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Collaboration for Developing and Sustaining Community Dementia-Friendly Initiatives: A Realist Evaluation

Author

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  • Marjolein Thijssen

    (Radboud University Medical Center, Radboudumc Research Institute, Scientific Center for Quality of Healthcare (IQ Healthcare), 6525 GA Nijmegen, The Netherlands
    Radboud Alzheimer Center, Radboud University Medical Center, 6525 GA Nijmegen, The Netherlands
    Department Occupational Therapy, School of Allied Health, HAN University of Applied Sciences, 6525 EN Nijmegen, The Netherlands)

  • Maud J. L. Graff

    (Radboud University Medical Center, Radboudumc Research Institute, Scientific Center for Quality of Healthcare (IQ Healthcare), 6525 GA Nijmegen, The Netherlands
    Radboud Alzheimer Center, Radboud University Medical Center, 6525 GA Nijmegen, The Netherlands)

  • Monique A. S. Lexis

    (Research Centre Assistive Technology in Care, Zuyd University of Applied Sciences, 6419 DJ Heerlen, The Netherlands)

  • Maria W. G. Nijhuis-van der Sanden

    (Radboud University Medical Center, Radboudumc Research Institute, Scientific Center for Quality of Healthcare (IQ Healthcare), 6525 GA Nijmegen, The Netherlands)

  • Kate Radford

    (Centre for Rehabilitation and Ageing Research, School of Medicine, University of Nottingham, Nottingham NG7 2TU, UK)

  • Pip A. Logan

    (Centre for Rehabilitation and Ageing Research, School of Medicine, University of Nottingham, Nottingham NG7 2TU, UK
    Nottingham City Care Partnership, Nottingham NG6 8WR, UK)

  • Ramon Daniels

    (Research Centre Assistive Technology in Care, Zuyd University of Applied Sciences, 6419 DJ Heerlen, The Netherlands)

  • Wietske Kuijer-Siebelink

    (School of Education, HAN University of Applied Sciences, 6525 EN Nijmegen, The Netherlands
    Radboudumc Health Academy, Research on Learning and Education, Radboud University MEDICAL Center, 6525 GA Nijmegen, The Netherlands)

Abstract

Background: Dementia-friendly communities (DFCs) are seen as key to the inclusion and participation of people with dementia and carers. Dementia-friendly initiatives (DFIs) are important building blocks for the growth of DFCs. The collaboration between different stakeholders is a central aspect in developing and sustaining DFIs. Aim: This study tests and refines an initial theory about collaborating for DFIs with special attention for the involvement of people with dementia and their carers during the collaboration for DFIs. The realist approach is used for deepening contextual aspects, mechanisms, outcomes, and its explanatory power. Methods: A participatory case study design using qualitative data (focus groups, observations, reflections, minutes from meetings, and exit interviews) was executed in four Dutch municipalities that have ambitions to become dementia- friendly communities. Results: The refined theory on the collaboration for DFIs incorporates contextual aspects such as diversity, shared insights, and clarity. It draws attention to the importance of mechanisms such as the recognition of efforts and progress, informal distributed leadership, interdependency, belonging, significance, and commitment. These mechanisms resonate with feeling useful and feeling collectively powerful in the collaboration. The outcomes of collaboration were activation, getting new ideas, and fun. Our findings address how stakeholders’ routines and perspectives impact the involvement of people with dementia and their carers during collaboration. Conclusion: This study provides detailed information about collaboration for DFIs. The collaboration for DFIs is largely influenced by feeling useful and collectively powerful. Further research is needed to understand how these mechanisms can be triggered with the involvement of people with dementia and their carers in the heart of the collaboration.

Suggested Citation

  • Marjolein Thijssen & Maud J. L. Graff & Monique A. S. Lexis & Maria W. G. Nijhuis-van der Sanden & Kate Radford & Pip A. Logan & Ramon Daniels & Wietske Kuijer-Siebelink, 2023. "Collaboration for Developing and Sustaining Community Dementia-Friendly Initiatives: A Realist Evaluation," IJERPH, MDPI, vol. 20(5), pages 1-24, February.
    • Handle: RePEc:gam:jijerp:v:20:y:2023:i:5:p:4006-:d:1078338
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    References listed on IDEAS

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    1. Natascha J. E. van Vooren & Hanneke W. Drewes & Esther de Weger & Inge M. B. Bongers & Caroline A. Baan, 2020. "Cross-Sector Collaboration for a Healthy Living Environment—Which Strategies to Implement, Why, and in Which Context?," IJERPH, MDPI, vol. 17(17), pages 1-15, August.
    2. Krahn, G.L. & Walker, D.K. & Correa-De-Araujo, R., 2015. "Persons with disabilities as an unrecognized health disparity population," American Journal of Public Health, American Public Health Association, vol. 105, pages 198-206.
    3. Hanneke J. A. Smaling & Bram Tilburgs & Wilco P. Achterberg & Mandy Visser, 2022. "The Impact of Social Distancing Due to the COVID-19 Pandemic on People with Dementia, Family Carers and Healthcare Professionals: A Qualitative Study," IJERPH, MDPI, vol. 19(1), pages 1-12, January.
    4. Una Cunningham & Aoife De Brún & Mayumi Willgerodt & Erin Abu-Rish Blakeney & Eilish McAuliffe, 2021. "A Realist Evaluation of Team Interventions in Acute Hospital Contexts—Use of Two Case Studies to Test Initial Programme Theories," IJERPH, MDPI, vol. 18(16), pages 1-26, August.
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