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Living with Rheumatic Heart Disease at the Intersection of Biomedical and Aboriginal Worldviews

Author

Listed:
  • Emma Haynes

    (School of Global and Population Health, University of Western Australia, Crawley, WA 6009, Australia
    Centre for Aboriginal Medical and Dental Health, University of Western Australia, Crawley, WA 6009, Australia)

  • Minitja Marawili

    (Menzies School of Health Research, Casuarina, NT 0810, Australia)

  • Makungun B. Marika

    (Menzies School of Health Research, Casuarina, NT 0810, Australia)

  • Alice Mitchell

    (Menzies School of Health Research, Casuarina, NT 0810, Australia)

  • Roz Walker

    (School of Global and Population Health, University of Western Australia, Crawley, WA 6009, Australia
    Ngangk Yira Institute for Change, Murdoch University, Murdoch, WA 6150, Australia)

  • Judith M. Katzenellenbogen

    (School of Global and Population Health, University of Western Australia, Crawley, WA 6009, Australia)

  • Dawn Bessarab

    (Centre for Aboriginal Medical and Dental Health, University of Western Australia, Crawley, WA 6009, Australia)

Abstract

Rheumatic heart disease (RHD) significantly impacts the lives of First Nations Australians. Failure to eliminate RHD is in part attributed to healthcare strategies that fail to understand the lived experience of RHD. To rectify this, a PhD study was undertaken in the Northern Territory (NT) of Australia, combining Aboriginal ways of knowing, being and doing with interviews (24 participants from clinical and community settings) and participant observation to privilege Aboriginal voices, including the interpretations and experiences of Aboriginal co-researchers (described in the adjunct article). During analysis, Aboriginal co-researchers identified three interwoven themes: maintaining good feelings; creating clear understanding (from good information); and choosing a good djalkiri (path). These affirm a worldview that prioritises relationships, positive emotions and the wellbeing of family/community. The findings demonstrate the inter-connectedness of knowledge, choice and behaviour that become increasingly complex in stressful and traumatic health, socioeconomic, political, historical and cultural contexts. Not previously heard in the RHD domain, the findings reveal fundamental differences between Aboriginal and biomedical worldviews contributing to the failure of current approaches to communicating health messages. Mitigating this, Aboriginal co-researchers provided targeted recommendations for culturally responsive health encounters, including: communicating to create positive emotions; building trust; and providing family and community data and health messages (rather than individualistic).

Suggested Citation

  • Emma Haynes & Minitja Marawili & Makungun B. Marika & Alice Mitchell & Roz Walker & Judith M. Katzenellenbogen & Dawn Bessarab, 2022. "Living with Rheumatic Heart Disease at the Intersection of Biomedical and Aboriginal Worldviews," IJERPH, MDPI, vol. 19(8), pages 1-20, April.
  • Handle: RePEc:gam:jijerp:v:19:y:2022:i:8:p:4650-:d:792259
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    References listed on IDEAS

    as
    1. Haynes, Emma & Marawili, Minitja & Marika, Brendan Makungun & Mitchell, Alice G. & Phillips, Jodi & Bessarab, Dawn & Walker, Roz & Cook, Jeff & Ralph, Anna P., 2019. "Community-based participatory action research on rheumatic heart disease in an Australian Aboriginal homeland: Evaluation of the ‘On track watch’ project," Evaluation and Program Planning, Elsevier, vol. 74(C), pages 38-53.
    2. Emma Haynes & Alice Mitchell & Stephanie Enkel & Rosemary Wyber & Dawn Bessarab, 2020. "Voices behind the Statistics: A Systematic Literature Review of the Lived Experience of Rheumatic Heart Disease," IJERPH, MDPI, vol. 17(4), pages 1-25, February.
    3. Emma Haynes & Minitja Marawili & Alice Mitchell & Roz Walker & Judith Katzenellenbogen & Dawn Bessarab, 2022. "“Weaving a Mat That We Can All Sit On”: Qualitative Research Approaches for Productive Dialogue in the Intercultural Space," IJERPH, MDPI, vol. 19(6), pages 1-18, March.
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    Cited by:

    1. Emma Haynes & Minitja Marawili & Alice Mitchell & Roz Walker & Judith Katzenellenbogen & Dawn Bessarab, 2022. "“Weaving a Mat That We Can All Sit On”: Qualitative Research Approaches for Productive Dialogue in the Intercultural Space," IJERPH, MDPI, vol. 19(6), pages 1-18, March.

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