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Negative Impact and Positive Value of Caregiving in Spouse Carers of Persons with Dementia in Sweden

Author

Listed:
  • Marcus F. Johansson

    (School of Health and Welfare, Dalarna University, 791 88 Falun, Sweden)

  • Kevin J. McKee

    (School of Health and Welfare, Dalarna University, 791 88 Falun, Sweden)

  • Lena Dahlberg

    (School of Health and Welfare, Dalarna University, 791 88 Falun, Sweden
    Aging Research Center, Karolinska Institutet & Stockholm University, Tomtebodavägen 18A, 171 65 Solna, Sweden)

  • Martina Summer Meranius

    (School of Health, Care and Social Welfare, Mälardalen University, 721 23 Västerås, Sweden)

  • Christine L. Williams

    (Christine E Lynn College of Nursing, Florida Atlantic University Boca Raton, FL 334 31, USA)

  • Lena Marmstål Hammar

    (School of Health and Welfare, Dalarna University, 791 88 Falun, Sweden
    School of Health, Care and Social Welfare, Mälardalen University, 721 23 Västerås, Sweden
    Department of Neurobiology, Care Sciences and Society, Karolinska Institutet, Alfred Nobels Allé 23, 141 52 Huddinge, Sweden)

Abstract

(1) Background: Spouse carers of persons with dementia (PwD) are particularly vulnerable to negative outcomes of care, yet research rarely focuses on their caregiving situation. This study explores factors associated with the positive value and negative impact of caregiving in spouse carers of PwD in Sweden. (2) Methods: The study was a cross-sectional questionnaire-based survey, with a convenience sample of spouse carers of PwD ( n = 163). The questionnaire addressed: care situation, carer stress, health and social well-being, relationship quality and quality of support, and contained measures of positive value and negative impact of caregiving. (3) Results: Hierarchical regression models explained 63.4% variance in positive value and 63.2% variance in negative impact of caregiving. Three variables were significant in the model of positive value: mutuality, change in emotional closeness following dementia and quality of support. Six variables were significant in the model of negative impact: years in relationship, years as carer, behavioural stress, self-rated health, emotional loneliness and change in physical intimacy following dementia. (4) Conclusions: Support to spouse carers of PwD should address the carer–care-recipient relationship quality, although different aspects of the relationship should be addressed if both the positive value of caregiving is to be enhanced and the negative impact reduced.

Suggested Citation

  • Marcus F. Johansson & Kevin J. McKee & Lena Dahlberg & Martina Summer Meranius & Christine L. Williams & Lena Marmstål Hammar, 2022. "Negative Impact and Positive Value of Caregiving in Spouse Carers of Persons with Dementia in Sweden," IJERPH, MDPI, vol. 19(3), pages 1-13, February.
    • Handle: RePEc:gam:jijerp:v:19:y:2022:i:3:p:1788-:d:742393
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    References listed on IDEAS

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    1. Cristina Huertas-Domingo & María Márquez-González & Isabel Cabrera & Samara Barrera-Caballero & María del Sequeros Pedroso-Chaparro & Rosa Romero-Moreno & Andrés Losada-Baltar, 2021. "Sociocultural Influences on the Feeling of Loneliness of Family Caregivers of People with Dementia: The Role of Kinship," IJERPH, MDPI, vol. 18(9), pages 1-12, April.
    2. P.L. de Zwart & P. Bakx & E.K.A. van Doorslaer, 2017. "Will you still need me, will you still feed me when I'm 64? The health impact of caregiving to one's spouse," Health Economics, John Wiley & Sons, Ltd., vol. 26(S2), pages 127-138, September.
    3. Min Ji Song & Ji Hyun Kim, 2021. "Family Caregivers of People with Dementia Have Poor Sleep Quality: A Nationwide Population-Based Study," IJERPH, MDPI, vol. 18(24), pages 1-12, December.
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    Cited by:

    1. Marcus F. Johansson & Kevin J. McKee & Lena Dahlberg & Christine L. Williams & Lena Marmstål Hammar, 2024. "Perceived Importance of Types and Characteristics of Support to Informal Caregivers among Spouse Caregivers of Persons with Dementia in Sweden: A Cross-Sectional Questionnaire-Based Study," IJERPH, MDPI, vol. 21(10), pages 1-17, October.
    2. Isabelle von Saenger & Lena Dahlberg & Erika Augustsson & Johan Fritzell & Carin Lennartsson, 2023. "Will your child take care of you in your old age? Unequal caregiving received by older parents from adult children in Sweden," European Journal of Ageing, Springer, vol. 20(1), pages 1-13, December.

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