IDEAS home Printed from https://ideas.repec.org/a/eee/socmed/v74y2012i7p997-1004.html
   My bibliography  Save this article

Interpretations of informed choice in antenatal screening: A cross-cultural, Q-methodology study

Author

Listed:
  • Ahmed, Shenaz
  • Bryant, Louise D.
  • Tizro, Zahra
  • Shickle, Darren

Abstract

Informed choice is internationally recognised and accepted as an important aspect of ethical healthcare. In the UK, NHS antenatal screening policies state that their primary aim is to facilitate reproductive informed choices. These policies, implemented within a multiethnic population, are largely guided by the ethical principle of autonomy. This study was carried out in 2009 in the UK and used Q-methodology to explore diversity in the value attached to autonomous informed choice in antenatal screening for genetic disorders and similarities and differences in this value in women from different ethnic origins. Ninety-eight participants of African, British White, Caribbean, Chinese and Pakistani origin completed a 41-statement Q-sort in English, French, Mandarin or Urdu. Q-Factor analysis produced five statistically independent viewpoints of the value of informed choice: choice as an individual right; choice informed by religious values; choice as a shared responsibility; choice advised by health professionals; and choice within the family context. The findings show that women hold a variety of views on the nature of informed choice, and that, contradictory to policies of autonomous informed choice, many women seek and value the advice of health professionals. The findings have implications for the role of health professionals in facilitating informed choice, quality of care and equity of access.

Suggested Citation

  • Ahmed, Shenaz & Bryant, Louise D. & Tizro, Zahra & Shickle, Darren, 2012. "Interpretations of informed choice in antenatal screening: A cross-cultural, Q-methodology study," Social Science & Medicine, Elsevier, vol. 74(7), pages 997-1004.
  • Handle: RePEc:eee:socmed:v:74:y:2012:i:7:p:997-1004
    DOI: 10.1016/j.socscimed.2011.12.021
    as

    Download full text from publisher

    File URL: http://www.sciencedirect.com/science/article/pii/S0277953612000421
    Download Restriction: Full text for ScienceDirect subscribers only

    File URL: https://libkey.io/10.1016/j.socscimed.2011.12.021?utm_source=ideas
    LibKey link: if access is restricted and if your library uses this service, LibKey will redirect you to where you can use your library subscription to access this item
    ---><---

    As the access to this document is restricted, you may want to search for a different version of it.

    References listed on IDEAS

    as
    1. Stenner, Paul H. D. & Cooper, Deborah & Skevington, Suzanne M., 2003. "Putting the Q into quality of life; the identification of subjective constructions of health-related quality of life using Q methodology," Social Science & Medicine, Elsevier, vol. 57(11), pages 2161-2172, December.
    2. Bryant, Louise D. & Green, Josephine M. & Hewison, Jenny, 2006. "Understandings of Down's syndrome: A Q methodological investigation," Social Science & Medicine, Elsevier, vol. 63(5), pages 1188-1200, September.
    3. Williams, Clare & Alderson, Priscilla & Farsides, Bobbie, 2002. "Is nondirectiveness possible within the context of antenatal screening and testing?," Social Science & Medicine, Elsevier, vol. 54(3), pages 339-347, February.
    Full references (including those not matched with items on IDEAS)

    Citations

    Citations are extracted by the CitEc Project, subscribe to its RSS feed for this item.
    as


    Cited by:

    1. Grigory Franguridi, 2014. "Higher order conditional moment dynamics and forecasting value-at-risk (in Russian)," Quantile, Quantile, issue 12, pages 69-82, February.
    2. Matinga, Margaret N. & Pinedo-Pascua, Irene & Vervaeke, Jonathan & Monforti-Ferrario, Fabio & Szabó, Sándor, 2014. "Do African and European energy stakeholders agree on key energy drivers in Africa? Using Q methodology to understand perceptions on energy access debates," Energy Policy, Elsevier, vol. 69(C), pages 154-164.
    3. Wild, Kayli & Maypilama, Elaine Lawurrpa & Kildea, Sue & Boyle, Jacqueline & Barclay, Lesley & Rumbold, Alice, 2013. "‘Give us the full story’: Overcoming the challenges to achieving informed choice about fetal anomaly screening in Australian Aboriginal communities," Social Science & Medicine, Elsevier, vol. 98(C), pages 351-360.

