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A Case Study of Community Involvement Influence on Policy Decisions: Victories of a Community-Based Participatory Research Partnership

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Listed:
  • Edith M. Williams

    (Department of Public Health Sciences, Medical University of South Carolina (MUSC), 135 Cannon Street, Charleston, SC 29425, USA)

  • Julien Terrell

    (The Brotherhood/Sister Sol (Bro/Sis), 512 West 143rd Street, New York, NY 10031, USA)

  • Judith Anderson

    (Environmental Justice Action Group (EJAG) of Western NY, Buffalo, NY 14203, USA)

  • Laurene Tumiel-Berhalter

    (Primary Care Research Institute, University at Buffalo, UB Gateway Building, 77 Goodell St, Suite 220, Buffalo, NY 14203, USA)

Abstract

The Buffalo Lupus Project was a community-university partnership that investigated associations between exposure to a local waste site and high rates of lupus and other autoimmune diseases. The partnership’s major accomplishment was successful advocacy for containment and clean-up of the site. As a result of community education, the remediation plan suggested by the community was adopted. Additionally, when a local childhood lead poisoning testing program was canceled, community members signed a letter to legislators urging them to replace the funding, which was restored within one week. This demonstrated how coordinated community-based capacity-building efforts can influence health policy.

Suggested Citation

  • Edith M. Williams & Julien Terrell & Judith Anderson & Laurene Tumiel-Berhalter, 2016. "A Case Study of Community Involvement Influence on Policy Decisions: Victories of a Community-Based Participatory Research Partnership," IJERPH, MDPI, vol. 13(5), pages 1-9, May.
    • Handle: RePEc:gam:jijerp:v:13:y:2016:i:5:p:515-:d:70496
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    References listed on IDEAS

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    2. Kinney, P.L. & Northridge, M.E. & Chew, G.L. & Gronning, E. & Joseph, E. & Correa, J.C. & Prakash, S. & Goldstein, I., 2002. "On the front lines: An environmental asthma intervention in New York City," American Journal of Public Health, American Public Health Association, vol. 92(1), pages 24-26.
    3. Minkler, M. & Blackwell, A.G. & Thompson, M. & Tamir, H.B., 2003. "Community-Based Participatory Research: Implications for Public Health Funding," American Journal of Public Health, American Public Health Association, vol. 93(8), pages 1210-1213.
    4. Baron, S. & Sinclair, R. & Payne-Sturges, D. & Phelps, J. & Zenick, H. & Collman, G.W. & O'Fallon, L.R., 2009. "Partnerships for environmental and occupational justice: contributions to research, capacity and public health," American Journal of Public Health, American Public Health Association, vol. 99(S3), pages 517-525.
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