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Parents’ Perceptions and Experiences with Their Children’s Use of Augmentative/Alternative Communication: A Systematic Review and Qualitative Meta-Synthesis

Author

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  • Carmen Berenguer

    (Department of Developmental and Educational Psychology and ERI-Lectura, University of Valencia, Avda. Blasco Ibáñez, 21, 46010 Valencia, Spain)

  • Eva Rosa Martínez

    (Department of Basic Psychology and ERI-Lectura, University of Valencia, Avda. Blasco Ibáñez, 21, 46010 Valencia, Spain)

  • Simona De Stasio

    (Department of Human Studies, LUMSA University, 00193 Rome, Italy)

  • Inmaculada Baixauli

    (Campus Capacitas, Catholic University of Valencia, 46010 Valencia, Spain)

Abstract

Augmentative and alternative communication (AAC) consists of any method of communicating that supplements or completely substitutes oral and/or written language when it is impaired. Therefore, it enables children with complex communication needs to develop their full communicative potential. However, despite the many benefits of AAC and its widespread use, several review studies have underscored the problems faced by parents and children who use AAC in their daily lives. The general objective of this systematic review and qualitative meta-synthesis is to provide a complete overview of parents’ experiences and perceptions with their children’s use of AAC. Specifically, it aimed to identify common themes and subthemes of interest and to analyze the research quality of the selected studies. An exhaustive literature search was carried out using different electronic databases. Nineteen studies were included, involving 297 parents. A thematic synthesis was undertaken. Three main themes and nine subthemes were identified: service support (accessibility, providers and coordination); characteristics of AAC systems (usability and acceptability, features, cost and funding); and integration of AAC in daily life (family, school, social and community). Findings raise a need for more services that support children with complex communication deficits in different contexts, more functional use of AAC systems at school and in real-world situations, as well as service assistance over an extended time period.

Suggested Citation

  • Carmen Berenguer & Eva Rosa Martínez & Simona De Stasio & Inmaculada Baixauli, 2022. "Parents’ Perceptions and Experiences with Their Children’s Use of Augmentative/Alternative Communication: A Systematic Review and Qualitative Meta-Synthesis," IJERPH, MDPI, vol. 19(13), pages 1-19, July.
    • Handle: RePEc:gam:jijerp:v:19:y:2022:i:13:p:8091-:d:853708
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    References listed on IDEAS

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    1. David Moher & Alessandro Liberati & Jennifer Tetzlaff & Douglas G Altman & The PRISMA Group, 2009. "Preferred Reporting Items for Systematic Reviews and Meta-Analyses: The PRISMA Statement," PLOS Medicine, Public Library of Science, vol. 6(7), pages 1-6, July.
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