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A Systematic Review of the Psychosocial Adjustment of Children and Adolescents with Facial Palsy: The Impact of Moebius Syndrome

Author

Listed:
  • Matthew Hotton

    (Oxford Facial Palsy Service, Oxford University Hospitals NHS Foundation Trust, Oxford OX3 9DU, UK)

  • Esme Huggons

    (Oxford Facial Palsy Service, Oxford University Hospitals NHS Foundation Trust, Oxford OX3 9DU, UK)

  • Claire Hamlet

    (Centre for Appearance Research, University of the West of England, Bristol BS16 1QY, UK)

  • Kathleen Bogart

    (School of Psychological Science, Oregon State University, Corvallis, OR 97331, USA)

  • David Johnson

    (Oxford Facial Palsy Service, Oxford University Hospitals NHS Foundation Trust, Oxford OX3 9DU, UK)

  • Jonathan H. Norris

    (Oxford Eye Hospital, Oxford University Hospitals NHS Foundation Trust, Oxford OX3 9DU, UK)

  • Sarah Kilcoyne

    (Oxford Facial Palsy Service, Oxford University Hospitals NHS Foundation Trust, Oxford OX3 9DU, UK)

  • Louise Dalton

    (Oxford Facial Palsy Service, Oxford University Hospitals NHS Foundation Trust, Oxford OX3 9DU, UK)

Abstract

Introduction: Facial palsy is often associated with impaired facial function and altered appearance. However, the literature with regards to the psychological adjustment of children and adolescents with facial palsy has not been systematically reviewed to date. This paper aimed to review all published research with regards to psychosocial adjustment for children and adolescents with facial palsy. Methods: MEDLINE, CINAHL, Embase, PsychInfo and AMED databases were searched and data was extracted with regards to participant characteristics, study methodology, outcome measures used, psychosocial adjustment and study quality. Results: Five studies were eligible for inclusion, all of which investigated psychosocial adjustment in participants with Moebius syndrome, a form of congenital facial palsy. Many parents reported their children to have greater social difficulties than general population norms, with difficulties potentially increasing with age. Other areas of psychosocial adjustment, including behaviour, anxiety and depression, were found to be more comparable to the general population. Discussion: Children and adolescents with Moebius syndrome may experience social difficulties. However, they also demonstrate areas of resilience. Further research including individuals with facial palsy of other aetiologies is required in order to determine the psychosocial adjustment of children and adolescents with facial palsy.

Suggested Citation

  • Matthew Hotton & Esme Huggons & Claire Hamlet & Kathleen Bogart & David Johnson & Jonathan H. Norris & Sarah Kilcoyne & Louise Dalton, 2020. "A Systematic Review of the Psychosocial Adjustment of Children and Adolescents with Facial Palsy: The Impact of Moebius Syndrome," IJERPH, MDPI, vol. 17(15), pages 1-16, July.
    • Handle: RePEc:gam:jijerp:v:17:y:2020:i:15:p:5528-:d:392372
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    References listed on IDEAS

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    1. David Moher & Alessandro Liberati & Jennifer Tetzlaff & Douglas G Altman & The PRISMA Group, 2009. "Preferred Reporting Items for Systematic Reviews and Meta-Analyses: The PRISMA Statement," PLOS Medicine, Public Library of Science, vol. 6(7), pages 1-6, July.
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    Cited by:

    1. Denise K. Liberton & Konstantinia Almpani & Rashmi Mishra & Carol Bassim & Carol Van Ryzin & on behalf of the Moebius Syndrome Research Consortium & Bryn D. Webb & Ethylin Wang Jabs & Elizabeth C. Eng, 2024. "Oral Health-Related Quality of Life in Rare Disorders of Congenital Facial Weakness," IJERPH, MDPI, vol. 21(5), pages 1-11, May.

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