“The One Who Chases You Away Does Not Tell You Go”: Silent Refusals and Complex Power Relations in Research Consent Processes in Coastal Kenya
Author
Abstract
Suggested Citation
DOI: 10.1371/journal.pone.0126671
Download full text from publisher
References listed on IDEAS
- Molyneux, C. S. & Peshu, N. & Marsh, K., 2004. "Understanding of informed consent in a low-income setting: three case studies from the Kenyan coast," Social Science & Medicine, Elsevier, vol. 59(12), pages 2547-2559, December.
- Fairhead, James & Leach, Melissa & Small, Mary, 2006. "Where techno-science meets poverty: Medical research and the economy of blood in The Gambia, West Africa," Social Science & Medicine, Elsevier, vol. 63(4), pages 1109-1120, August.
Most related items
These are the items that most often cite the same works as this one and are cited by the same works as this one.- Molyneux, Sassy & Geissler, P. Wenzel, 2008. "Ethics and the ethnography of medical research in Africa," Social Science & Medicine, Elsevier, vol. 67(5), pages 685-695, September.
- Kelly, Ann H. & Ameh, David & Majambere, Silas & Lindsay, Steve & Pinder, Margaret, 2010. "'Like sugar and honey': The embedded ethics of a larval control project in The Gambia," Social Science & Medicine, Elsevier, vol. 70(12), pages 1912-1919, June.
- Tengbeh, Angus Fayia & Enria, Luisa & Smout, Elizabeth & Mooney, Thomas & Callaghan, Mike & Ishola, David & Leigh, Bailah & Watson-Jones, Deborah & Greenwood, Brian & Larson, Heidi & Lees, Shelley, 2018. "“We are the heroes because we are ready to die for this country”: Participants' decision-making and grounded ethics in an Ebola vaccine clinical trial," Social Science & Medicine, Elsevier, vol. 203(C), pages 35-42.
- Hutchinson, Eleanor & Nayiga, Susan & Nabirye, Christine & Taaka, Lilian & Staedke, Sarah G., 2018. "Data value and care value in the practice of health systems: A case study in Uganda," Social Science & Medicine, Elsevier, vol. 211(C), pages 123-130.
- Kingori, Patricia, 2013. "Experiencing everyday ethics in context: Frontline data collectors perspectives and practices of bioethics," Social Science & Medicine, Elsevier, vol. 98(C), pages 361-370.
- Panter-Brick, Catherine & Eggerman, Mark, 2018. "The field of medical anthropology in Social Science & Medicine," Social Science & Medicine, Elsevier, vol. 196(C), pages 233-239.
- Mwanamvua Boga & Alun Davies & Dorcas Kamuya & Samson M Kinyanjui & Ester Kivaya & Francis Kombe & Trudie Lang & Vicki Marsh & Bibi Mbete & Albert Mlamba & Sassy Molyneux & Stephen Mulupi & Salim Mwal, 2011. "Strengthening the Informed Consent Process in International Health Research through Community Engagement: The KEMRI-Wellcome Trust Research Programme Experience," PLOS Medicine, Public Library of Science, vol. 8(9), pages 1-4, September.
- Polonsky, Michael Jay & Brijnath, Bianca & Renzaho, André M.N., 2011. ""They don't want our blood": Social inclusion and blood donation among African migrants in Australia," Social Science & Medicine, Elsevier, vol. 73(2), pages 336-342, July.
- James, Myfanwy & Kasereka, Joseph Grace & Kasiwa, Benjamin & Kavunga-Membo, Hugo & Kambale, Kasonia & Grais, Rebecca & Muyembe-Tamfum, Jean-Jacques & Bausch, Daniel G. & Watson-Jones, Deborah & Lees, , 2023. "Protection, health seeking, or a laissez-passer: Participants’ decision-making in an EVD vaccine trial in the eastern Democratic Republic of the Congo," Social Science & Medicine, Elsevier, vol. 323(C).
