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‘How Your Spirit Is Travelling’—Understanding First Nations Peoples’ Experiences of Living Well with and after Cancer

Author

Listed:
  • Anneliese de Groot

    (School of Public Health, The University of Queensland, Brisbane 4006, Australia
    Australian Institute of Health Innovation, Macquarie University, Sydney 2113, Australia)

  • Bena Brown

    (School of Public Health, The University of Queensland, Brisbane 4006, Australia
    Southern Queensland Centre of Excellence in Aboriginal and Torres Strait Islander Primary Health Care, Queensland Health, Brisbane 4077, Australia)

  • Daniel Lindsay

    (School of Public Health, The University of Queensland, Brisbane 4006, Australia
    QIMR Berghofer Medical Research Institute, Brisbane 4006, Australia)

  • Alana Gall

    (School of Public Health, The University of Queensland, Brisbane 4006, Australia
    National Centre for Naturopathic Medicine, Southern Cross University, Lismore 2480, Australia)

  • Nicole Hewlett

    (School of Public Health, The University of Queensland, Brisbane 4006, Australia)

  • Amy Hickman

    (School of Public Health, The University of Queensland, Brisbane 4006, Australia
    College of Medicine and Public Health, Flinders University, Adelaide 5042, Australia)

  • Gail Garvey

    (School of Public Health, The University of Queensland, Brisbane 4006, Australia)

Abstract

As the number of people living with cancer increases, it is important to understand how people can live well with and after cancer. First Nations people diagnosed with cancer in Australia experience survival disparities relating to health service accessibility and a lack of understanding of cultural needs and lived experiences. This study aimed to amplify the voices of First Nations individuals impacted by cancer and advance the development of a culturally informed care pathway. Indigenist research methodology guided the relational and transformative approach of this study. Participants included varied cancer experts, including First Nations people living well with and after cancer, health professionals, researchers, and policy makers. Data were collected through online Yarning circles and analysed according to an inductive thematic approach. The experience of First Nations people living well with and after cancer is inextricably connected with family. The overall themes encompass hope, family, and culture and the four priority areas included the following: strength-based understanding of cancer, cancer information, access to healthcare and support, and holistic cancer services. Respect for culture is interwoven throughout. Models of survivorship care need to integrate family-centred cancer care to holistically support First Nations people throughout and beyond their cancer journey.

Suggested Citation

  • Anneliese de Groot & Bena Brown & Daniel Lindsay & Alana Gall & Nicole Hewlett & Amy Hickman & Gail Garvey, 2024. "‘How Your Spirit Is Travelling’—Understanding First Nations Peoples’ Experiences of Living Well with and after Cancer," IJERPH, MDPI, vol. 21(6), pages 1-17, June.
    • Handle: RePEc:gam:jijerp:v:21:y:2024:i:6:p:798-:d:1417686
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    References listed on IDEAS

    as
    1. Christina M Bernardes & Patricia C Valery & Brian Arley & Gregory Pratt & Linda Medlin & Judith A Meiklejohn, 2020. "Empowering Voice through the Creation of a Safe Space: An Experience of Aboriginal Women in Regional Queensland," IJERPH, MDPI, vol. 17(5), pages 1-10, February.
    2. Laura Tam & Gail Garvey & Judith Meiklejohn & Jennifer Martin & Jon Adams & Euan Walpole & Michael Fay & Patricia Valery, 2018. "Exploring Positive Survivorship Experiences of Indigenous Australian Cancer Patients," IJERPH, MDPI, vol. 15(1), pages 1-12, January.
    3. Genevieve C. Lai & Emma V. Taylor & Margaret M. Haigh & Sandra C. Thompson, 2018. "Factors Affecting the Retention of Indigenous Australians in the Health Workforce: A Systematic Review," IJERPH, MDPI, vol. 15(5), pages 1-22, May.
    4. Emma V Taylor & Marilyn Lyford & Lorraine Parsons & Toni Mason & Sabe Sabesan & Sandra C Thompson, 2020. "“We’re very much part of the team here”: A culture of respect for Indigenous health workforce transforms Indigenous health care," PLOS ONE, Public Library of Science, vol. 15(9), pages 1-25, September.
    Full references (including those not matched with items on IDEAS)

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