IDEAS home Printed from https://ideas.repec.org/a/gam/jijerp/v16y2019i21p4300-d283834.html
   My bibliography  Save this article

Patient Perspectives to Inform a Health Literacy Educational Program: A Systematic Review and Thematic Synthesis of Qualitative Studies

Author

Listed:
  • Margot Jager

    (Department of Health Sciences, University Medical Center Groningen and University of Groningen, 9700 AD Groningen, The Netherlands
    Shared first authorship.)

  • Janine de Zeeuw

    (Department of Health Sciences, University Medical Center Groningen and University of Groningen, 9700 AD Groningen, The Netherlands
    Department of Medical Sciences, Educational Institute, University Medical Center Groningen, University of Groningen, 9700 RB Groningen, The Netherlands
    Shared first authorship.)

  • Janne Tullius

    (Department of Health Sciences, University Medical Center Groningen and University of Groningen, 9700 AD Groningen, The Netherlands)

  • Roberta Papa

    (Regional Health Agency Marche Region, 60125 Ancona, Italy
    IRCCS INRCA, 60124 Ancona, Italy)

  • Cinzia Giammarchi

    (Regional Health Agency Marche Region, 60125 Ancona, Italy
    IRCCS INRCA, 60124 Ancona, Italy)

  • Amanda Whittal

    (Department of Psychology & Methods, Jacobs University, 28759 Bremen, Germany)

  • Andrea F. de Winter

    (Department of Health Sciences, University Medical Center Groningen and University of Groningen, 9700 AD Groningen, The Netherlands)

Abstract

Patient-centred care is tailored to the needs of patients and is necessary for better health outcomes, especially for individuals with limited health literacy (LHL). However, its implementation remains challenging. The key to effectively address patient-centred care is to include perspectives of patients with LHL within the curricula of (future) healthcare providers (HCP). This systematic review aimed to explore and synthesize evidence on the needs, experiences and preferences of patients with LHL and to inform an existing educational framework. We searched three databases: PsychInfo, Medline and Cinahl, and extracted 798 articles. One-hundred and three articles met the inclusion criteria. After data extraction and thematic synthesis, key themes were identified. Patients with LHL and chronic diseases encounter multiple problems in the care process, which are often related to a lack of person-centeredness. Patient perspectives were categorized into four key themes: (1) Support system; (2) Patient self-management; (3) Capacities of HCPs; (4) Barriers in healthcare systems. “Cultural sensitivity” and “eHealth” were identified as recurring themes. A set of learning outcomes for (future) HCPs was developed based on our findings. The perspectives of patients with LHL provided valuable input for a comprehensive and person-centred educational framework that can enhance the relevance and quality of education for (future) HCPs, and contribute to better person-centred care for patients with LHL.

Suggested Citation

  • Margot Jager & Janine de Zeeuw & Janne Tullius & Roberta Papa & Cinzia Giammarchi & Amanda Whittal & Andrea F. de Winter, 2019. "Patient Perspectives to Inform a Health Literacy Educational Program: A Systematic Review and Thematic Synthesis of Qualitative Studies," IJERPH, MDPI, vol. 16(21), pages 1-23, November.
    • Handle: RePEc:gam:jijerp:v:16:y:2019:i:21:p:4300-:d:283834
    as

    Download full text from publisher

    File URL: https://www.mdpi.com/1660-4601/16/21/4300/pdf
    Download Restriction: no
    File URL: https://www.mdpi.com/1660-4601/16/21/4300/
    Download Restriction: no
    ---><---

    References listed on IDEAS

    as
    1. Ryan A. Gainer & Janet Curran & Karen J. Buth & Jennie G. David & Jean-Francois Légaré & Gregory M. Hirsch, 2017. "Toward Optimal Decision Making among Vulnerable Patients Referred for Cardiac Surgery: A Qualitative Analysis of Patient and Provider Perspectives," Medical Decision Making, , vol. 37(5), pages 600-610, July.
    2. Maria Catherine Raven & Colleen C. Gillespie & Rebecca DiBennardo & Kristin Van Busum & Brian Elbel, 2012. "Vulnerable Patients’ Perceptions of Health Care Quality and Quality Data," Medical Decision Making, , vol. 32(2), pages 311-326, March.
    3. Bas Geboers & Sijmen A. Reijneveld & Jaap A. R. Koot & Andrea F. De Winter, 2018. "Moving towards a Comprehensive Approach for Health Literacy Interventions: The Development of a Health Literacy Intervention Model," IJERPH, MDPI, vol. 15(6), pages 1-11, June.
    Full references (including those not matched with items on IDEAS)

    Citations

    Citations are extracted by the CitEc Project, subscribe to its RSS feed for this item.
    as


    Cited by:

    1. Marco D. Boonstra & Sijmen A. Reijneveld & Gerjan Navis & Ralf Westerhuis & Andrea F. de Winter, 2021. "Co-Creation of a Multi-Component Health Literacy Intervention Targeting Both Patients with Mild to Severe Chronic Kidney Disease and Health Care Professionals," IJERPH, MDPI, vol. 18(24), pages 1-19, December.
    2. Sophia Herrera & Alide Salazar & Gabriela Nazar, 2022. "Barriers and Supports in eHealth Implementation among People with Chronic Cardiovascular Ailments: Integrative Review," IJERPH, MDPI, vol. 19(14), pages 1-13, July.
    3. Flaviane Cristina Rocha Cesar & Lizete Malagoni de Almeida Cavalcante Oliveira & Mariana Cristyen Galvão & Ana Luiza Andrade Lacerda, 2024. "How Do Healthcare Professionals Develop the Communication Process to Promote Patients’ Health Literacy?," IJERPH, MDPI, vol. 21(5), pages 1-12, April.