    Most related items

    These are the items that most often cite the same works as this one and are cited by the same works as this one.
    1. Williams, Clare & Ehrich, Kathryn & Farsides, Bobbie & Scott, Rosamund, 2007. "Facilitating choice, framing choice: Staff views on widening the scope of preimplantation genetic diagnosis in the UK," Social Science & Medicine, Elsevier, vol. 65(6), pages 1094-1105, September.
    2. Koch, Lene & Nordahl Svendsen, Mette, 2005. "Providing solutions-defining problems: the imperative of disease prevention in genetic counselling," Social Science & Medicine, Elsevier, vol. 60(4), pages 823-832, February.
    3. Bryant, Louise D. & Ahmed, Shenaz & Ahmed, Mushtaq & Jafri, Hussain & Raashid, Yasmin, 2011. "'All is done by Allah'. Understandings of Down syndrome and prenatal testing in Pakistan," Social Science & Medicine, Elsevier, vol. 72(8), pages 1393-1399, April.
    4. Christel Protiére & Rachel Baker & Dominique Genre & Anthony Goncalves & Patrice Viens, 2017. "Marketing Authorization Procedures for Advanced Cancer Drugs: Exploring the Views of Patients, Oncologists, Healthcare Decision Makers, and Citizens in France," Medical Decision Making, , vol. 37(5), pages 555-566, July.
    5. van Exel, Job & de Graaf, Gjalt & Brouwer, Werner, 2008. "Give me a break!: Informal caregiver attitudes towards respite care," Health Policy, Elsevier, vol. 88(1), pages 73-87, October.
    6. Giacaman, Rita & Mataria, Awad & Nguyen-Gillham, Viet & Safieh, Rula Abu & Stefanini, Angelo & Chatterji, Somnath, 2007. "Quality of life in the Palestinian context: An inquiry in war-like conditions," Health Policy, Elsevier, vol. 81(1), pages 68-84, April.
    7. van Exel, N.J.A. & de Graaf, G. & Brouwer, W.B.F., 2006. ""Everyone dies, so you might as well have fun!" Attitudes of Dutch youths about their health lifestyle," Social Science & Medicine, Elsevier, vol. 63(10), pages 2628-2639, November.
    8. Finn, Mark & Sarangi, Srikant, 2008. "Quality of life as a mode of governance: NGO talk of HIV 'positive' health in India," Social Science & Medicine, Elsevier, vol. 66(7), pages 1568-1578, April.
    9. van Exel, Job & Baker, Rachel & Mason, Helen & Donaldson, Cam & Brouwer, Werner, 2015. "Public views on principles for health care priority setting: Findings of a European cross-country study using Q methodology," Social Science & Medicine, Elsevier, vol. 126(C), pages 128-137.
    10. Tahereh Zobeidi & Masoud Yazdanpanah & Masoumeh Forouzani & Bahman Khosravipour, 2016. "Climate change discourse among Iranian farmers," Climatic Change, Springer, vol. 138(3), pages 521-535, October.
    11. Rachel Baker & John Wildman & Helen Mason & Cam Donaldson, 2014. "Q‐Ing For Health—A New Approach To Eliciting The Public'S Views On Health Care Resource Allocation," Health Economics, John Wiley & Sons, Ltd., vol. 23(3), pages 283-297, March.
    12. Vassy, Carine & Rosman, Sophia & Rousseau, Bénédicte, 2014. "From policy making to service use. Down's syndrome antenatal screening in England, France and the Netherlands," Social Science & Medicine, Elsevier, vol. 106(C), pages 67-74.
    13. Jiayuan Li, 2018. "Translating Idea into Reality? A Q-Methodological Investigation of Chinese Local Officials’ Response to the Initiative of a Happiness Index," Social Indicators Research: An International and Interdisciplinary Journal for Quality-of-Life Measurement, Springer, vol. 139(2), pages 433-452, September.
    14. Ville, Isabelle & Mirlesse, Véronique, 2015. "Prenatal diagnosis: From policy to practice. Two distinct ways of managing prognostic uncertainty and anticipating disability in Brazil and in France," Social Science & Medicine, Elsevier, vol. 141(C), pages 19-26.
    15. Matthew Cotton & Patrick Devine-Wright, 2011. "Discourses of Energy Infrastructure Development: A Q-Method Study of Electricity Transmission Line Siting in the UK," Environment and Planning A, , vol. 43(4), pages 942-960, April.
    16. Williams, Clare, 2005. "Framing the fetus in medical work: rituals and practices," Social Science & Medicine, Elsevier, vol. 60(9), pages 2085-2095, May.
    17. Graham, Ruth H. & Robson, Stephen C. & Rankin, Judith M., 2008. "Understanding feticide: An analytic review," Social Science & Medicine, Elsevier, vol. 66(2), pages 289-300, January.
    18. Gammeltoft, Tine & Nguyen, Hanh Thi Thuy, 2007. "Fetal conditions and fatal decisions: Ethical dilemmas in ultrasound screening in Vietnam," Social Science & Medicine, Elsevier, vol. 64(11), pages 2248-2259, June.
    19. Emanuel Stoeckli & Christian Dremel & Falk Uebernickel & Walter Brenner, 2020. "How affordances of chatbots cross the chasm between social and traditional enterprise systems," Electronic Markets, Springer;IIM University of St. Gallen, vol. 30(2), pages 369-403, June.
    20. Rotteveel, A.H. & Reckers-Droog, V.T. & Lambooij, M.S. & de Wit, G.A. & van Exel, N.J.A., 2021. "Societal views in the Netherlands on active disinvestment of publicly funded healthcare interventions," Social Science & Medicine, Elsevier, vol. 272(C).

    Corrections

    All material on this site has been provided by the respective publishers and authors. You can help correct errors and omissions. When requesting a correction, please mention this item's handle: RePEc:eee:socmed:v:74:y:2012:i:7:p:997-1004. See general information about how to correct material in RePEc.

    If you have authored this item and are not yet registered with RePEc, we encourage you to do it here. This allows to link your profile to this item. It also allows you to accept potential citations to this item that we are uncertain about.

    If CitEc recognized a bibliographic reference but did not link an item in RePEc to it, you can help with this form .

    If you know of missing items citing this one, you can help us creating those links by adding the relevant references in the same way as above, for each refering item. If you are a registered author of this item, you may also want to check the "citations" tab in your RePEc Author Service profile, as there may be some citations waiting for confirmation.

    For technical questions regarding this item, or to correct its authors, title, abstract, bibliographic or download information, contact: Catherine Liu (email available below). General contact details of provider: http://www.elsevier.com/wps/find/journaldescription.cws_home/315/description#description .

    Please note that corrections may take a couple of weeks to filter through the various RePEc services.

    IDEAS is a RePEc service. RePEc uses bibliographic data supplied by the respective publishers.