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Creating an eLearning Resource to Improve Knowledge and Understanding of Pregnancy in the Context of HIV Infection

Author

Listed:
  • Carmel Kelly

    (School of Nursing & Midwifery, Queen's University Belfast, 97 Lisburn Road, Belfast BT9 7BL, UK
    South Eastern Health & Social Care Trust, Newtownards Road, BT16 IRN, UK)

  • Esther Reid

    (School of Nursing & Midwifery, Queen's University Belfast, 97 Lisburn Road, Belfast BT9 7BL, UK
    Southern Health & Social Care Trust, 68 Lurgan Road, BT35QQ, UK)

  • Maria Lohan

    (School of Nursing & Midwifery, Queen's University Belfast, 97 Lisburn Road, Belfast BT9 7BL, UK)

  • Fiona Alderdice

    (School of Nursing & Midwifery, Queen's University Belfast, 97 Lisburn Road, Belfast BT9 7BL, UK)

  • Dale Spence

    (School of Nursing & Midwifery, Queen's University Belfast, 97 Lisburn Road, Belfast BT9 7BL, UK)

Abstract

Patient narratives have much to teach healthcare professionals about the experience of living with a chronic condition. While the biomedical narrative of HIV treatment is hugely encouraging, the narrative of living with HIV continues to be overshadowed by a persuasive perception of stigma. This paper presents how we sought to translate the evidence from a qualitative study of the perspectives of HIV affected pregnant women and expectant fathers on the care they received, from the pre conception to post natal period, into educational material for maternity care practice. Narrative scripts were written based on the original research interviews, with care taken to reflect the key themes from the research. We explore the way in which the qualitative findings bring to life patient and partner experiences and what it means for nurses, midwives and doctors to be prepared to care for couples affected by HIV. In so doing, we challenge the inequity between the dominance of biomedical knowledge over understanding the patient experience in the preparation of health professionals to care for HIV affected women and men who are having a baby or seeking to have a baby.

Suggested Citation

  • Carmel Kelly & Esther Reid & Maria Lohan & Fiona Alderdice & Dale Spence, 2014. "Creating an eLearning Resource to Improve Knowledge and Understanding of Pregnancy in the Context of HIV Infection," IJERPH, MDPI, vol. 11(10), pages 1-14, October.
    • Handle: RePEc:gam:jijerp:v:11:y:2014:i:10:p:10504-10517:d:41172
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    References listed on IDEAS

    as
    1. Parsons, Janet & Heus, Lineke & Moravac, Catherine, 2013. "Seeing voices of health disparity: Evaluating arts projects as influence processes," Evaluation and Program Planning, Elsevier, vol. 36(1), pages 165-171.
    2. Carmel Kelly & Fiona Alderdice & Maria Lohan & Dale Spence, 2012. "Creating continuity out of the disruption of a diagnosis of HIV during pregnancy," Journal of Clinical Nursing, John Wiley & Sons, vol. 21(11‐12), pages 1554-1562, June.
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