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Implementation of the International Classification of Functioning, Disability, and Health (ICF) Core Sets for Children and Youth with Cerebral Palsy: Global Initiatives Promoting Optimal Functioning

Author

Listed:
  • Verónica Schiariti

    (Division of Medical Sciences, University of Victoria, Victoria, BC V8W 2Y2, Canada)

  • Egmar Longo

    (Postgraduate Program in Collective Health, Faculty of Health Sciences of Trairi (UFRN-FACISA), Federal University of Rio Grande do Norte, Santa Cruz 59200-000, Brazil)

  • Alexander Shoshmin

    (Federal Scientific Center of Rehabilitation of the Disabled named after G.A. Albrecht, Saint Petersburg 195067, Russia)

  • Ludmila Kozhushko

    (Federal Scientific Center of Rehabilitation of the Disabled named after G.A. Albrecht, Saint Petersburg 195067, Russia)

  • Yanina Besstrashnova

    (Federal Scientific Center of Rehabilitation of the Disabled named after G.A. Albrecht, Saint Petersburg 195067, Russia)

  • Maria Król

    (The Step by Step Association for Help of Disabled Children, Zamość 22-400, Poland)

  • Taynah Neri Correia Campos

    (Postgraduate Program in Collective Health, Faculty of Health Sciences of Trairi (UFRN-FACISA), Federal University of Rio Grande do Norte, Santa Cruz 59200-000, Brazil)

  • Haryelle Náryma Confessor Ferreira

    (Postgraduate Program in Collective Health, Faculty of Health Sciences of Trairi (UFRN-FACISA), Federal University of Rio Grande do Norte, Santa Cruz 59200-000, Brazil)

  • Cláudia Verissimo

    (Health School Science, Polytechnic Institute of Leiria, Leiria 2411-901, Portugal)

  • Daniel Shaba

    (RIPPLE Africa, Limbe 431136, Malawi, Africa)

  • Matilda Mwale

    (RIPPLE Africa, Limbe 431136, Malawi, Africa
    Department of Education, Catholic University of Malawi, Limbe 431136, Malawi, Africa)

  • Sandra Amado

    (Health School Science, Polytechnic Institute of Leiria, Leiria 2411-901, Portugal)

Abstract

Background: The International Classification of Functioning, Disability, and Health (ICF) Core Sets for children and youth with cerebral palsy (CP) offer service providers and stakeholders a specific framework to explore functioning and disability for assessment, treatment, evaluation, and policy purposes in a global context. Objective: Describe global initiatives applying the ICF Core Sets for children and youth with CP, with a focus on contributions to clinical practice and challenges in their implementation. Methods: This is a descriptive cross-sectional study. Ongoing initiatives applying the ICF Core Sets for CP in Russia, Poland, Malawi, and Brazil are included. Results: The main contributions of applying the ICF Core Sets for children and youth with CP include: (1) an objective description of abilities and limitations in everyday activities; (2) a consistent identification of facilitators and barriers influencing functioning; (3) a practical communication tool promoting client-centered care and multidisciplinary teamwork; and, (4) a useful guideline for measurement selection. The main challenges of adopting the ICF Core Sets are related to lack of ICF knowledge requiring intense training and translating results from standardized measures into the ICF qualifiers in a consistent way. Conclusions: Global initiatives include research and clinical applications at the program, service and system levels. The ICF Core Sets for CP are useful tools to guide service provision and build profiles of functioning and disability. Global interprofessional collaboration, capacity training, and informatics (e-records) will maximize their applications and accelerate adoption.

Suggested Citation

  • Verónica Schiariti & Egmar Longo & Alexander Shoshmin & Ludmila Kozhushko & Yanina Besstrashnova & Maria Król & Taynah Neri Correia Campos & Haryelle Náryma Confessor Ferreira & Cláudia Verissimo & Da, 2018. "Implementation of the International Classification of Functioning, Disability, and Health (ICF) Core Sets for Children and Youth with Cerebral Palsy: Global Initiatives Promoting Optimal Functioning," IJERPH, MDPI, vol. 15(9), pages 1-19, September.
    • Handle: RePEc:gam:jijerp:v:15:y:2018:i:9:p:1899-:d:167053
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    References listed on IDEAS

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    1. Haryelle Náryma Confessor Ferreira & Veronica Schiariti & Isabelly Cristina Rodrigues Regalado & Klayton Galante Sousa & Silvana Alves Pereira & Carla Patrícia Novaes dos Santos Fechine & Egmar Longo, 2018. "Functioning and Disability Profile of Children with Microcephaly Associated with Congenital Zika Virus Infection," IJERPH, MDPI, vol. 15(6), pages 1-14, May.
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    Cited by:

    1. Verónica Schiariti & Rune J. Simeonsson & Karen Hall, 2021. "Promoting Developmental Potential in Early Childhood: A Global Framework for Health and Education," IJERPH, MDPI, vol. 18(4), pages 1-15, February.
    2. Barbara Gugała & Beata Penar-Zadarko & Danuta Pięciak-Kotlarz & Katarzyna Wardak & Aneta Lewicka-Chomont & Magdalena Futyma-Ziaja & Józef Opara, 2019. "Assessment of Anxiety and Depression in Polish Primary Parental Caregivers of Children with Cerebral Palsy Compared to a Control Group, as well as Identification of Selected Predictors," IJERPH, MDPI, vol. 16(21), pages 1-16, October.
    3. Silvana B. Napoli & María Paula Vitale & Pablo J. Cafiero & María Belén Micheletti & Paula Pedernera Bradichansky & Celina Lejarraga & Maria Gabriela Urinovsky & Anabella Escalante & Estela Rodriguez , 2021. "Developing a Culturally Sensitive ICF-Based Tool to Describe Functioning of Children with Autism Spectrum Disorder: TEA-CIFunciona Version 1.0 Pilot Study," IJERPH, MDPI, vol. 18(7), pages 1-18, April.

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