    Most related items

    These are the items that most often cite the same works as this one and are cited by the same works as this one.
    1. Ruth Koops van ‘t Jagt & Shu Ling Tan & John Hoeks & Sophie Spoorenberg & Sijmen A. Reijneveld & Andrea F. de Winter & Sonia Lippke & Carel Jansen, 2019. "Using Photo Stories to Support Doctor-Patient Communication: Evaluating a Communicative Health Literacy Intervention for Older Adults," IJERPH, MDPI, vol. 16(19), pages 1-18, October.
    2. Ivana Skoumalova & Andrea Madarasova Geckova & Jaroslav Rosenberger & Maria Majernikova & Peter Kolarcik & Daniel Klein & Andrea F. de Winter & Jitse P. van Dijk & Sijmen A. Reijneveld, 2022. "Low Health Literacy Is Associated with Poorer Physical and Mental Health-Related Quality of Life in Dialysed Patients," IJERPH, MDPI, vol. 19(20), pages 1-9, October.
    3. Marco D. Boonstra & Sijmen A. Reijneveld & Gerjan Navis & Ralf Westerhuis & Andrea F. de Winter, 2021. "Co-Creation of a Multi-Component Health Literacy Intervention Targeting Both Patients with Mild to Severe Chronic Kidney Disease and Health Care Professionals," IJERPH, MDPI, vol. 18(24), pages 1-19, December.
    4. Liesbeth de Wit & Pania Karnaki & Archontoula Dalma & Peter Csizmadia & Charlotte Salter & Andrea de Winter & Louise Meijering, 2020. "Health Literacy in the Everyday Lives of Older Adults in Greece, Hungary, and the Netherlands," IJERPH, MDPI, vol. 17(7), pages 1-16, April.
    5. Don Nutbeam & Diane Levin-Zamir & Gill Rowlands, 2018. "Health Literacy in Context," IJERPH, MDPI, vol. 15(12), pages 1-3, November.
    6. Marise S. Kaper & Jane Sixsmith & Sijmen A. Reijneveld & Andrea F. de Winter, 2021. "Outcomes and Critical Factors for Successful Implementation of Organizational Health Literacy Interventions: A Scoping Review," IJERPH, MDPI, vol. 18(22), pages 1-21, November.
    7. Carel J. M. Jansen & Ruth Koops van ’t Jagt & Sijmen A. Reijneveld & Ellen van Leeuwen & Andrea F. de Winter & John C. J. Hoeks, 2021. "Improving Health Literacy Responsiveness: A Randomized Study on the Uptake of Brochures on Doctor-Patient Communication in Primary Health Care Waiting Rooms," IJERPH, MDPI, vol. 18(9), pages 1-17, May.
    8. Elena Guggiari & Rebecca Jaks & Fabian Marc Pascal Berger & Dunja Nicca & Saskia Maria De Gani, 2021. "Health Literacy in the Canton of Zurich: First Results of a Representative Study," IJERPH, MDPI, vol. 18(23), pages 1-12, December.
    9. Vogel, Amyn & Balzer, Felix & Fürstenau, Daniel, 2021. "The social construction of the patient-physician relationship in the clinical encounter: Media frames on shared decision making in Germany," Social Science & Medicine, Elsevier, vol. 289(C).
    10. Anthony Faiola & Maged N. Kamel Boulos & Salman Bin Naeem & Aziz ur-Rehman, 2022. "Integrating Social and Family Support as a Measure of Health Outcomes: Validity Implications from the Integrated Model of Health Literacy," IJERPH, MDPI, vol. 20(1), pages 1-19, December.

    Corrections

    All material on this site has been provided by the respective publishers and authors. You can help correct errors and omissions. When requesting a correction, please mention this item's handle: RePEc:gam:jijerp:v:16:y:2019:i:21:p:4300-:d:283834. See general information about how to correct material in RePEc.

    If you have authored this item and are not yet registered with RePEc, we encourage you to do it here. This allows to link your profile to this item. It also allows you to accept potential citations to this item that we are uncertain about.

    If CitEc recognized a bibliographic reference but did not link an item in RePEc to it, you can help with this form .

    If you know of missing items citing this one, you can help us creating those links by adding the relevant references in the same way as above, for each refering item. If you are a registered author of this item, you may also want to check the "citations" tab in your RePEc Author Service profile, as there may be some citations waiting for confirmation.

    For technical questions regarding this item, or to correct its authors, title, abstract, bibliographic or download information, contact: MDPI Indexing Manager (email available below). General contact details of provider: https://www.mdpi.com .

    Please note that corrections may take a couple of weeks to filter through the various RePEc services.

    IDEAS is a RePEc service. RePEc uses bibliographic data supplied by the respective publishers.