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Functioning and Disability Profile of Children with Microcephaly Associated with Congenital Zika Virus Infection

Author

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  • Haryelle Náryma Confessor Ferreira

    (Postgraduate Program in Collective Health, Federal University of Rio Grande do Norte—Faculty of Health Sciences of Trairi (UFRN-FACISA), Santa Cruz 59200-000, Brazil)

  • Veronica Schiariti

    (Division of Medical Sciences, University of Victoria, BC V8W 2Y2, Canada)

  • Isabelly Cristina Rodrigues Regalado

    (Postgraduate Program in Physical Therapy, Federal University of Rio Grande do Norte, Natal 59078-970, Brazil)

  • Klayton Galante Sousa

    (Postgraduate Program in Collective Health, Federal University of Rio Grande do Norte—Faculty of Health Sciences of Trairi (UFRN-FACISA), Santa Cruz 59200-000, Brazil)

  • Silvana Alves Pereira

    (Postgraduate Program in Collective Health, Federal University of Rio Grande do Norte—Faculty of Health Sciences of Trairi (UFRN-FACISA), Santa Cruz 59200-000, Brazil)

  • Carla Patrícia Novaes dos Santos Fechine

    (Undegraduate Program in Physical Therapy, UNIPÊ, João Pessoa 58053-000, Brazil)

  • Egmar Longo

    (Postgraduate Program in Collective Health, Federal University of Rio Grande do Norte—Faculty of Health Sciences of Trairi (UFRN-FACISA), Santa Cruz 59200-000, Brazil)

Abstract

Introduction: The increase in the number of cases of microcephaly in Brazil and its association with the Zika virus (ZIKV) is a global public health problem. The International Classification of Functioning Disability and Health (ICF) model is a powerful tool and extremely relevant in managing disability. Objective: Describe the functioning profile of children with microcephaly associated with ZIKV in two states of northeastern Brazil. Methods: This is a descriptive cross-sectional study. The sociodemographic characteristics, head circumference, and other clinical data were collected from medical charts, physical examinations, measuring instruments, and interviews with the children and their parents. The Brazilian Portuguese version of the Brief Common ICF Core Set for cerebral palsy (CP) was used. Each ICF category was assigned a qualifier, which ranged from 0 to 4 (no problem, mild problem, moderate problem, severe problem, complete problem). For environmental factors, 0 represents no barrier and 4 represents complete barrier; +0, no facilitator and +4, complete facilitator. Results: A total of 34 children with microcephaly caused by ZIKV were recruited (18 girls and 16 boys) at four rehabilitation facilities in Rio Grande do Norte and Paraíba states, Brazil. The average age of the participants was 21 months, monthly income was ≈USD 300.00, and head circumference z-scores ranged between 0.92 and −5.51. The functioning profile revealed complete disability in most of the body function categories (b). The activity and participation areas (d) were highly impacted, particularly in mobility-related categories. With respect to environmental factors (e), most of the sample reported a complete facilitator for the immediate family, friends, and health services, systems, and policies, as well as a complete barrier to societal attitudes. Conclusion: This is the first study that describes the functioning profile of children with microcephaly associated with ZIKV, using a tool based on the ICF in Brazil. Our findings reinforce the need to maximize health care and access to information, based on the ICF, for multiprofessional teams, administrators, family members, and children.

Suggested Citation

  • Haryelle Náryma Confessor Ferreira & Veronica Schiariti & Isabelly Cristina Rodrigues Regalado & Klayton Galante Sousa & Silvana Alves Pereira & Carla Patrícia Novaes dos Santos Fechine & Egmar Longo, 2018. "Functioning and Disability Profile of Children with Microcephaly Associated with Congenital Zika Virus Infection," IJERPH, MDPI, vol. 15(6), pages 1-14, May.
    • Handle: RePEc:gam:jijerp:v:15:y:2018:i:6:p:1107-:d:149591
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    References listed on IDEAS

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    1. Dana Anaby & Mary Law & Rachel Teplicky & Laura Turner, 2015. "Focusing on the Environment to Improve Youth Participation: Experiences and Perspectives of Occupational Therapists," IJERPH, MDPI, vol. 12(10), pages 1-11, October.
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    Cited by:

    1. Verónica Schiariti & Egmar Longo & Alexander Shoshmin & Ludmila Kozhushko & Yanina Besstrashnova & Maria Król & Taynah Neri Correia Campos & Haryelle Náryma Confessor Ferreira & Cláudia Verissimo & Da, 2018. "Implementation of the International Classification of Functioning, Disability, and Health (ICF) Core Sets for Children and Youth with Cerebral Palsy: Global Initiatives Promoting Optimal Functioning," IJERPH, MDPI, vol. 15(9), pages 1-19, September.
    2. Verónica Schiariti & Rune J. Simeonsson & Karen Hall, 2021. "Promoting Developmental Potential in Early Childhood: A Global Framework for Health and Education," IJERPH, MDPI, vol. 18(4), pages 1-15, February.
    3. Maria-Lucia C. Lage & Alessandra L. de Carvalho & Paloma A. Ventura & Tania B. Taguchi & Adriana S. Fernandes & Suely F. Pinho & Onildo T. Santos-Junior & Clara L. Ramos & Cristiana M. Nascimento-Carv, 2019. "Clinical, Neuroimaging, and Neurophysiological Findings in Children with Microcephaly Related to Congenital Zika Virus Infection," IJERPH, MDPI, vol. 16(3), pages 1-9, January.
    4. Deborah Juarbe-Rey & Adriana Obén Pérez & Roberto Papo Christian P. Santoni & Melissa Ramírez Ramírez & Mildred Vera, 2018. "Using Risk Communication Strategies for Zika Virus Prevention and Control Driven by Community-Based Participatory Research," IJERPH, MDPI, vol. 15(11), pages 1-11, November.
    5. Silvana B. Napoli & María Paula Vitale & Pablo J. Cafiero & María Belén Micheletti & Paula Pedernera Bradichansky & Celina Lejarraga & Maria Gabriela Urinovsky & Anabella Escalante & Estela Rodriguez , 2021. "Developing a Culturally Sensitive ICF-Based Tool to Describe Functioning of Children with Autism Spectrum Disorder: TEA-CIFunciona Version 1.0 Pilot Study," IJERPH, MDPI, vol. 18(7), pages 1-18, April.
    6. Egmar Longo & Ana Carolina De Campos & Amanda Spinola Barreto & Dinara Laiana de Lima Nascimento Coutinho & Monique Leite Galvão Coelho & Carolina Corsi & Karolinne Souza Monteiro & Samuel Wood Logan, 2020. "Go Zika Go: A Feasibility Protocol of a Modified Ride-on Car Intervention for Children with Congenital Zika Syndrome in Brazil," IJERPH, MDPI, vol. 17(18), pages 1-12, September.
    7. Thaís Lorena Barbosa de França & Wilton Rodrigues Medeiros & Nilba Lima de Souza & Egmar Longo & Silvana Alves Pereira & Thamyris Barbosa de Oliveira França & Klayton Galante Sousa, 2018. "Growth and Development of Children with Microcephaly Associated with Congenital Zika Virus Syndrome in Brazil," IJERPH, MDPI, vol. 15(9), pages 1-11, September.

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