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The Barriers to Caring for a Child Living with Cerebral Palsy (CP) in Rural Limpopo, South Africa

Author

Listed:
  • Ngokwana Rachamose

    (Department of Psychology, School of Human and Community Development, Faculty of Humanities, University of the Witwatersrand, Johannesburg 2050, South Africa)

  • Clare Harvey

    (Department of Psychology, School of Human and Community Development, Faculty of Humanities, University of the Witwatersrand, Johannesburg 2050, South Africa)

Abstract

Maternal primary caregivers in rural low-income contexts who care for children with cerebral palsy (CP) experience significant barriers related to their caregiving responsibilities that have a profound impact on all aspects of their lives. This paper reports on a study that aimed to explore barriers related to caring for a child living with CP in the rural province of Limpopo, South Africa. An exploratory qualitative research design was employed. Purposive, convenience, and snowball sampling was used to recruit 10 primary maternal caregivers of children living with CP between the ages of 3 and 18 years. A semi-structured interview was used to collect data. The data were analyzed using a thematic analysis. This study found six barriers related to caring for a child living with CP in rural areas, which included physical, financial, social, emotional, spiritual, and health barriers. The primary maternal caregivers of children living with CP in rural areas experience a significant burden of care. Consequently, they need support and respite care to ease these challenges.

Suggested Citation

  • Ngokwana Rachamose & Clare Harvey, 2025. "The Barriers to Caring for a Child Living with Cerebral Palsy (CP) in Rural Limpopo, South Africa," Disabilities, MDPI, vol. 5(1), pages 1-18, January.
    • Handle: RePEc:gam:jdisab:v:5:y:2025:i:1:p:11-:d:1572802
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    References listed on IDEAS

    as
    1. Nontokozo Lilian Mbatha & Kebogile Elizabeth Mokwena, 2023. "Parental Stress in Raising a Child with Developmental Disabilities in a Rural Community in South Africa," IJERPH, MDPI, vol. 20(5), pages 1-15, February.
    2. Pablo A. Cantero-Garlito & Pedro Moruno-Miralles & Juan Antonio Flores-Martos, 2020. "Mothers Who Take Care of Children with Disabilities in Rural Areas of a Spanish Region," IJERPH, MDPI, vol. 17(8), pages 1-13, April.
    3. Kelvin Ying & Hans Van Rostenberghe & Garry Kuan & Mohammad Haris Amirul Mohd Yusoff & Siti Hawa Ali & Nik Soriani Yaacob, 2021. "Health-Related Quality of Life and Family Functioning of Primary Caregivers of Children with Cerebral Palsy in Malaysia," IJERPH, MDPI, vol. 18(5), pages 1-13, February.
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