- Kamat, Vinay R., 2014. "Fast, cheap, and out of control? Speculations and ethical concerns in the conduct of outsourced clinical trials in India," Social Science & Medicine, Elsevier, vol. 104(C), pages 48-55.
- Marsh, Vicki & Kamuya, Dorcas & Rowa, Yvonne & Gikonyo, Caroline & Molyneux, Sassy, 2008. "Beginning community engagement at a busy biomedical research programme: Experiences from the KEMRI CGMRC-Wellcome Trust Research Programme, Kilifi, Kenya," Social Science & Medicine, Elsevier, vol. 67(5), pages 721-733, September.
- Lorway, Robert & Khan, Shamshad, 2014. "Reassembling epidemiology: Mapping, monitoring and making-up people in the context of HIV prevention in India," Social Science & Medicine, Elsevier, vol. 112(C), pages 51-62.
- Dave A Chokshi & Mahamadou A Thera & Michael Parker & Mahamadou Diakite & Julie Makani & Dominic P Kwiatkowski & Ogobara K Doumbo, 2007. "Valid Consent for Genomic Epidemiology in Developing Countries," PLOS Medicine, Public Library of Science, vol. 4(4), pages 1-6, April.
- Katwa, Joseph Kigen & Joyce Lugulu, 2022. "Understanding Informed Consent: An in Depth Analysis," International Journal of Research and Innovation in Social Science, International Journal of Research and Innovation in Social Science (IJRISS), vol. 6(5), pages 762-769, May.
- de Vries, Jantina & Jallow, Muminatou & Williams, Thomas N. & Kwiatkowski, Dominic & Parker, Michael & Fitzpatrick, Raymond, 2012. "Investigating the potential for ethnic group harm in collaborative genomics research in Africa: Is ethnic stigmatisation likely?," Social Science & Medicine, Elsevier, vol. 75(8), pages 1400-1407.
- Reynolds, Lindsey & Cousins, Thomas & Newell, Marie-Louise & Imrie, John, 2013. "The social dynamics of consent and refusal in HIV surveillance in rural South Africa," Social Science & Medicine, Elsevier, vol. 77(C), pages 118-125.
- Sheikh, Zainab Afshan & Jensen, Anja M.B., 2019. "Channeling hope: An ethnographic study of how research encounters become meaningful for families suffering from genetic disease in Pakistan," Social Science & Medicine, Elsevier, vol. 228(C), pages 103-110.
- Josephson, Anna & Smale, Melinda, 2020. "What do you mean by ‘informed consent’? Ethics in economic development research," MetaArXiv py654_v1, Center for Open Science.
- Molyneux, C.S. & Peshu, N. & Marsh, K., 2005. "Trust and informed consent: insights from community members on the Kenyan coast," Social Science & Medicine, Elsevier, vol. 61(7), pages 1463-1473, October.
- Anna Josephson & Melinda Smale, 2021. "What Do you Mean by “Informed Consent”? Ethics in Economic Development Research†," Applied Economic Perspectives and Policy, John Wiley & Sons, vol. 43(4), pages 1305-1329, December.
Corrections
All material on this site has been provided by the respective publishers and authors. You can help correct errors and omissions. When requesting a correction, please mention this item's handle: RePEc:plo:pone00:0126671. See general information about how to correct material in RePEc.
If you have authored this item and are not yet registered with RePEc, we encourage you to do it here. This allows to link your profile to this item. It also allows you to accept potential citations to this item that we are uncertain about.
If CitEc recognized a bibliographic reference but did not link an item in RePEc to it, you can help with this form .
If you know of missing items citing this one, you can help us creating those links by adding the relevant references in the same way as above, for each refering item. If you are a registered author of this item, you may also want to check the "citations" tab in your RePEc Author Service profile, as there may be some citations waiting for confirmation.
For technical questions regarding this item, or to correct its authors, title, abstract, bibliographic or download information, contact: plosone (email available below). General contact details of provider: https://journals.plos.org/plosone/ .
Please note that corrections may take a couple of weeks to filter through the various RePEc services.