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Managing Cystic Fibrosis in Polish Healthcare

Author

Listed:
  • Marta Rachel

    (Institute of Medical Sciences, Medical College, University of Rzeszów, 35-959 Rzeszów, Poland
    Department of Allergology and Cystic Fibrosis, State Hospital 2 in Rzeszow, 35-301 Rzeszów, Poland)

  • Stanisław Topolewicz

    (Mechanical School, Rzeszów 35-078, Poland)

  • Andrzej Śliwczyński

    (Division of Quality Services, Procedures and Medical Standards, Medical University in Łódź, 90-647 Łódź, Poland)

  • Sabina Galiniak

    (Institute of Medical Sciences, Medical College, University of Rzeszów, 35-959 Rzeszów, Poland)

Abstract

The quality and length of life of patients with cystic fibrosis (CF) are determined by a number of factors including the quality of healthcare received by patients, as well as access to drug programs dedicated to this particular disease. The purpose of this paper is to present an overview of changes in the average life expectancy and mortality rate of the CF population in Poland between 2000 and 2018. Furthermore, we would like to evaluate access to healthcare services, including the drug program, guaranteed by public healthcare system, and funded by National Health Fund (NHF). The average life expectancy of patients with CF increased in the period in question from ca. 14.5 ± 7.6–24.5 ± 8.9 years (mean ± SD, p = 0.0001). We have observed a drop in the number of deaths in paediatric age during that period. Despite the increase in life expectancy, the use of health resources in patients with CF, especially the drug program, is dramatically low. Considering the fact that in Poland there was no active countrywide CF registry, now it is possible to estimate the frequency of use of CF healthcare services in various provinces exclusively on the basis of database maintained by the Polish NHF.

Suggested Citation

  • Marta Rachel & Stanisław Topolewicz & Andrzej Śliwczyński & Sabina Galiniak, 2020. "Managing Cystic Fibrosis in Polish Healthcare," IJERPH, MDPI, vol. 17(20), pages 1-17, October.
    • Handle: RePEc:gam:jijerp:v:17:y:2020:i:20:p:7630-:d:431493
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    References listed on IDEAS

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    1. Ana Villaverde-Hueso & Germán Sánchez-Díaz & Francisco J. Molina-Cabrero & Elisa Gallego & Manuel Posada de la Paz & Verónica Alonso-Ferreira, 2019. "Mortality Due to Cystic Fibrosis over a 36-Year Period in Spain: Time Trends and Geographic Variations," IJERPH, MDPI, vol. 16(1), pages 1-12, January.
    2. Anna Zolin & Anna Bossi & Natalia Cirilli & Nataliya Kashirskaya & Rita Padoan, 2018. "Cystic Fibrosis Mortality in Childhood. Data from European Cystic Fibrosis Society Patient Registry," IJERPH, MDPI, vol. 15(9), pages 1-11, September.
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    Cited by:

    1. Thi Tham Nguyen & Congrong He & Robyn Carter & Emma L. Ballard & Kim Smith & Robert Groth & Esa Jaatinen & Timothy J. Kidd & Thuy-Khanh Nguyen & Rebecca E. Stockwell & George Tay & Graham R. Johnson &, 2022. "The Effectiveness of Ultraviolet-C (UV-C) Irradiation on the Viability of Airborne Pseudomonas aeruginosa," IJERPH, MDPI, vol. 19(20), pages 1-15, October.
    2. Marta Rachel & Marek Biesiadecki & Sabina Galiniak, 2022. "Cystic Fibrosis-Related Diabetes in Poland," IJERPH, MDPI, vol. 19(7), pages 1-9, March.
    3. Marta Rachel & Sabina Galiniak & Marek Biesiadecki & Agnieszka Gala-Błądzińska, 2022. "Renal Function in Patients with Cystic Fibrosis: A Single-Center Study," IJERPH, MDPI, vol. 19(9), pages 1-11, April.

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    1. Ana Villaverde-Hueso & Germán Sánchez-Díaz & Francisco J. Molina-Cabrero & Elisa Gallego & Manuel Posada de la Paz & Verónica Alonso-Ferreira, 2019. "Mortality Due to Cystic Fibrosis over a 36-Year Period in Spain: Time Trends and Geographic Variations," IJERPH, MDPI, vol. 16(1), pages 1-12, January.

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