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Patient Perspectives to Inform a Health Literacy Educational Program: A Systematic Review and Thematic Synthesis of Qualitative Studies

Author

Listed:
  • Margot Jager

    (Department of Health Sciences, University Medical Center Groningen and University of Groningen, 9700 AD Groningen, The Netherlands
    Shared first authorship.)

  • Janine de Zeeuw

    (Department of Health Sciences, University Medical Center Groningen and University of Groningen, 9700 AD Groningen, The Netherlands
    Department of Medical Sciences, Educational Institute, University Medical Center Groningen, University of Groningen, 9700 RB Groningen, The Netherlands
    Shared first authorship.)

  • Janne Tullius

    (Department of Health Sciences, University Medical Center Groningen and University of Groningen, 9700 AD Groningen, The Netherlands)

  • Roberta Papa

    (Regional Health Agency Marche Region, 60125 Ancona, Italy
    IRCCS INRCA, 60124 Ancona, Italy)

  • Cinzia Giammarchi

    (Regional Health Agency Marche Region, 60125 Ancona, Italy
    IRCCS INRCA, 60124 Ancona, Italy)

  • Amanda Whittal

    (Department of Psychology & Methods, Jacobs University, 28759 Bremen, Germany)

  • Andrea F. de Winter

    (Department of Health Sciences, University Medical Center Groningen and University of Groningen, 9700 AD Groningen, The Netherlands)

Abstract

Patient-centred care is tailored to the needs of patients and is necessary for better health outcomes, especially for individuals with limited health literacy (LHL). However, its implementation remains challenging. The key to effectively address patient-centred care is to include perspectives of patients with LHL within the curricula of (future) healthcare providers (HCP). This systematic review aimed to explore and synthesize evidence on the needs, experiences and preferences of patients with LHL and to inform an existing educational framework. We searched three databases: PsychInfo, Medline and Cinahl, and extracted 798 articles. One-hundred and three articles met the inclusion criteria. After data extraction and thematic synthesis, key themes were identified. Patients with LHL and chronic diseases encounter multiple problems in the care process, which are often related to a lack of person-centeredness. Patient perspectives were categorized into four key themes: (1) Support system; (2) Patient self-management; (3) Capacities of HCPs; (4) Barriers in healthcare systems. “Cultural sensitivity” and “eHealth” were identified as recurring themes. A set of learning outcomes for (future) HCPs was developed based on our findings. The perspectives of patients with LHL provided valuable input for a comprehensive and person-centred educational framework that can enhance the relevance and quality of education for (future) HCPs, and contribute to better person-centred care for patients with LHL.

Suggested Citation

  • Margot Jager & Janine de Zeeuw & Janne Tullius & Roberta Papa & Cinzia Giammarchi & Amanda Whittal & Andrea F. de Winter, 2019. "Patient Perspectives to Inform a Health Literacy Educational Program: A Systematic Review and Thematic Synthesis of Qualitative Studies," IJERPH, MDPI, vol. 16(21), pages 1-23, November.
    • Handle: RePEc:gam:jijerp:v:16:y:2019:i:21:p:4300-:d:283834
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    References listed on IDEAS

    as
    1. Ryan A. Gainer & Janet Curran & Karen J. Buth & Jennie G. David & Jean-Francois Légaré & Gregory M. Hirsch, 2017. "Toward Optimal Decision Making among Vulnerable Patients Referred for Cardiac Surgery: A Qualitative Analysis of Patient and Provider Perspectives," Medical Decision Making, , vol. 37(5), pages 600-610, July.
    2. Bas Geboers & Sijmen A. Reijneveld & Jaap A. R. Koot & Andrea F. De Winter, 2018. "Moving towards a Comprehensive Approach for Health Literacy Interventions: The Development of a Health Literacy Intervention Model," IJERPH, MDPI, vol. 15(6), pages 1-11, June.
    3. Maria Catherine Raven & Colleen C. Gillespie & Rebecca DiBennardo & Kristin Van Busum & Brian Elbel, 2012. "Vulnerable Patients’ Perceptions of Health Care Quality and Quality Data," Medical Decision Making, , vol. 32(2), pages 311-326, March.
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    Cited by:

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    2. Sophia Herrera & Alide Salazar & Gabriela Nazar, 2022. "Barriers and Supports in eHealth Implementation among People with Chronic Cardiovascular Ailments: Integrative Review," IJERPH, MDPI, vol. 19(14), pages 1-13, July.
    3. Flaviane Cristina Rocha Cesar & Lizete Malagoni de Almeida Cavalcante Oliveira & Mariana Cristyen Galvão & Ana Luiza Andrade Lacerda, 2024. "How Do Healthcare Professionals Develop the Communication Process to Promote Patients’ Health Literacy?," IJERPH, MDPI, vol. 21(5), pages 1-12, April.

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