its authors, title, abstract, bibliographic or download information, contact: plosone (email available below). General contact details of provider: https://journals.plos.org/plosone/ .

    Please note that corrections may take a couple of weeks to filter through the various RePEc services.

    IDEAS is a RePEc service. RePEc uses bibliographic data supplied by the respective publishers.