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Predictors of Caregivers’ Satisfaction with the Management of Children with Autism Spectrum Disorder: A Study at Multiple Levels of Health Care

Author

Listed:
  • Nik Aida Nik Adib

    (Department of Community Medicine, School of Medical Sciences, Universiti Sains Malaysia, 16150 Kubang Kerian, Kota Bharu, Kelantan, Malaysia)

  • Mohd Ismail Ibrahim

    (Department of Community Medicine, School of Medical Sciences, Universiti Sains Malaysia, 16150 Kubang Kerian, Kota Bharu, Kelantan, Malaysia)

  • Azriani Ab Rahman

    (Department of Community Medicine, School of Medical Sciences, Universiti Sains Malaysia, 16150 Kubang Kerian, Kota Bharu, Kelantan, Malaysia)

  • Raishan Shafini Bakar

    (Department of Psychiatric, School of Medical Sciences, Hospital Universiti Sains Malaysia, 16150 Kubang Kerian, Kota Bharu, Kelantan, Malaysia)

  • Nor Azni Yahaya

    (Department of Pediatric, Hospital Raja Perempuan Zainab II, 15200 Kota Bharu, Kelantan, Malaysia)

  • Suria Hussin

    (Department of Psychiatric, Hospital Raja Perempuan Zainab II, 15200 Kota Bharu, Kelantan, Malaysia)

  • Wan Nor Arifin Wan Mansor

    (Unit of Biostatistics and Research Methodology, School of Medical Sciences, Universiti Sains Malaysia, 16150 Kubang Kerian, Kota Bharu, Kelantan, Malaysia)

Abstract

Background: Caregivers are the initial gatekeepers in the health care management of children with autism spectrum disorder (ASD). Methods: This cross-sectional study aimed to determine the factors associated with caregivers’ satisfaction with different levels of health care services in managing children with ASD in Kelantan. The satisfaction scores of 227 main caregivers of confirmed ASD children were assessed with a modified Parent Satisfaction Scale (PSS) questionnaire. Results: The analysis showed that caregivers who waited longer for a doctor’s consultation in primary care had a reduced PSS score, whereas caregivers who were satisfied with the waiting time in primary care had higher PSS scores. At the secondary care level, caregivers who possessed at least a diploma had reduced PSS scores, whereas caregivers who were satisfied with both doctors’ consultation times and occupational therapy appointments had higher PSS scores. At the tertiary care level, caregivers with an underlying medical problem and who had children undergoing occupational therapy for two months or more had reduced PSS scores. Nevertheless, the analysis showed that caregivers who were concerned with their children’s sleeping problems, who had been informed about parental support, who were satisfied with speech and occupational therapy appointments, who were satisfied with waiting times at tertiary care clinics, and who were satisfied with their doctor’s knowledge and experience had higher PSS scores. Conclusions: This study elucidated the importance of understanding caregivers’ satisfaction in attaining care for their ASD children and highlighted the need to promote factors that would increase caregivers’ satisfaction with current ASD services.

Suggested Citation

  • Nik Aida Nik Adib & Mohd Ismail Ibrahim & Azriani Ab Rahman & Raishan Shafini Bakar & Nor Azni Yahaya & Suria Hussin & Wan Nor Arifin Wan Mansor, 2019. "Predictors of Caregivers’ Satisfaction with the Management of Children with Autism Spectrum Disorder: A Study at Multiple Levels of Health Care," IJERPH, MDPI, vol. 16(10), pages 1-18, May.
  • Handle: RePEc:gam:jijerp:v:16:y:2019:i:10:p:1684-:d:230955
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    References listed on IDEAS

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    1. Nik Aida Nik Adib & Mohd Ismail Ibrahim & Azriani Ab Rahman & Raishan Shafini Bakar & Nor Azni Yahaya & Suria Hussin & Wan Nor Arifin, 2018. "Translation and Validation of the Malay Version of the Parents’ Satisfaction Scale (PSS-M) for Assessment of Caregivers’ Satisfaction with Health Care Services for Children with Autism Spectrum Disord," IJERPH, MDPI, vol. 15(11), pages 1-14, November.
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    Cited by:

    1. Siti Fairus Asahar & Khasnur Abd Malek & Mohamad Rodi Isa, 2021. "Quality of Life and Child’s Autism-Specific Difficulties among Malaysian Main Caregivers: A Cross-Sectional Study," IJERPH, MDPI, vol. 18(18), pages 1-15, September.

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