IDEAS home Printed from https://ideas.repec.org/a/gam/jijerp/v21y2024i10p1387-d1502516.html
   My bibliography  Save this article

Cultural Insiders and Graphic Stories to Promote Research Readiness Among the South Asian Community: A Focus on Purpose, Protection, and Participation

Author

Listed:
  • Yatra N. Patel

    (Cancer Research Scholars Program, The University of Cincinnati Cancer Center, Cincinnati, OH 45267, USA
    These authors contributed equally to this work.)

  • Riya J. Patel

    (Cancer Research Scholars Program, The University of Cincinnati Cancer Center, Cincinnati, OH 45267, USA
    These authors contributed equally to this work.)

  • Lauren Bates

    (Cincinnati Children’s Hospital Medical Center, Department of Pediatrics, College of Medicine, University of Cincinnati, Cincinnati, OH 45229, USA
    Survivor Journeys, Longmeadow, MA 01116, USA)

  • Susan Gertz

    (Center for Chemistry Education, Department of Chemistry and Biochemistry, Miami University, Oxford, OH 45056, USA)

  • Susan Hershberger

    (Center for Chemistry Education, Department of Chemistry and Biochemistry, Miami University, Oxford, OH 45056, USA)

  • Melinda Butsch Kovacic

    (Cancer Research Scholars Program, The University of Cincinnati Cancer Center, Cincinnati, OH 45267, USA
    Cincinnati Children’s Hospital Medical Center, Department of Pediatrics, College of Medicine, University of Cincinnati, Cincinnati, OH 45229, USA
    Department of Rehabilitation, Exercise, and Nutrition Sciences, the College of Allied Health Sciences, University of Cincinnati, Cincinnati, OH 45267, USA
    Office of Community Outreach and Engagement, The University of Cincinnati Cancer Center, Cincinnati, OH 45219, USA)

Abstract

South Asians living in the United States are frequently underrepresented in health research. Their lack of participation limits the generalizability of research to them and keeps them from receiving the high-quality care and innovation that some studies may offer. “Research Ready” is a five-panel, community co-created graphic-style story that encourages discussion around the purpose of research, safety/protection while participating, and why diverse participation—including South Asians—improves study results and leads to more effective interventions/treatments. This study leveraged trained young adult “cultural insiders” to invite attendees of a Midwestern South Asian Cultural Festival to read the story aloud together as the characters in English or Hindi and used a decision guide to invite discussion. Post-discussion surveys ( N = 104) were analyzed using descriptive statistics. Participants spanned from 10 to 79 years, with 42% < 18 years and more females (61%). Only 18.3% indicated having prior research participation. Adults 40+ years (60%) requested the story/discussion in Hindi, compared to 2.3% of adolescents and 6.7% of younger adults. After the discussion, participants indicated their willingness to consider participation, with most being open to participating in surveys/interviews (95.2%); only 52.9% would consider studies requiring the taking of medicines. Adolescents, females, and adults with higher education were more willing to participate in medication studies. Nearly all (97.1%) said they would feel safe participating in research, and 88.5% shared that the discussion would help them better decide about future participation. In conclusion, “Research Ready” discussions shared by cultural insiders effectively encourage South Asians to consider future research participation.

Suggested Citation

  • Yatra N. Patel & Riya J. Patel & Lauren Bates & Susan Gertz & Susan Hershberger & Melinda Butsch Kovacic, 2024. "Cultural Insiders and Graphic Stories to Promote Research Readiness Among the South Asian Community: A Focus on Purpose, Protection, and Participation," IJERPH, MDPI, vol. 21(10), pages 1-14, October.
    • Handle: RePEc:gam:jijerp:v:21:y:2024:i:10:p:1387-:d:1502516
    as

    Download full text from publisher

    File URL: https://www.mdpi.com/1660-4601/21/10/1387/pdf
    Download Restriction: no
    File URL: https://www.mdpi.com/1660-4601/21/10/1387/
    Download Restriction: no
    ---><---

    References listed on IDEAS

    as
    1. Marisa Torres-Ruiz & Kaitlynn Robinson-Ector & Dionna Attinson & Jamie Trotter & Ayodola Anise & Steven Clauser, 2018. "A Portfolio Analysis of Culturally Tailored Trials to Address Health and Healthcare Disparities," IJERPH, MDPI, vol. 15(9), pages 1-14, August.
    2. Herrera, A.P. & Snipes, S.A. & King, D.W. & Torres-Vigil, I. & Goldberg, D.S. & Wenberg, A.D., 2010. "Disparate inclusion of older adults in clinical trials: priorities and opportunities for policy and practice change," American Journal of Public Health, American Public Health Association, vol. 100(S1), pages 105-112.
    Full references (including those not matched with items on IDEAS)

