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Indigenous Australians’ Experiences of Cancer Care: A Narrative Literature Review

Author

Listed:
  • Saira Sanjida

    (Poche Centre for Indigenous Health, The University of Queensland, Brisbane, QLD 4072, Australia)

  • Gail Garvey

    (School of Public Health, University of Queensland, Brisbane, QLD 4072, Australia)

  • James Ward

    (Poche Centre for Indigenous Health, The University of Queensland, Brisbane, QLD 4072, Australia)

  • Roxanne Bainbridge

    (Poche Centre for Indigenous Health, The University of Queensland, Brisbane, QLD 4072, Australia)

  • Anthony Shakeshaft

    (Poche Centre for Indigenous Health, The University of Queensland, Brisbane, QLD 4072, Australia)

  • Stephanie Hadikusumo

    (Institute of Urban Indigenous Health, Windsor, Brisbane, QLD 4030, Australia
    Royal Brisbane and Women’s Hospital, Herston, Brisbane, QLD 4029, Australia)

  • Carmel Nelson

    (Institute of Urban Indigenous Health, Windsor, Brisbane, QLD 4030, Australia)

  • Prabasha Thilakaratne

    (Poche Centre for Indigenous Health, The University of Queensland, Brisbane, QLD 4072, Australia)

  • Xiang-Yu Hou

    (Poche Centre for Indigenous Health, The University of Queensland, Brisbane, QLD 4072, Australia)

Abstract

To provide the latest evidence for future research and practice, this study critically reviewed Indigenous peoples’ cancer care experiences in the Australian healthcare system from the patient’s point of view. After searching PubMed, CINAHL and Scopus databases, twenty-three qualitative studies were included in this review. The inductive approach was used for analysing qualitative data on cancer care experience in primary, tertiary and transitional care between systems. Three main themes were found in healthcare services from Indigenous cancer care experiences: communication, cultural safety, and access to services. Communication was an important theme for all healthcare systems, including language and literacy, understanding of cancer care pathways and hospital environment, and lack of information. Cultural safety was related to trust in the system, privacy, and racism. Access to health services was the main concern in transitional care between healthcare systems. While some challenges will need long-term and collective efforts, such as institutional racism as a downstream effect of colonisation, cultural training for healthcare providers and increasing the volume of the Indigenous workforce, such as Indigenous Liaison Officers or Indigenous Care Coordinators, could effectively address this inequity issue for Indigenous people with cancer in Australia in a timely manner.

Suggested Citation

  • Saira Sanjida & Gail Garvey & James Ward & Roxanne Bainbridge & Anthony Shakeshaft & Stephanie Hadikusumo & Carmel Nelson & Prabasha Thilakaratne & Xiang-Yu Hou, 2022. "Indigenous Australians’ Experiences of Cancer Care: A Narrative Literature Review," IJERPH, MDPI, vol. 19(24), pages 1-13, December.
  • Handle: RePEc:gam:jijerp:v:19:y:2022:i:24:p:16947-:d:1005975
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    References listed on IDEAS

    as
    1. Marilyn Lyford & Margaret M. Haigh & Siddhartha Baxi & Shelley Cheetham & Shaouli Shahid & Sandra C. Thompson, 2018. "An Exploration of Underrepresentation of Aboriginal Cancer Patients Attending a Regional Radiotherapy Service in Western Australia," IJERPH, MDPI, vol. 15(2), pages 1-13, February.
    2. Lorraine Bell & Kate Anderson & Afaf Girgis & Samar Aoun & Joan Cunningham & Claire E. Wakefield & Shaouli Shahid & Allan Ben Smith & Abbey Diaz & Daniel Lindsay & Adam Masa & Gail Garvey, 2021. "“We Have to Be Strong Ourselves”: Exploring the Support Needs of Informal Carers of Aboriginal and Torres Strait Islander People with Cancer," IJERPH, MDPI, vol. 18(14), pages 1-16, July.
    3. Emma V Taylor & Marilyn Lyford & Lorraine Parsons & Toni Mason & Sabe Sabesan & Sandra C Thompson, 2020. "“We’re very much part of the team here”: A culture of respect for Indigenous health workforce transforms Indigenous health care," PLOS ONE, Public Library of Science, vol. 15(9), pages 1-25, September.
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    Cited by:

    1. Shai Nkoana & Tholene Sodi & Mahlapahlapana Themane, 2024. "Prostate Cancer Knowledge, Beliefs and Screening Uptake among Black Survivors: A Qualitative Exploration at a Tertiary Hospital, Limpopo Province, South Africa," IJERPH, MDPI, vol. 21(9), pages 1-8, September.

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