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Everyday Experiences of People Living with Mild Cognitive Impairment or Dementia: A Scoping Review

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  • Jacoba Huizenga

    (Institute of Social Work, HU University of Applied Sciences Utrecht, 3507 LC Utrecht, The Netherlands
    Research Center Social Innovation, HU University of Applied Sciences Utrecht, 3507 LC Utrecht, The Netherlands
    Department of Tranzo, School of Social and Behavioral Sciences, Tilburg University, 5000 LE Tilburg, The Netherlands)

  • Aukelien Scheffelaar

    (Department of Tranzo, School of Social and Behavioral Sciences, Tilburg University, 5000 LE Tilburg, The Netherlands)

  • Agnetha Fruijtier

    (Research Center Social Innovation, HU University of Applied Sciences Utrecht, 3507 LC Utrecht, The Netherlands)

  • Jean Pierre Wilken

    (Research Center Social Innovation, HU University of Applied Sciences Utrecht, 3507 LC Utrecht, The Netherlands)

  • Nienke Bleijenberg

    (Research Center Healthy & Sustainable Living, HU University of Applied Sciences Utrecht, 3507 LC Utrecht, The Netherlands
    Department Julius Center for Health Sciences and Primary Care, University Medical Center Utrecht, 3584 CG Utrecht, The Netherlands)

  • Tine Van Regenmortel

    (Department of Tranzo, School of Social and Behavioral Sciences, Tilburg University, 5000 LE Tilburg, The Netherlands
    HIVA—Research Institute for Work and Society, Faculty of Social Sciences, University of Leuven, B-3000 Leuven, Belgium)

Abstract

Increasing attention has been paid to the ‘voice’ of people living with mild cognitive impairment (MCI) or dementia, but there is a lack of clarity about how everyday life is perceived from this insider’s perspective. This study aimed to explore the everyday life experiences, challenges and facilitators of individuals with MCI and dementia living at home. A scoping review of qualitative studies, guided by the Joanna Briggs Institute Reviewers Manual, was conducted. Eight databases were searched, resulting in 6345 records, of which 58 papers published between 2011 and 2021 were included. Analysis was carried out by descriptive content analysis. Findings were categorized into seven spheres of everyday life: experiences related to the condition, self, relationships, activities, environment, health and social care and public opinions. The results show many disruptions and losses in everyday life and how people try to accommodate these changes. In all areas of everyday life, people show a deep desire to have reciprocal relationships, stay engaged through participation in activities and have a sense of belonging in the community. However, more research is needed on the factors that promote and impede the sense of reciprocity and belonging.

Suggested Citation

  • Jacoba Huizenga & Aukelien Scheffelaar & Agnetha Fruijtier & Jean Pierre Wilken & Nienke Bleijenberg & Tine Van Regenmortel, 2022. "Everyday Experiences of People Living with Mild Cognitive Impairment or Dementia: A Scoping Review," IJERPH, MDPI, vol. 19(17), pages 1-25, August.
    • Handle: RePEc:gam:jijerp:v:19:y:2022:i:17:p:10828-:d:902305
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    References listed on IDEAS

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    1. Clark, Andrew & Campbell, Sarah & Keady, John & Kullberg, Agneta & Manji, Kainde & Rummery, Kirstein & Ward, Richard, 2020. "Neighbourhoods as relational places for people living with dementia," Social Science & Medicine, Elsevier, vol. 252(C).
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    3. Bartlett, Ruth & Brannelly, Tula, 2019. "On being outdoors: How people with dementia experience and deal with vulnerabilities," Social Science & Medicine, Elsevier, vol. 235(C), pages 1-1.
    4. Linda Johansson & Lennart Christensson & Birgitta Sidenvall, 2011. "Managing mealtime tasks: told by persons with dementia," Journal of Clinical Nursing, John Wiley & Sons, vol. 20(17‐18), pages 2552-2562, September.
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