    Most related items

    These are the items that most often cite the same works as this one and are cited by the same works as this one.
    1. Soledad Domene-Martos & Margarita Rodríguez-Gallego & David Caldevilla-Domínguez & Almudena Barrientos-Báez, 2021. "The Use of Digital Portfolio in Higher Education before and during the COVID-19 Pandemic," IJERPH, MDPI, vol. 18(20), pages 1-15, October.
    2. Manka Nkimbeng & Christina E. Rosebush & Kwame O. Akosah & Hawking Yam & Wynfred N. Russell & Gabriela Bustamante & Elizabeth A. Albers & Tetyana P. Shippee & Arundhathi P. Sasikumar & Joseph E. Gaugl, 2022. "The Immigrant Memory Collaborative: A Community–University Partnership to Assess African Immigrant Families’ Experiences with Dementia," IJERPH, MDPI, vol. 19(7), pages 1-19, March.
    3. Liat Ayalon, 2020. "Life in a world for all ages: From a utopic idea to reality," Journal of Elder Policy, John Wiley & Sons, vol. 1(1), pages 39-67, June.
    4. Divyanshu Raheja & Evelyn P. Davila & Eric T. Johnson & Rijalda Deović & Michele Paine & Nadine Rouphael, 2018. "Willingness to Participate in Vaccine-Related Clinical Trials among Older Adults," IJERPH, MDPI, vol. 15(8), pages 1-12, August.
    5. Valérie Seegers & Ludovic Trinquart & Isabelle Boutron & Philippe Ravaud, 2013. "Comparison of Treatment Effect Estimates for Pharmacological Randomized Controlled Trials Enrolling Older Adults Only and Those including Adults: A Meta-Epidemiological Study," PLOS ONE, Public Library of Science, vol. 8(5), pages 1-5, May.
    6. Lorraine Greaves & Andreea C. Brabete & Mira Maximos & Ella Huber & Alice Li & Mê-Linh Lê & Sherif Eltonsy & Madeline Boscoe, 2023. "Sex, Gender, and the Regulation of Prescription Drugs: Omissions and Opportunities," IJERPH, MDPI, vol. 20(4), pages 1-19, February.
    7. Valentyn Litvin, 2020. "When ignorance is bliss: Intentional agnosticism in drug approval," Health Economics, John Wiley & Sons, Ltd., vol. 29(2), pages 185-194, February.
    8. Jesse M. Bell & Tina M. Mason & Harleah G. Buck & Cindy S. Tofthagen & Allyson R. Duffy & Maureen W. Groër & James P. McHale & Kevin E. Kip, 2021. "Challenges in Obtaining and Assessing Salivary Cortisol and α-Amylase in an Over 60 Population Undergoing Psychotherapeutic Treatment for Complicated Grief: Lessons Learned," Clinical Nursing Research, , vol. 30(5), pages 680-689, June.

    Corrections

    All material on this site has been provided by the respective publishers and authors. You can help correct errors and omissions. When requesting a correction, please mention this item's handle: RePEc:gam:jijerp:v:21:y:2024:i:10:p:1387-:d:1502516. See general information about how to correct material in RePEc.

    If you have authored this item and are not yet registered with RePEc, we encourage you to do it here. This allows to link your profile to this item. It also allows you to accept potential citations to this item that we are uncertain about.

    If CitEc recognized a bibliographic reference but did not link an item in RePEc to it, you can help with this form .

    If you know of missing items citing this one, you can help us creating those links by adding the relevant references in the same way as above, for each refering item. If you are a registered author of this item, you may also want to check the "citations" tab in your RePEc Author Service profile, as there may be some citations waiting for confirmation.

    For technical questions regarding this item, or to correct its authors, title, abstract, bibliographic or download information, contact: MDPI Indexing Manager (email available below). General contact details of provider: https://www.mdpi.com .

    Please note that corrections may take a couple of weeks to filter through the various RePEc services.

    IDEAS is a RePEc service. RePEc uses bibliographic data supplied by the respective publishers.