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“If I had stayed back home, I would not be alive any more…” – Exploring end-of-life preferences in patients with migration background

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  • Piret Paal
  • Johannes Bükki

Abstract

Background: In patients with life-limiting conditions and a history of migration, a higher risk of not dying at home and limited access to palliative care services has been reported. Aim: To explore the views and end-of-life preferences of patients with a migration history in Germany and to identify migration specific themes. Design: Two-armed study using Kaufmann’s ‘understanding interview’ (‘focused interview’) method and grounded theory approach. Thematic content analysis was applied using MaxQDA 12 software. Setting/Participants: Migrant and non-migrant adult patients with far advanced, life-limiting disease receiving palliative care in different specialist level settings (specialist home palliative care, palliative care inpatient unit, inpatient hospice). Results: The 37 interviewees (19 native Germans and 18 patients from Europe and the U.S., Israel, Turkey, and Indonesia) expressed eleven themes covering health care- and patient-related issues, of which four emerged to be specific for migrants: worse survival in home country; the perception of an altered identity and ‘not belonging’; language skills as prerequisite to survive; and longing for ‘home’ while being attached to Germany. From these categories, three overarching themes were derived: (1) a limited understanding of the concept of ‘palliative care’; (2) the suppression of end of life discussions for its association with suffering and loss of autonomy; and (3) the significance of complex individual migration histories. Conclusions: Based on these findings, the concept of a ‘double home’ experience is proposed. Barriers to access to palliative care should be minimized for all patients while cultural stereotyping has to be avoided.

Suggested Citation

  • Piret Paal & Johannes Bükki, 2017. "“If I had stayed back home, I would not be alive any more…” – Exploring end-of-life preferences in patients with migration background," PLOS ONE, Public Library of Science, vol. 12(4), pages 1-12, April.
    • Handle: RePEc:plo:pone00:0175314
    DOI: 10.1371/journal.pone.0175314
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    References listed on IDEAS

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    1. Ceuterick, Melissa & Vandebroek, Ina, 2017. "Identity in a medicine cabinet: Discursive positions of Andean migrants towards their use of herbal remedies in the United Kingdom," Social Science & Medicine, Elsevier, vol. 177(C), pages 43-51.
    2. United Nations (UN), 2016. "International Migration and Development," Working Papers id:11048, eSocialSciences.
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