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The Lived Experiences of Stigmatization in the Process of HIV Status Disclosure among People Living with HIV in Taiwan

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  • Chia-Hui Yu

    (School of Nursing, College of Medicine, Chung Shan Medical University, Taichung 40201, Taiwan
    Center of Infection Control, Chung Shan Medical University Hospital, Taichung 40201, Taiwan)

  • Chu-Yu Huang

    (School of Nursing, Cedarville University, Cedarville, OH 45314, USA)

  • Nai-Ying Ko

    (Departments of Nursing, College of Medicine, National Cheng Kung University, Tainan 70101, Taiwan)

  • Heng-Hsin Tung

    (College of Nursing, National Yang Ming Chiao Tung University, Taipei 11219, Taiwan)

  • Hui-Man Huang

    (School of Nursing, Tzu Chi University of Science and Technology, Hua-lien 970302, Taiwan)

  • Su-Fen Cheng

    (Department of Allied Health Education and Digital Learning, National Taipei University of Nursing and Health Sciences, Taipei 11219, Taiwan)

Abstract

People living with HIV (PLWH) face social stigma which makes disclosure of HIV status difficult. The purpose of this descriptive qualitative study was to understand the lived experiences of stigmatization in the process of disease disclosure among PLWH in Taiwan. Analysis of the semi-structured interviews from 19 PLWH in Taiwan revealed two phases and six themes. Phase one “experiences before disclosure” involved three themes: “Struggles under the pressure of concealing the HIV Status”, “Torn between fear of unemployment/isolation and desire to protect closed ones”, and “Being forced to disclose the HIV status.” Phase two “experiences after disclosure” included three themes: “Receiving special considerations and requirements from school or work”, “Receiving differential treatments in life and when seeking medical care”, and “Stress relief and restart.” Healthcare professionals need to assess stigmatization in PLWH and develop individualized approaches to assist with the disease disclosure process.

Suggested Citation

  • Chia-Hui Yu & Chu-Yu Huang & Nai-Ying Ko & Heng-Hsin Tung & Hui-Man Huang & Su-Fen Cheng, 2021. "The Lived Experiences of Stigmatization in the Process of HIV Status Disclosure among People Living with HIV in Taiwan," IJERPH, MDPI, vol. 18(10), pages 1-12, May.
    • Handle: RePEc:gam:jijerp:v:18:y:2021:i:10:p:5089-:d:552488
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    References listed on IDEAS

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    1. repec:aph:ajpbhl:10.2105/ajph.2017.303744_4 is not listed on IDEAS
    2. Turan, B. & Hatcher, A.M. & Weiser, S.D. & Johnson, M.O. & Rice, W.S. & Turan, J.M., 2017. "Framing mechanisms linking HIV-related stigma, adherence to treatment, and health outcomes," American Journal of Public Health, American Public Health Association, vol. 107(6), pages 863-869.
    3. Yang, Lawrence Hsin & Kleinman, Arthur & Link, Bruce G. & Phelan, Jo C. & Lee, Sing & Good, Byron, 2007. "Culture and stigma: Adding moral experience to stigma theory," Social Science & Medicine, Elsevier, vol. 64(7), pages 1524-1535, April.
    4. Obermeyer, C.M. & Baijal, P. & Pegurri, E., 2011. "Facilitating HIV disclosure across diverse settings: A review," American Journal of Public Health, American Public Health Association, vol. 101(6), pages 1011-1023.
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    1. Agata Skrzat-Klapaczyńska & Justyna D. Kowalska & Larisa Afonina & Svitlana Antonyak & Tatevik Balayan & Josip Begovac & Dominik Bursa & Gordana Dragovic & Deniz Gokengin & Arjan Harxhi & David Jilich, 2022. "The Management of HIV Care Services in Central and Eastern Europe: Data from the Euroguidelines in Central and Eastern Europe Network Group," IJERPH, MDPI, vol. 19(13), pages 1-9, June.

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