Communication about Children's Clinical Trials as Observed and Experienced: Qualitative Study of Parents and Practitioners
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DOI: 10.1371/journal.pone.0021604
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- Dixon-Woods, Mary & Ashcroft, Richard E. & Jackson, Clare J. & Tobin, Martin D. & Kivits, Joelle & Burton, Paul R. & Samani, Nilesh J., 2007. "Beyond "misunderstanding": Written information and decisions about taking part in a genetic epidemiology study," Social Science & Medicine, Elsevier, vol. 65(11), pages 2212-2222, December.
- Brown, R.F & Butow, P.N & Ellis, P & Boyle, F & Tattersall, M.H.N, 2004. "Seeking informed consent to cancer clinical trials:: describing current practice," Social Science & Medicine, Elsevier, vol. 58(12), pages 2445-2457, June.
- Mead, Nicola & Bower, Peter & Hann, Mark, 2002. "The impact of general practitioners' patient-centredness on patients' post-consultation satisfaction and enablement," Social Science & Medicine, Elsevier, vol. 55(2), pages 283-299, July.
- Mendick, Nicola & Young, Bridget & Holcombe, Christopher & Salmon, Peter, 2010. "The ethics of responsibility and ownership in decision-making about treatment for breast cancer: Triangulation of consultation with patient and surgeon perspectives," Social Science & Medicine, Elsevier, vol. 70(12), pages 1904-1911, June.
- Terry P Klassen & Lisa Hartling & Jonathan C Craig & Martin Offringa, 2008. "Children Are Not Just Small Adults: The Urgent Need for High-Quality Trial Evidence in Children," PLOS Medicine, Public Library of Science, vol. 5(8), pages 1-3, August.
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