Between desire and fear: a qualitative interview study exploring the perspectives of carriers of a genetic condition on human genome editing
Author
Abstract
Suggested Citation
DOI: 10.1057/s41599-023-01935-0
Download full text from publisher
As the access to this document is restricted, you may want to search for a different version of it.
References listed on IDEAS
- Mara Almeida & Robert Ranisch, 2022. "Beyond safety: mapping the ethical debate on heritable genome editing interventions," Palgrave Communications, Palgrave Macmillan, vol. 9(1), pages 1-14, December.
- Michael Morrison & Stevienna de Saille, 2019. "CRISPR in context: towards a socially responsible debate on embryo editing," Palgrave Communications, Palgrave Macmillan, vol. 5(1), pages 1-9, December.
- Petersen, Alan, 2006. "The best experts: The narratives of those who have a genetic condition," Social Science & Medicine, Elsevier, vol. 63(1), pages 32-42, July.
Most related items
These are the items that most often cite the same works as this one and are cited by the same works as this one.- Wendy P. Geuverink & Janneke T. Gitsels & Martina C. Cornel & Bert Jan Lietaert Peerbolte & Christina Prinds & Carla G. El & Linda Martin, 2024. "The impact of counselors’ values and religious beliefs on their role identity and perspectives on heritable genome editing: a qualitative interview study," Palgrave Communications, Palgrave Macmillan, vol. 11(1), pages 1-10, December.
- Alexandra C.H. Nowakowski, 2019. "The Salt without the Girl: Negotiating Embodied Identity as an Agender Person with Cystic Fibrosis," Social Sciences, MDPI, vol. 8(3), pages 1-18, March.
- Saukko, Paula M. & Richards, Suzanne H. & Shepherd, Maggie H. & Campbell, John L., 2006. "Are genetic tests exceptional? Lessons from a qualitative study on thrombophilia," Social Science & Medicine, Elsevier, vol. 63(7), pages 1947-1959, October.
- Melanie Goisauf & Kaya Akyüz & Gillian M. Martin, 2020. "Moving back to the future of big data-driven research: reflecting on the social in genomics," Palgrave Communications, Palgrave Macmillan, vol. 7(1), pages 1-9, December.
- Whitmarsh, Ian & Davis, Arlene M. & Skinner, Debra & Bailey, Donald Jr., 2007. "A place for genetic uncertainty: Parents valuing an unknown in the meaning of disease," Social Science & Medicine, Elsevier, vol. 65(6), pages 1082-1093, September.
- Weiner, Kate, 2011. "Exploring genetic responsibility for the self, family and kin in the case of hereditary raised cholesterol," Social Science & Medicine, Elsevier, vol. 72(11), pages 1760-1767, June.
Corrections
All material on this site has been provided by the respective publishers and authors. You can help correct errors and omissions. When requesting a correction, please mention this item's handle: RePEc:pal:palcom:v:10:y:2023:i:1:d:10.1057_s41599-023-01935-0. See general information about how to correct material in RePEc.
If you have authored this item and are not yet registered with RePEc, we encourage you to do it here. This allows to link your profile to this item. It also allows you to accept potential citations to this item that we are uncertain about.
If CitEc recognized a bibliographic reference but did not link an item in RePEc to it, you can help with this form .
If you know of missing items citing this one, you can help us creating those links by adding the relevant references in the same way as above, for each refering item. If you are a registered author of this item, you may also want to check the "citations" tab in your RePEc Author Service profile, as there may be some citations waiting for confirmation.
For technical questions regarding this item, or to correct its authors, title, abstract, bibliographic or download information, contact: Sonal Shukla or Springer Nature Abstracting and Indexing (email available below). General contact details of provider: https://www.nature.com/ .
Please note that corrections may take a couple of weeks to filter through the various RePEc services.